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Experiences with
D-bifunctional protein (DBP) deficiency
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Pregnancy loss, results confusing?
My previous postshttps://healthunlocked.com/thyroiduk/posts/149381508/suboptimal-results-pregnancy-loss?responses=149386968 https://healthunlocked.com/thyroiduk/posts/149405041/recurrent-loss-and-thyroid-more-results?responses=149405541 Bit of a long story - tried to test my blood with monitor my health
My previous postshttps://healthunlocked.com/thyroiduk/posts/149381508/suboptimal-results-pregnancy-loss?responses=149386968 https://healthunlocked.com/thyroiduk/posts/149405041/recurrent-loss-and-thyroid-more-results?responses=149405541 Bit of a long story - tried to test my blood with monitor my health
staceedin
in
Thyroid UK
1 year ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
11 months ago
DBS effectiveness.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was DBS effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
11 months ago
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latest results please can you advise
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Pooty
in
Thyroid UK
1 year ago
Amgevita - low energy
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
cuppa69
in
NRAS
1 year ago
Tinnitus
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that
jeeves19
in
Cure Parkinson's
11 months ago
Vitamin levels
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
sylus_911
in
Thyroid UK
1 year ago
Iron panel results - is this normal or something to be concerned about?
I'm confused by the results. I haven't been taking any iron supplementation for a while. I tested because I've been ill (chronic urticaria) and haven't been able to tolerate iron supplements. Fasted over 12 hours beforehand, didn't take anything with biotin for over 10 days. Doctor wanted to do full
I'm confused by the results. I haven't been taking any iron supplementation for a while. I tested because I've been ill (chronic urticaria) and haven't been able to tolerate iron supplements. Fasted over 12 hours beforehand, didn't take anything with biotin for over 10 days. Doctor wanted to do full
Alanna012
in
Thyroid UK
1 year ago
How many days to stop iron supplement before iron blood test?
hello, Im currently taking iron supplements (50mg - Thorn) and I will need to get my blood iron tests done soon. Does anyone know how long is it best to stop taking supplements before the test? Thank you!
hello, Im currently taking iron supplements (50mg - Thorn) and I will need to get my blood iron tests done soon. Does anyone know how long is it best to stop taking supplements before the test? Thank you!
Dolansan
in
Thyroid UK
1 year ago
What is the difference between these two tests?
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Tigerlilly81
in
Pernicious Anaemia Society
1 year ago
DBS lead placement options.
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
jeeves19
in
Cure Parkinson's
1 year ago
DBS levadopa challenge. Glad its over, but it does raise a question.
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
Just left hospital after my levadopa challenge assessment for DBS.Wow, i wasn't prepared for how I'd be after having no meds since 7pm last night. I can honestly say I appreciate my meds so much more now. My normal day starts at 4:30am when i take my Stalevo 125mg. I'm very slow, shakey, and have some
gingerj
in
Cure Parkinson's
1 year ago
Restless Legs Syndrome
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
williamghenry
in
Restless Legs Syndrome
1 year ago
success with Threearrows - for anyone struggling with LOW IRON/FERRITIN
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
Beau55
in
Thyroid UK
1 year ago
Which DBS system?
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
So it's not going to be too long now. August/September? At my last appointment they asked me which DBS system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over
jeeves19
in
Cure Parkinson's
1 year ago
Working full-time with a DBS
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
DBS Deep Brain Stimulation. 1) Are there any warriors who have received DBS and are still employed full-time? 2) Are there any IT/computers warriors who have received DBS and are still working? Just wondering if that's humanly possible. Thank you for your time.
surdug1
in
Cure Parkinson's
1 year ago
OFF time but so much more!
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
I learned so much about our disease through this video. It was about OFF time but through that lens I learned out about the medications prescribed to us. There is a clear description of the different DBS devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
PalmSprings
in
Cure Parkinson's
1 year ago
anaemia
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
Gardendaffodil
in
PMRGCAuk
1 year ago
Test results advice high b12 and iron
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
clairel996
in
Thyroid UK
1 year ago
Vitamin test
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Madge72
in
Thyroid UK
1 year ago
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