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Experiences with
D-bifunctional protein (DBP) deficiency
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Monday morning in New Mexico
This is an update on my recovery from the January 16th car accident after having DBS surgery last June. I encountered a return of my symptoms a few days after the accident. In February, I had the flu for over 10 days. Once I was over the flu I started exercising again at Munson Senior Center. I saw my
This is an update on my recovery from the January 16th car accident after having DBS surgery last June. I encountered a return of my symptoms a few days after the accident. In February, I had the flu for over 10 days. Once I was over the flu I started exercising again at Munson Senior Center. I saw my
jonroberts
in
Cure Parkinson's
11 years ago
Has any one who has had dbs found they have a funny sensation in their head?
Hidden
in
Cure Parkinson's
11 years ago
zandopa's choices?
what are the options to replace sinemet with micuna pruriens without the sugar existing in Zandopa? I discovered zandopa before DBS and I almoSt cancelled my DBS surgery (wish I had done it, because if something goes wrong surgeons have no clue about how to fix it; I got severe gait disturbances), because
what are the options to replace sinemet with micuna pruriens without the sugar existing in Zandopa? I discovered zandopa before DBS and I almoSt cancelled my DBS surgery (wish I had done it, because if something goes wrong surgeons have no clue about how to fix it; I got severe gait disturbances), because
eabud
in
Cure Parkinson's
11 years ago
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My Blood Results - Good and Bad
First set of results back some good news on the LFT front but something else is going on....and have been ask to attend Dr ASAP to discuss, going tomorrow. Well this is a record for me can anyone else beet it, 10 different tests in one hit, only 3 tubes but be awaiting 10pieces of paper to look
First set of results back some good news on the LFT front but something else is going on....and have been ask to attend Dr ASAP to discuss, going tomorrow. Well this is a record for me can anyone else beet it, 10 different tests in one hit, only 3 tubes but be awaiting 10pieces of paper to look
Bigplanet67
in
British Liver Trust
11 years ago
Just wondered whether having a B12 deficiency would affect absorption of iron tablets?
Having seen a couple of other posts relating to B12 it's just got me wondering whether low B12 levels could be a reason why my iron store levels aren't improving very much after nearly a year on the tablets. I have never been tested for B12 and folate levels....Just curious although I was orignially
Having seen a couple of other posts relating to B12 it's just got me wondering whether low B12 levels could be a reason why my iron store levels aren't improving very much after nearly a year on the tablets. I have never been tested for B12 and folate levels....Just curious although I was orignially
jan44
in
Gluten Free Guerrillas
11 years ago
DBS, Levodopa Challenge test, what does it involve?
fitzy777
in
Cure Parkinson's
11 years ago
Newly diagnosed......what is DBS?
wethree
in
Cure Parkinson's
11 years ago
Is the DBS operation painful?
I am scheduled for the DBS operation in Dallas on 4/24/2013. My neurosurgeon says I will be awake but will have a local anesthetic. Can anyone who has undergone the procedure let me know how traumatic it might be. I am 67 years old and a bit nervous about the prospect of the drilling into my skull. Thanks
I am scheduled for the DBS operation in Dallas on 4/24/2013. My neurosurgeon says I will be awake but will have a local anesthetic. Can anyone who has undergone the procedure let me know how traumatic it might be. I am 67 years old and a bit nervous about the prospect of the drilling into my skull. Thanks
ken_phd
in
Cure Parkinson's
11 years ago
DBS - does it wind back the movement clock??
On 17th April I'm having DBS. My neurosurgen, says an average result is to straight line my 'on periods' but he expects a significant result which by his definition is winding the movement clock back to when I first started taking levadopa. For me that was 10 years ago. For those of you who have had
On 17th April I'm having DBS. My neurosurgen, says an average result is to straight line my 'on periods' but he expects a significant result which by his definition is winding the movement clock back to when I first started taking levadopa. For me that was 10 years ago. For those of you who have had
CharlieMadge
in
Cure Parkinson's
11 years ago
DBS/NO-DRUGS OR ON DRUGS holiday,. Can you tell you have a DBS ?
Last weekend. ran out of meds . I thought I would be okay with having the DBS I was anything but okay.. I was unable to get out of my chair . When I did my legs would not move. Then my arms and hands. THIS CAN NOT BE RITE ??? Yours EXPORT.
Last weekend. ran out of meds . I thought I would be okay with having the DBS I was anything but okay.. I was unable to get out of my chair . When I did my legs would not move. Then my arms and hands. THIS CAN NOT BE RITE ??? Yours EXPORT.
export
in
Cure Parkinson's
11 years ago
Does anyone know if deep brain stimulation could help for psp?
