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Experiences with
D-bifunctional protein (DBP) deficiency
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Wearing a hat after DBS
Any comments, experiences good or bad? What type of hat?
Any comments, experiences good or bad? What type of hat?
Gobbsofjoy
in
Cure Parkinson's
6 years ago
Anemia making me feel like death
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Tommy33
in
Pernicious Anaemia Society
7 years ago
Caution about taking B12 supplements - article. By B12 deficiency research group.
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
eddie1952
in
Thyroid UK
7 years ago
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New lab results
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
JennaShi
in
Thyroid UK
7 years ago
How long for iron to replenish ferritin levels?
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
WestonJ
in
Thyroid UK
7 years ago
Timing of tests - Iron, B12 and Folate
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
mb008
in
Thyroid UK
7 years ago
Post DBS Surgery
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
annmariebaird
in
Cure Parkinson's
6 years ago
Freezing more walking. Had dbs surgery in 2013 and am noticing more freezing when I have machine. Turning the stimualor makes waiting better
If turn or off walking especially grocery store when it is,full With stockers and other customers. !u left side is 2.90 and right side is s,2.60. Any suggestions Sid
If turn or off walking especially grocery store when it is,full With stockers and other customers. !u left side is 2.90 and right side is s,2.60. Any suggestions Sid
ccobroussard
in
Cure Parkinson's
6 years ago
New study suggests DBS should be used earlier.
DBS proved very effective in patients with average of 7.5 years since diagnosis. http://www.nejm.org/doi/full/10.1056/NEJMoa1205158?query=featured_home
DBS proved very effective in patients with average of 7.5 years since diagnosis. http://www.nejm.org/doi/full/10.1056/NEJMoa1205158?query=featured_home
jackedmonston
in
Cure Parkinson's
6 years ago
DBS Devices
Hi all..... for those of you that have had this procedure any recommendations on which device to go with? My understanding there are two that have been around for awhile Medtronic Activa and St Jude medicals infinity and a new one recently approved Boston Scientific’s Vercise. The hospital that I’m going
Hi all..... for those of you that have had this procedure any recommendations on which device to go with? My understanding there are two that have been around for awhile Medtronic Activa and St Jude medicals infinity and a new one recently approved Boston Scientific’s Vercise. The hospital that I’m going
Sleeplessparki
in
Cure Parkinson's
6 years ago
Speech Problems & DBS
Hi all This is a link to my latest vlog about speech problems in Parkinson’s Disease, and how Deep Brain Stimulation (DBS) affects speech. https://www.youtube.com/watch?v=EWrV-OvTuAQ Cheers, Ian
Hi all This is a link to my latest vlog about speech problems in Parkinson’s Disease, and how Deep Brain Stimulation (DBS) affects speech. https://www.youtube.com/watch?v=EWrV-OvTuAQ Cheers, Ian
Ianfrizell
in
Cure Parkinson's
6 years ago
Iron deficiency, how to treat?
Dec 2017 Ferritin 28 (15 - 150) Iron 7.2 (6.0 - 26.0) Transferrin saturation 13 (12 - 45) RBC 4.41 (3.8 - 5.8) WBC 7.13 (4 - 11) Haemoglobin 116 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) MCV 80.2 (83 - 98) MCHC 378 (310 - 350) I can't tolerate tranexamic acid for my heavy periods. The tablets make
Dec 2017 Ferritin 28 (15 - 150) Iron 7.2 (6.0 - 26.0) Transferrin saturation 13 (12 - 45) RBC 4.41 (3.8 - 5.8) WBC 7.13 (4 - 11) Haemoglobin 116 (115 - 150) Haematocrit 0.41 (0.37 - 0.47) MCV 80.2 (83 - 98) MCHC 378 (310 - 350) I can't tolerate tranexamic acid for my heavy periods. The tablets make
katriona_d2018
in
Thyroid UK
7 years ago
Ferritin etc
Hi I feel tired all the time, energy feeling like it's going down as time goes on, cold feet and been breathless. Any of below results indicate anything. Thank you Ferritin 26.6 (15 - 150 ng/L) MCV 80.2 (83 - 98 fL) MCHC 376 (310 - 350) Haemoglobin 145 (110 - 150) Red blood cell count 4.41 (3.80 - 5.80
