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Experiences with
D-bifunctional protein (DBP) deficiency
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Blood Test Results - Comments on levels please
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
RLSofManyYears
in
Restless Legs Syndrome
3 years ago
Low folate - what causes it and what does it affect?
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
London3891
in
Thyroid UK
3 years ago
Anaemia problems ?
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
jimbo1605
in
LUPUS UK
3 years ago
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I haven’t posted in a while, but wanted everyone to know I had my DBS surgery .
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
Kwinholt
in
Cure Parkinson's
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Webinar: Deep Brain Stimulation
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
CPT_Helen
Partner
in
Cure Parkinson's
3 years ago
What if DBS played the same?
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
Gcf51
in
Cure Parkinson's
3 years ago
Possible explanation for lack of hepatic B12 storage
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
USmedsyssucks
in
Pernicious Anaemia Society
3 years ago
MY DOCTOR SAYS I AM DUE FOR DBS. THIS REALLY SCARED THE SH.......... OUT OF ME. PLEASE HELP! I NEED YOUR ADVICE.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
OREOLU
in
Cure Parkinson's
3 years ago
DBS - what if, stimulation was a symphony
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
Gcf51
in
Cure Parkinson's
3 years ago
Does this sound ok?
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Iron/bloods... confused!
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Curlygal
in
Pernicious Anaemia Society
3 years ago
DBS and weight gain
For those who have had DBS, did you gain weight after the surgery? I have read it is possible to gain weight as the “ reward or impulsive part” of our brain is affected.
For those who have had DBS, did you gain weight after the surgery? I have read it is possible to gain weight as the “ reward or impulsive part” of our brain is affected.
Sherry1960
in
Cure Parkinson's
3 years ago
Advice on ferritin of 18
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
Boon79
in
Thyroid UK
3 years ago
Interdependance of iron load and thyroid function
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
diogenes
in
Thyroid UK
3 years ago
Should I get an MMA test?
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
NWA6
in
Thyroid UK
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Pernicious Anaemia Society
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Thyroid UK
3 years ago
Iron Infusions - the type of iron used may matter.
Here is a rather long and confusing article. Read it if you need to be lulled to sleep. https://journals.physiology.org/doi/full/10.1152/japplphysiol.91076.2008 In it I found a ridiculously interesting paragraph as follows: "Deficits in regional brain iron and changes in uptake and efflux of brain
Here is a rather long and confusing article. Read it if you need to be lulled to sleep. https://journals.physiology.org/doi/full/10.1152/japplphysiol.91076.2008 In it I found a ridiculously interesting paragraph as follows: "Deficits in regional brain iron and changes in uptake and efflux of brain
Hidden
in
Restless Legs Syndrome
3 years ago
Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
Aumshantii
in
Pernicious Anaemia Society
3 years ago
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