There appears to be positive results for Parkinson's tremors, but wondered if it has been tried for psp?
There appears to be positive results for Parkinson's tremors, but wondered if it has been tried for psp?
Susan789
in
PSP Association
11 years ago
Car accident and DBS
I met with my Parkinson's Movement Specialist Wednesday. I received a DBS "makeover" as Dr. Jill reprogrammed me. She tried different settings and found what works for me. Since the car accident in January, I have been sluggish, taking naps in mid morning and after 3pm daily. The reprogramming has helped
I met with my Parkinson's Movement Specialist Wednesday. I received a DBS "makeover" as Dr. Jill reprogrammed me. She tried different settings and found what works for me. Since the car accident in January, I have been sluggish, taking naps in mid morning and after 3pm daily. The reprogramming has helped
jonroberts
in
Cure Parkinson's
11 years ago
Iron Deficiency and under active Thyroid - chicken and egg situation??
HI I have only recently come across this site and have found it very helpful. Thank you, Feeling inspired by advice on this site, I asked for another full blood test a few days ago. It has apparently come back as my thyroid level is OK. I am on 125 dose a day. But the bloods showed I am very
HI I have only recently come across this site and have found it very helpful. Thank you, Feeling inspired by advice on this site, I asked for another full blood test a few days ago. It has apparently come back as my thyroid level is OK. I am on 125 dose a day. But the bloods showed I am very
rcpeacock
in
Thyroid UK
11 years ago
Car accident 7 months after having successful DBS surgery
I had a very successful DBS surgery in June, 2012. It really improved my mobility and quality of life. Then on January 16 a SUV pulled out in front of our 1997 GEO Metro. My wife was going 35mph. The collision totaled our GEO. the SUV was cited. We both were checked out and released from the ER. My DBS
I had a very successful DBS surgery in June, 2012. It really improved my mobility and quality of life. Then on January 16 a SUV pulled out in front of our 1997 GEO Metro. My wife was going 35mph. The collision totaled our GEO. the SUV was cited. We both were checked out and released from the ER. My DBS
jonroberts
in
Cure Parkinson's
11 years ago
Science news for March 4 about DBS
Mar. 4, 2013 — A team of scientists and clinicians at UC San Francisco has discovered how to detect abnormal brain rhythms associated with Parkinson's by implanting electrodes within the brains of people with the disease. Share This: 13 Related Ads: Study the Brain Parkinson 'S TMS Depression
Mar. 4, 2013 — A team of scientists and clinicians at UC San Francisco has discovered how to detect abnormal brain rhythms associated with Parkinson's by implanting electrodes within the brains of people with the disease. Share This: 13 Related Ads: Study the Brain Parkinson 'S TMS Depression
Hidden
in
Cure Parkinson's
11 years ago
transplantation
Tomorrow morning my son an MD, internal med hospitalist, is driving me from Arizona to Corvallis Oregon. I will be living with him till our house in AZ sells and my wife moves up. In the interim I am pursuing a work up with a Movement Disorder Neuro/Psychiatrist in Corvallis that is integrated with
Tomorrow morning my son an MD, internal med hospitalist, is driving me from Arizona to Corvallis Oregon. I will be living with him till our house in AZ sells and my wife moves up. In the interim I am pursuing a work up with a Movement Disorder Neuro/Psychiatrist in Corvallis that is integrated with
etterus
in
Cure Parkinson's
11 years ago
This is a question for those who can switch off and on DBS . ARE YOU VERY WEEK AND SWEATY when off ?
export
in
Cure Parkinson's
11 years ago
How serious is this? extra dose of haemoglobin n iron n b12 n vitamin D... 26weeks...how common is it???
amby
in
Pernicious Anaemia Society
11 years ago
Is anyone suffering from a low thyroid and severe low iron and if so I there a link between the two?
I was diagnosed in Jan 2009 with a low thyroid and put on levothyroxine. To date I have felt no better on the medication and for a period stopped taking it as I thought what was the point. I am, and have been severely tired for the last few years, not being able to last the day without a nap and I am
I was diagnosed in Jan 2009 with a low thyroid and put on levothyroxine. To date I have felt no better on the medication and for a period stopped taking it as I thought what was the point. I am, and have been severely tired for the last few years, not being able to last the day without a nap and I am
magreene
in
Thyroid UK
11 years ago
IS ANYONE TAKING MORE THAN 8 L-DOPA TABLES WITH A DBS ? yours EXPORT .
export
in
Cure Parkinson's
11 years ago
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