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Experiences with
D-bifunctional protein (DBP) deficiency
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DBS SURGERY
I had my first part of DBS on May 14 and the second part on May 21st Yesterday I went to have it turned on. I have a lot of faith that this is going to work well for me. I had the DBS done at Monroe Regional Hospital in Ocala. The neurosurgeon was fantastic and I am also blessed to have a wonderful
I had my first part of DBS on May 14 and the second part on May 21st Yesterday I went to have it turned on. I have a lot of faith that this is going to work well for me. I had the DBS done at Monroe Regional Hospital in Ocala. The neurosurgeon was fantastic and I am also blessed to have a wonderful
Brooke
in
Cure Parkinson's
11 years ago
What the heck do these iron blood test results mean?
Hi, everyone. I have got the results of the full iron screen and don't have a clue - can anyone help, please? They are:- Serum ferritin – (LP59) – normal, no action……….....111ug/L……......10 – 290 ug/L Ca 125 – (LP59) - normal, no action……..…....16iu/mL…….......0 – 35.00 iu/mL Iron profile
Hi, everyone. I have got the results of the full iron screen and don't have a clue - can anyone help, please? They are:- Serum ferritin – (LP59) – normal, no action……….....111ug/L……......10 – 290 ug/L Ca 125 – (LP59) - normal, no action……..…....16iu/mL…….......0 – 35.00 iu/mL Iron profile
Schenks
in
Thyroid UK
11 years ago
DBS and waiting lists
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
Aussie
in
Cure Parkinson's
11 years ago
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Do Not take Iron meds with Levo.!.
for those who are not aware, do not take ferrous fumarate for at least 2 hours after taking levothyroxine as it can decrease the effects, and the amount of levo your body intakes! I was prescribed ferrous fumarate, and started taking it along with all my other meds on the morning. and only found this
for those who are not aware, do not take ferrous fumarate for at least 2 hours after taking levothyroxine as it can decrease the effects, and the amount of levo your body intakes! I was prescribed ferrous fumarate, and started taking it along with all my other meds on the morning. and only found this
J_angel
in
Thyroid UK
11 years ago
DBS on BBC
http://www.bbc.co.uk/news/health-22667597
http://www.bbc.co.uk/news/health-22667597
rons
in
Cure Parkinson's
11 years ago
Low ferritin
Hi, I,ve been treated twice for low ferritin, the first blood test it was 9 and well under the lower range, now it is 14, still under despite being treated with prescribed iron. I am on a massive dose of ezomeprazole for the reflux with my scleroderma, and have been for years. (80mgs daily plus ranitidine
Hi, I,ve been treated twice for low ferritin, the first blood test it was 9 and well under the lower range, now it is 14, still under despite being treated with prescribed iron. I am on a massive dose of ezomeprazole for the reflux with my scleroderma, and have been for years. (80mgs daily plus ranitidine
Hidden
in
Thyroid UK
11 years ago
SHARING GOOD NEWS VIII - DIET AND NON CELIAC GLUTEN SENSITIVITY
The recent article below is about persons who exhibit symptoms, but have tested negative for celiac disease, including having biopsies. On the column to the left, click under External Links to read the medical paper on the “non-celiac gluten sensitivity”: http://www.cbc.ca/news/health/story/2013
The recent article below is about persons who exhibit symptoms, but have tested negative for celiac disease, including having biopsies. On the column to the left, click under External Links to read the medical paper on the “non-celiac gluten sensitivity”: http://www.cbc.ca/news/health/story/2013
Hidden
in
Pernicious Anaemia Society
11 years ago
DBS for gait freezing
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
camper
in
Cure Parkinson's
11 years ago
New DBS without surgery!
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
rons
in
Cure Parkinson's
11 years ago
Is it wise to cycle after DBS?
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
Norton1
in
Cure Parkinson's
11 years ago
Constipation Considerations
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
MichaelOM
in
Cure Parkinson's
11 years ago
i need to hear from people who have had dbs i am considering it i am scared but need relief from my symptoms my sister had it .
salon
in
Cure Parkinson's
11 years ago
Vitamin B12
Has anyone had vitamin B12 injections or other B12 supplements for fatigue?If so did you have hydroxocobalamin ,methylcobalamin or cyanocobalamin and was there any benefit i.e. reduction in your fatigue?
Has anyone had vitamin B12 injections or other B12 supplements for fatigue?If so did you have hydroxocobalamin ,methylcobalamin or cyanocobalamin and was there any benefit i.e. reduction in your fatigue?
StevePT
in
Hughes Syndrome APS Forum
11 years ago
Botox for feet/toe and calf dystonia
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Yogibear
in
Cure Parkinson's
11 years ago
Is it me? or does everyone with PD ride this rollercoaster daily?
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
rons
in
Cure Parkinson's
11 years ago
DBS
I would appreciate ANY info on DBS!
I would appreciate ANY info on DBS!
maidar
in
Cure Parkinson's
11 years ago
How will I cope without meds in preparation for DBS assessment?
I am beginning the road to DBS and have my memory test things?? tomorrow. I am really worried about the assessment where I need to be off medication as I literally cannot move without meds. My problem is mainly dystonia, stiffness, rigidity but the last time I came off meds it was agony and my cramps
I am beginning the road to DBS and have my memory test things?? tomorrow. I am really worried about the assessment where I need to be off medication as I literally cannot move without meds. My problem is mainly dystonia, stiffness, rigidity but the last time I came off meds it was agony and my cramps
hairnet
in
Cure Parkinson's
11 years ago
DBS
I am looking for people who have had any experience with DBS!
I am looking for people who have had any experience with DBS!
maidar
in
Cure Parkinson's
11 years ago
DBS
Does anyone have personal experience with DBS?
Does anyone have personal experience with DBS?
maidar
in
Cure Parkinson's
11 years ago
When is the right stage to have Deep Brain Stimulation?
BMichalos
in
Cure Parkinson's
11 years ago
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