Hi I feel tired all the time, energy feeling like it's going down as time goes on, cold feet and been breathless. Any of below results indicate anything. Thank you Ferritin 26.6 (15 - 150 ng/L) MCV 80.2 (83 - 98 fL) MCHC 376 (310 - 350) Haemoglobin 145 (110 - 150) Red blood cell count 4.41 (3.80 - 5.80
Mei80
in
Thyroid UK
7 years ago
DBS Surgery
It has been one month since my DBS surgery - time for an update. I am now "in charge" of my regulator. This means that my neuro showed me how to change the amount of voltage is sent to each side of my brain. This allows me to increase or decrease depending on my symptoms. I was encouraged to substitute
It has been one month since my DBS surgery - time for an update. I am now "in charge" of my regulator. This means that my neuro showed me how to change the amount of voltage is sent to each side of my brain. This allows me to increase or decrease depending on my symptoms. I was encouraged to substitute
annmariebaird
in
Cure Parkinson's
6 years ago
DBS Information
Thank you Cecily.... https://www.youtube.com/watch?v=ORb_x3GtmUQ&feature=youtu.be
Thank you Cecily.... https://www.youtube.com/watch?v=ORb_x3GtmUQ&feature=youtu.be
Hidden
in
Dystonia Society
6 years ago
Can a ask something again
Seems there is precious little to help with normocytic aneamia , I can and do eat the best I can having learnt much on here about that. As posted MCV. 92.4. Range 83-100 MCHC 328. 310-350 So they are fine but I have noticed that the range for ferritin is much
Seems there is precious little to help with normocytic aneamia , I can and do eat the best I can having learnt much on here about that. As posted MCV. 92.4. Range 83-100 MCHC 328. 310-350 So they are fine but I have noticed that the range for ferritin is much
Gcart
in
Thyroid UK
7 years ago
Anaemia
Hi there can anyone please advise if there is anything I can do . Been told I have anemia but my iron panel is ok so therefore there is no treatment . Pretty sure I have sympt9ms but it can get mixed up with thyroid probs Total white count 4.6. Range 4-11. Red blood counT 3.6 Range
Hi there can anyone please advise if there is anything I can do . Been told I have anemia but my iron panel is ok so therefore there is no treatment . Pretty sure I have sympt9ms but it can get mixed up with thyroid probs Total white count 4.6. Range 4-11. Red blood counT 3.6 Range
Gcart
in
Thyroid UK
7 years ago
Other useful forums for PD questions...
If anyone is interested, there is a huge collection of forums about specific PD issues at the National Parkinsons Foundation forums. The web site is http://forum.parkinson.org/ There are multiple forums there, including the following: Ask the Doctor Ask the Surgical Team Ask about
If anyone is interested, there is a huge collection of forums about specific PD issues at the National Parkinsons Foundation forums. The web site is http://forum.parkinson.org/ There are multiple forums there, including the following: Ask the Doctor Ask the Surgical Team Ask about
Smalltownguy
in
Cure Parkinson's
7 years ago
Blood test
Hi all, following up on my post of 2 months ago.low iron, ferritin and B 12. Have been on iron tablets and taking B12,folic acid, vitC, having a fasting blood test in the morning, what tests should my doctor be asking for. Many thanks for all your advice.
Hi all, following up on my post of 2 months ago.low iron, ferritin and B 12. Have been on iron tablets and taking B12,folic acid, vitC, having a fasting blood test in the morning, what tests should my doctor be asking for. Many thanks for all your advice.
Pearlanncollins
in
Thyroid UK
7 years ago
Help needed
Below I have attached my blood results from latest bloods I have a diagnose of under active thyroid pernicious anemia low Iron and low Vid D I am on life long medication for all of these I take 175mg thyroxine B12 Injections every 8 weeks 2 ferrous fumarate daily and 2 but D tablets daily I feel so
Below I have attached my blood results from latest bloods I have a diagnose of under active thyroid pernicious anemia low Iron and low Vid D I am on life long medication for all of these I take 175mg thyroxine B12 Injections every 8 weeks 2 ferrous fumarate daily and 2 but D tablets daily I feel so
Urbansky
in
Thyroid UK
7 years ago
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