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Update on my daughter's GP call today. So angry.
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
Otto11
in
Thyroid UK
5 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
5 months ago
Serum folate 7,(3.1-20.1) completed loading dose, being retested in 8 wks, is it best to take folic acid now, or wait for re-test please?
Hi My folate is lower in range and I was discussing red cell folate test (thank you FlipperTD!)as a way of checking folate privately. I am now wondering what’s best to do if anyone has any advice please. Is it important I wait to see how b12 settles in and see what happens with folate result in 8 wks
Hi My folate is lower in range and I was discussing red cell folate test (thank you FlipperTD!)as a way of checking folate privately. I am now wondering what’s best to do if anyone has any advice please. Is it important I wait to see how b12 settles in and see what happens with folate result in 8 wks
Jo5454
in
Pernicious Anaemia Society
5 months ago
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Seeing Endo This Afternoon...
Morning All, I'm due to see my new endo this afternoon so am just writing up some notes for them and wondering if you think there is anything else I should mention in regards to my thyroid. My symptoms are mainly fatigue and weakness, slow heartrate and cold/tingling hands and feet. My bloods
Morning All, I'm due to see my new endo this afternoon so am just writing up some notes for them and wondering if you think there is anything else I should mention in regards to my thyroid. My symptoms are mainly fatigue and weakness, slow heartrate and cold/tingling hands and feet. My bloods
Mrs_Walsh
in
Thyroid UK
5 months ago
B12 - a hidden inflammation trigger
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
Jillymo
in
Pernicious Anaemia Society
5 months ago
Would an iodine supplement help?
I still don't feel well (very tired and the most dreadful brain fog which has stopped me driving) and wondered how I would know if an iodine supplement might help? Any thoughts would be most appreciated. Latest Medichecks results - stopped taking b12 liquid 2 weeks before test. Taking Spatone, VitaminD
I still don't feel well (very tired and the most dreadful brain fog which has stopped me driving) and wondered how I would know if an iodine supplement might help? Any thoughts would be most appreciated. Latest Medichecks results - stopped taking b12 liquid 2 weeks before test. Taking Spatone, VitaminD
Tanitha
in
Thyroid UK
5 months ago
Thoughts on blood results and next steps please
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Wispymisty
in
LUPUS UK
5 months ago
Prescribed levothyroxine at last!
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
Sleepysparrow
in
Thyroid UK
5 months ago
Pattern of Improved Supplementation and Results of 5 day Trial
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Charlatan or science?
hi folks, I am awaiting diagnosis of Grave’s disease and during the last 3 months since my blood tests via the NHS and the waiting game to see an endocrinologist, I have been researching hyperthyroidism. The internet is FULL of people claiming there is a link between micro biome and leaky gut and Graves
hi folks, I am awaiting diagnosis of Grave’s disease and during the last 3 months since my blood tests via the NHS and the waiting game to see an endocrinologist, I have been researching hyperthyroidism. The internet is FULL of people claiming there is a link between micro biome and leaky gut and Graves
Hungryallthetimes
in
Thyroid UK
5 months ago
Update, New Results. Still Need Your Help for exhausted Daughter with normal TSH but low T4 Free and low T3 Free
My 30-year-old daughter has been struggling for an extended period
with excessive sweating, frequent tonsillitis and bronchitis difficult to treat, waking up puffy, water retention, anxiety attacks, low stress tolerance, light sensitivity, brain fog, exhaustion, and weight gain, despite a strict
My 30-year-old daughter has been struggling for an extended period
with excessive sweating, frequent tonsillitis and bronchitis difficult to treat, waking up puffy, water retention, anxiety attacks, low stress tolerance, light sensitivity, brain fog, exhaustion, and weight gain, despite a strict
1eskimo
in
Thyroid UK
5 months ago
B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
6 months ago
TSH/T3/T4/Vit B & D results
My previous Endo (private) retired last October and the new one (private) that I was suggested to see immediately reduced my Lio from 100 to 75 & the T3 from 20 to 10. Originally I had wanted to see an NHS Endo 3 years ago but none were available, hence the private route. My readings are T4 18.8 -
My previous Endo (private) retired last October and the new one (private) that I was suggested to see immediately reduced my Lio from 100 to 75 & the T3 from 20 to 10. Originally I had wanted to see an NHS Endo 3 years ago but none were available, hence the private route. My readings are T4 18.8 -
LONGEATON
in
Thyroid UK
6 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
6 months ago
Frequency of Hydroxocobalamin injections in UK
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
MissPoshOxford
in
Pernicious Anaemia Society
6 months ago
b12 deficiency and MRI scanner...
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Suffering_sunny
in
Pernicious Anaemia Society
6 months ago
Your thoughts on this will be appreciated, please
This post is being created on behalf of someone who is unable to post for herself at this time.
I may not be able to give answers to specific questions quickly, but your opinions will be appreciated and passed on.😊 ----------- 41 year old female, has been ill for a long time with long covid
This post is being created on behalf of someone who is unable to post for herself at this time.
I may not be able to give answers to specific questions quickly, but your opinions will be appreciated and passed on.😊 ----------- 41 year old female, has been ill for a long time with long covid
RedApple
Administrator
in
Thyroid UK
6 months ago
Results, but no answers really
Hello everyone Thank you in advance for your help. These are my results just in this morning. What I'm surprised by is how good they are, i have felt really exhausted since Covid in December, and when i stopped my B complex high b12 (Viridian) for the test, (I ended up being off it for nearly a
Hello everyone Thank you in advance for your help. These are my results just in this morning. What I'm surprised by is how good they are, i have felt really exhausted since Covid in December, and when i stopped my B complex high b12 (Viridian) for the test, (I ended up being off it for nearly a
Indigourchin
in
Thyroid UK
6 months ago
Diagnosis
Hi, I'm perimenopausal and my hormone dips have thrown up digestion, hyperosmia, brain fog issues and because of lack of appetite I have become malnourished and very low on ferritin despite trying the super heme from 3 Arrows. I've had some private bloods done. Notable results are:- T3 2.97 T4
Hi, I'm perimenopausal and my hormone dips have thrown up digestion, hyperosmia, brain fog issues and because of lack of appetite I have become malnourished and very low on ferritin despite trying the super heme from 3 Arrows. I've had some private bloods done. Notable results are:- T3 2.97 T4
Probiotic
in
Thyroid UK
6 months ago
bad batch?
I bought three boxes of b12 (not Pascoe, the brand that’s impossible to get now). The first two boxes, once my body had got used to it, I always had the same reaction - tired but a feeling of well being and warmth, particularly in my back. when I started the third box I felt freezing cold and shaky,
I bought three boxes of b12 (not Pascoe, the brand that’s impossible to get now). The first two boxes, once my body had got used to it, I always had the same reaction - tired but a feeling of well being and warmth, particularly in my back. when I started the third box I felt freezing cold and shaky,
Pepperpots302
in
Pernicious Anaemia Society
6 months ago
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