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My Stuffy Head
Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. I observed that currently I
Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. I observed that currently I
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
elevated b12
HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 blood levels from GCA ? Thanks
HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 blood levels from GCA ? Thanks
Lovemocha
in
PMRGCAuk
6 months ago
Vitamins for cognition
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Loveblue123
in
Headway
6 months ago
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Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
Technoid
in
Pernicious Anaemia Society
6 months ago
B12 frequency
I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any suggestions would be gratefully received.
I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any suggestions would be gratefully received.
Orchard33
in
Pernicious Anaemia Society
6 months ago
Blood test results
Hi, Please could someone comment on my blood test results. I am not seeing any improvement and have been more depressed and tearful since starting NDT. I am due to speak to a practice nurse at the Thyroid Clinic tomorrow. Apologies there is a lot to take in! Thank you in advance. Bloods results -
Hi, Please could someone comment on my blood test results. I am not seeing any improvement and have been more depressed and tearful since starting NDT. I am due to speak to a practice nurse at the Thyroid Clinic tomorrow. Apologies there is a lot to take in! Thank you in advance. Bloods results -
Blu-cat11
in
Thyroid UK
6 months ago
Baffling results on T4&T3!
Morning all, I’m awake early feeling like total rubbish so thought I’d jump on and share in the hope that someone can shed light on my baffling blood test results which came through on Friday! I’ve been on 75mcg Levothyroxine and 15mcg T3 for the last 6 weeks (having slowly increased T3 from nothing
Morning all, I’m awake early feeling like total rubbish so thought I’d jump on and share in the hope that someone can shed light on my baffling blood test results which came through on Friday! I’ve been on 75mcg Levothyroxine and 15mcg T3 for the last 6 weeks (having slowly increased T3 from nothing
underact15
in
Thyroid UK
6 months ago
early pregnancy -Hydroxy33
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
AstiSP
in
Pernicious Anaemia Society
6 months ago
response regarding my endocrinologist complaint
Hi, I am sharing the letter I received from the hospital ( it’s taken them well over 6 months). I was so ‘cheesed off’ with the reply that it’s taken me 3 days to read it again and then I spilt coffee on it 🥴. I don’t know why I thought I’d get anything better, but the response is actually farcicle
Hi, I am sharing the letter I received from the hospital ( it’s taken them well over 6 months). I was so ‘cheesed off’ with the reply that it’s taken me 3 days to read it again and then I spilt coffee on it 🥴. I don’t know why I thought I’d get anything better, but the response is actually farcicle
Rowing2
in
Thyroid UK
6 months ago
Active B12 tests
Does anyone know why no active B12 blood tests (such as Holo) are available in the USA?
Does anyone know why no active B12 blood tests (such as Holo) are available in the USA?
Greeneyecolor
in
Pernicious Anaemia Society
6 months ago
Confused about folate
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
Having been doing quite well I have taken quite a sudden turn of dizziness and cognitive problems over the last 3 days. I am receiving 3 times a week B12 injections along with 5mg folic acid. I have also been taking Thorne Basic B complex. Levothyroxine 100/112.5 alternating. What are the issues and
GW1000
in
Thyroid UK
6 months ago
Got GP appointment but what to say to get him to test anything more than TSH
Hi 3 months ago I wrote a post about my daughters results since 2018 & her vitamin levels which are dire. It has taken her this long to manage to get a telephone appointment with a GP next Wednesday. My question is what does she say to convince them to test more than just her TSH. I went through
Hi 3 months ago I wrote a post about my daughters results since 2018 & her vitamin levels which are dire. It has taken her this long to manage to get a telephone appointment with a GP next Wednesday. My question is what does she say to convince them to test more than just her TSH. I went through
Otto11
in
Thyroid UK
6 months ago
Panpharma B12 depot is now out of stock already unfortunately.
I was worried that this would happen . Just fill in yout email address in the box on the right underneath the announcement in red which says “. DIESER ARTIKEL IST ZUR ZEIT NICHT LIEFERBAR” and you will be informed when they are next in stock l
I was worried that this would happen . Just fill in yout email address in the box on the right underneath the announcement in red which says “. DIESER ARTIKEL IST ZUR ZEIT NICHT LIEFERBAR” and you will be informed when they are next in stock l
wedgewood
in
Pernicious Anaemia Society
6 months ago
Help with blood test results
I was diagnosed with Hashimotos over 40 yrs ago following removal of thyroid gland due to large goitre. Had some blood tests requested by my private Endo and just seen the result of one in particular in my GP app (even tho surgery said they couldn’t carry out the blood tests for private patients!). They
I was diagnosed with Hashimotos over 40 yrs ago following removal of thyroid gland due to large goitre. Had some blood tests requested by my private Endo and just seen the result of one in particular in my GP app (even tho surgery said they couldn’t carry out the blood tests for private patients!). They
Lottyplum
in
Thyroid UK
6 months ago
Unbelievable
I emailed my concerns about B12 prescribing to my local NHS board ;Integrated care board ICB) in October 2023. My concern mainly describing my B12 prescription being stopped/ challenged and on what grounds . Also asking on what evidence / papers were the 2-3 monthly regimes set from. Patients individual
I emailed my concerns about B12 prescribing to my local NHS board ;Integrated care board ICB) in October 2023. My concern mainly describing my B12 prescription being stopped/ challenged and on what grounds . Also asking on what evidence / papers were the 2-3 monthly regimes set from. Patients individual
Nackapan
in
Pernicious Anaemia Society
6 months ago
Achy feet
For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like when you've spent a full day walking even when I've not walked very much at all, done 4000 steps today and I feel like I've been on my feet for hours. Not changed shoes or anything so wondering if it is to do with b12 or
For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like when you've spent a full day walking even when I've not walked very much at all, done 4000 steps today and I feel like I've been on my feet for hours. Not changed shoes or anything so wondering if it is to do with b12 or
Clare184
in
Pernicious Anaemia Society
6 months ago
So difficult to pin it down
I have just completed seven weeks on Sertraline (Anti Depression meds) and after a rocky couple of weeks I gradually felt better. I’d would now say that mentally I’m back to my old self which is great. I decided that it was a good time to try to improve my acid reflux using lanzoprazole which I had
I have just completed seven weeks on Sertraline (Anti Depression meds) and after a rocky couple of weeks I gradually felt better. I’d would now say that mentally I’m back to my old self which is great. I decided that it was a good time to try to improve my acid reflux using lanzoprazole which I had
RoniB
in
IBS Network
6 months ago
Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
6 months ago
B complex without biotin?
Hi - does a B complex without biotin exist? I am currently on 3 times a week B12 injections - long term - so I want to keep taking a B complex to keep the other Bs in balance, but I would also like to do a thyroid test soon. Any suggestions? Thanks
Hi - does a B complex without biotin exist? I am currently on 3 times a week B12 injections - long term - so I want to keep taking a B complex to keep the other Bs in balance, but I would also like to do a thyroid test soon. Any suggestions? Thanks
GW1000
in
Thyroid UK
6 months ago
picantaChicken
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
PicantaChicken
in
Thyroid UK
6 months ago
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