Does anyone know if deep brain stimulation could help for psp?

[Susan789]

There appears to be positive results for Parkinson's tremors, but wondered if it has been tried for psp?

[jillannf6]

I REALLLY DO NOT KNOW THE ANSWER

I THAS NEVER BEEN SUSGGESTED AS FAR A SI KNOW

LOL jiLL

[daughter_Julie]

It was mentioned on the old Psp uk forum, but this as very unhelpfully been deleted so no one can benefit from searching years of knowledge. As far as I can remember, it didn't help... ??

[Hidden]

There is no benefit in deep brain stimulation (or other surgical procedures) for PSP. The very nature of this condition would indicate that deep brain stimulation would be of little or no value. PSP is a condition of neuron (and other brain cell) loss in many parts of the brain leading to multiple and varied symptoms. There has been some reasonable successes with gait and posture and tremor improvement with Parkinsons patients (and other movement disorders). Unfortunately, PSP has many different neurotransmitter problems rather than the major dopamine problem as seen in Parkinsons.

[JudyJ]

My understanding about deep brain stimulation & PSP is the same as Strelley's. But, I'm seeing my Neuro on Wed. & will run this past him & let you know what he has to say.

Judy

[lepman50]

I personally know of one gentalman who had this done and was so glad he had this done.He said it made a huge differance with his tremors and walking issues not shuffeling as bad. He is a member of our Parkinsons support group and everyone thats in the group as well as his wife has said that they see that it has made a huge differance for him.....I personally wouldn't do it but it a choice thing and have also read the studies about it and how it is done Just my opion...no way would I let someone do that to me...

[Hidden in reply to lepman50]

Did he have Parkinson's or PSP (or other disorder)? It can certainly help with a few selective Parkinsons (does not work on all Parkinson's patients).....but it has a poor outcome for PSP (Richardson PSP) patients.

[jimandsharynp]

It is my understanding that there is no treatment for PSP and there are no "miricle" drugs for PSP. You can treat the symptoms of PSP but they won't change the ultimate result. Unfortunately for us all there isn't much help. You must devote your attention to making the remaining days the best you can. Tell the PSP person you love them daily. Do and Go as much as you can for as long as you can. Get out and be seen and participate in events as much as possible. My wife who has PSP just attended a baby shower. Although her voice is very low now and a bit garbled and she sits in a wheelchair, she had a great time. I left her at the shower and other friends there took care of her making sure she was included in the games and had food when it was served. So, concentrate on the important things in life and stay active. Oh, and don't get hung up on "what stage of PSP" are we in. All the stages are not good so what does it matter the stage. Enjoy life instead.

Jimbo

[lepman50]

The gentalman I was Talking about has PSP......Just to let ya know....Sorry I forgot to say that.....

[pankaj911]

There is a very low success rate I have heard. It's almost negligible so doctors usually do not recommend it for PSP patients. However, I am not aware of any latest advancements in this technique.