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Experiences with
D-bifunctional protein (DBP) deficiency
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Blood Test Results - Unusual Symptoms
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
Hi there I'm a 56 year old woman and have been treated for an under active thyroid for a decade or so. Currently taking 150 mcg Levothyroxine sodium per day. Around 8 weeks ago I started to experience some unusual symptoms; intense anxiety, fatigue, calf muscle twitches (and random twitching elsewhere
DonEstello
in
Thyroid UK
2 years ago
IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
Anemia
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
dealing with iron deficiency anemia of chronic diseases and suspect a B12 deficiency too but I almost think my immune system has attacked something else, to the point that I have a whole nother level of Anemia’s … It’s been 6 weeks since I had my last iron infusion and I’m starting to feel really weak
SouthernBell50
in
Pernicious Anaemia Society
2 years ago
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Iron Info Heme vs Non Heme
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
So, Heme iron is from animal sources and is apparently better absorbed than non Heme iron (from plant sources). The two different iron types are absorbed by different pathways. But, there are real risks in supplementing with Heme iron - Coronary Artery disease and Cancer incidence increases. I would
DicCarlson
in
Restless Legs Syndrome
2 years ago
Health update
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
PREPARING FOR DBS SURGERY. VERY WORRIED ABOUT THE INEVITABLE SIDE EFFECTS.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
OREOLU
in
Cure Parkinson's
1 year ago
I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
2 years ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
B12 ferritin connection??
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
gypsy_child
in
Pernicious Anaemia Society
2 years ago
Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
2 years ago
Update on Daughter's Ferritin levels
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
caroash
in
Thyroid UK
2 years ago
Anemia
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Nanny71
in
PMRGCAuk
2 years ago
Adrenals or Not Adrenals
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Kendrew
in
PMRGCAuk
2 years ago
PD-related acronyms
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
Bennorca
in
Cure Parkinson's
2 years ago
Iron panel results
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
Fizzyinch
in
Thyroid UK
2 years ago
Is it all about the range?
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Souzy
in
Thyroid UK
2 years ago
bloods vit count they claim normal ?
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
Hidden
in
Thyroid UK
2 years ago
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