Update on my daughter's GP call today. So angry.

[Otto11]

I'm so angry but not surprised. I didn't expect much tbh.

My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years.

Well the GP called today & refused to do T3 & T4 no surprise there. Has refused to recheck vitamins other than D but will do a FBC Calcium & diabetes & Coeliac test for some reason. Why??

I could spit feathers !!!!!

Guess it's private then What is wrong with these GP's.

[SlowDragon Administrator]

Sadly extremely common, thousands of U.K. thyroid patients forced to test privately

Test thyroid and vitamin levels at least annually

More frequently if working on improving low levels

Test just thyroid- TSH, Ft4 and Ft3 approx 6-10 weeks after any dose or brand change in levothyroxine

[Otto11 in reply to SlowDragon]

Thanks. She is going to have to be more proactive. Thanks for all your help.

[Judithdalston]

Makes you want to say ‘because he can’ as in he can find a series of 3 unrelated tests to do , but not the two that would be most relevant! Mind you to be fair sometimes the Lab is the one to reject requests for full thyroid bloods…he has ticked the boxes for tests he will probably get done without lab interference…. some might be of use to rule out ‘stuff’ .

[Otto11 in reply to Judithdalston]

Thanks. Yes I did think that at least the dr was doing something & my daughter said she seemed nice. I'm expecting her Calcium to be low as she hates most calcium rich foods. Oh well maybe its a step in the right direction.

[FallingInReverse]

Hi Otto!

Can you tell me how old your daughter was when she started Levo and what the tests were that precipitated it?

I’m managing my 17 year old right now - ambiguous thyroid results that I’m keeping an eye on while improving her vitamins.

I feel like if I had to guess, she’ll be on Levo at some point, but could be confirmation bias since of course I’m in the midst of optimizing my own Hashis.

So always looking for other people experiences when starting treatment as a teenager.

[Otto11 in reply to FallingInReverse]

Hi I'm really sorry but I cant answer your question as I can't remember. Unfortunately I have Temporal Lobe Epilepsy which has pretty much wiped my memory of events throughout her childhood. She did become chubby though especially her face & cheeks were swollen which was probably the first thing we really noticed. She would be about the same age as your daughter at that point. It had almost definitely been going on for a long time to get to that point. she is now a size 6/8 & petite. I do hope you get some answers soon & so sorry I can't help.

[FallingInReverse in reply to Otto11]

Thanks Otto!!!!

[Obsdian]

If your daughter is now in her 40s, perimenopause and fluctuating estrogen may be affecting her levels.

[Otto11 in reply to Obsdian]

Gosh yes I never thought of that. TBH I forget she is in her 40's as she looks very young. Thank you that's definitely worth looking into.