I have ordered a private blood tests this morning thanks to this group.
Long story short I’m on 75mg of LEVO and have been for 6 years.
I have been working with a PT on a calorie controlled gluten free diet for over 6 weeks with little results.
The PT suggested I looked into T3 conversation and as you can probably guess my regular GP won’t consider even testing or reffering me to endo due to my ‘normal’ THS levels. I have booked an appointment with a private GP via vitality on Wednesday but not sure if they will be much help either?
I still have a lot of hair loss and bad hives when cold. Not to mention the weightloss frustrations. Currently taking 2000ud Vit D,1000 Vit C, B12, Fish Oils, Zinc, Magnesium and iron daily aswell as completely gluten free.
Is there anyone out there who found a tangible difference to symptoms such as weight and hair after T3? And also what should i say to the private GP without being fobbed off?
Desperate for answers, thanks
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Staceoglasgow
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Thank you! Yeah I ordered the thyriod test online for the TSH , T4 and T3. I’ll speak to my GP about testing for vitamins and antibodies but I won’t hold my breath.
I’m certainly not petite by any means so it’s interesting that I could be under medicated.
I’ll look more into Hasimotos thank you. And I have e-mailed the TUKadmin for a list of referrals but no reply as yet.
I feel a bit stuck between a rock and a hard place if dieting and exercise further decreases FT3 🙈
How are we supposed to loose the weight if we can’t get the support and when we try to loose the weight out our hormones even further out of sorts. I’m exhausted with it all
What were your most recent thyroid results from GP
ALWAYS test thyroid levels early morning, before 9am if possible and last dose levothyroxine 24 hours before test
Aiming for Ft4 in top third of range and Ft3 at least 50-60% through range
If Ft4 is low you’re under medicated and Ft3 will inevitably be low
If Ft4 is high and Ft3 is low you have poor conversion of Ft4 to Ft3
Low Ft3 leads to low vitamin levels
Low vitamin levels leads to poor conversion of Ft4 to Ft3
Gluten intolerant extremely common hidden issue
Approx how much do you weigh in kilo
guidelines on dose levothyroxine by weight
Even if we frequently don’t start on full replacement dose, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose
Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.
Traditionally we have tended to start patients on a low dose of levothyroxine and titrate it up over a period of months. RCT evidence suggests that for the majority of patients this is not necessary and may waste resources.
For patients aged >60y or with ischaemic heart disease, start levothyroxine at 25–50μg daily and titrate up every 3 to 6 weeks as tolerated.
For ALL other patients start at full replacement dose. For most this will equate to 1.6 μg/kg/day (approximately 100μg for a 60kg woman and 125μg for a 75kg man).
If you are starting treatment for subclinical hypothyroidism, this article advises starting at a dose close to the full treatment dose on the basis that it is difficult to assess symptom response unless a therapeutic dose has been trialled.
Replacement therapy with levothyroxine should be initiated in all patients to achieve a TSH level of 0.5-2.0pmol/L.
NHS England Liothyronine guidelines July 2019 clearly state on page 13 that TSH should be between 0.4-1.5 when OPTIMALLY treated with just Levothyroxine
Note that it says test should be in morning BEFORE taking levothyroxine
Mercury Pharma make 25mcg, 50mcg and 100mcg tablets
Generally they are widely available
Best to stay on same brand all the time, but especially when increasing dose
If GP is unhelpful over increasing the dose there’s a recommended endocrinologist on thyroid U.K. list in Edinburgh. They would instruct GP to increase dose levothyroxine and to slowly increase dose to high enough level to have TSH always around 1
Essential to test full thyroid and vitamin levels once year - usually that means testing privately
Test TSH, Ft4 and Ft3 via Monitor My Health 6-8 weeks after any dose change……in between that annual full test
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Gp
Private blood results - seems I have Hashi. Next steps?
Private blood tests 
please can you help with my results
