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Help with b12 deficiency
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
Vegan10
in
Changing Faces
4 months ago
Iron Levels
79yo male with classic tale of RLS. Started at 17yo. Progressing over the years. Augmentation last Christmas on Pramipexole and a hell of a time transitioning to gabapentin. Unfortunately though I could not stop the attacks even on high doses and taking it as advised by Sue Johnson. Helpful doc allowed
79yo male with classic tale of RLS. Started at 17yo. Progressing over the years. Augmentation last Christmas on Pramipexole and a hell of a time transitioning to gabapentin. Unfortunately though I could not stop the attacks even on high doses and taking it as advised by Sue Johnson. Helpful doc allowed
JOBAN1uk
in
Restless Legs Syndrome
4 months ago
Hello and happy new year everyone!! Aching legs when I walk more then 50 yards (in a nutshell)!!
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
sheenah
in
Thyroid UK
4 months ago
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CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
4 months ago
Tablets v Injections
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Redmusic
in
Pernicious Anaemia Society
4 months ago
Help with my partners vitamin result’s please 🙏
Afternoon everyone , Hope your all well 😊 My partner has had some sort of virus over Christmas which prompted blood investigation . We don’t think the thyroid has been tested but they have tested the attached blood and wanted some feedback from you lovely helpful people as to your thoughts on his
Afternoon everyone , Hope your all well 😊 My partner has had some sort of virus over Christmas which prompted blood investigation . We don’t think the thyroid has been tested but they have tested the attached blood and wanted some feedback from you lovely helpful people as to your thoughts on his
Kisca
in
Thyroid UK
4 months ago
Advice needed...
After being on 125mcg Levo for 25 years it was reduced to 100mch last year as my GP said my blood results were indicating over-medicating. I asked for an Endo referral and he carried out a blood test which showed the following... TSH 7.01 T4 13 T3 3.6 He then advised my GP to increase Levo to 125mcg
After being on 125mcg Levo for 25 years it was reduced to 100mch last year as my GP said my blood results were indicating over-medicating. I asked for an Endo referral and he carried out a blood test which showed the following... TSH 7.01 T4 13 T3 3.6 He then advised my GP to increase Levo to 125mcg
Newmorningmercies
in
Thyroid UK
4 months ago
Having Private Blood Tests Done. Asking for Peer Review.
I am going to have some private blood tests done. Not worth discussing what is needed with a physician who has no idea what is needed. Note: I did figure out that when a physician says they are going to order some blood work that what they are really doing is checking off boxes that show up on the
I am going to have some private blood tests done. Not worth discussing what is needed with a physician who has no idea what is needed. Note: I did figure out that when a physician says they are going to order some blood work that what they are really doing is checking off boxes that show up on the
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Blood results in. Can anyone help please?
serum iron level 30.3 umol (10-30) HIGH serum transferrin 2.6 (2.0 - 3.6) transferrin saturation index 47.5 (<55) serum sodium 140 mmol (133 - 146) serum potassium 5.1 mmol (3.5 - 5.3) serum chloride 103 mmol (95 - 108) serum urea level 4.3 mmol (2.5 - 7.8) serum creatinine 72 umol (45 - 84
serum iron level 30.3 umol (10-30) HIGH serum transferrin 2.6 (2.0 - 3.6) transferrin saturation index 47.5 (<55) serum sodium 140 mmol (133 - 146) serum potassium 5.1 mmol (3.5 - 5.3) serum chloride 103 mmol (95 - 108) serum urea level 4.3 mmol (2.5 - 7.8) serum creatinine 72 umol (45 - 84
dalzell
in
Thyroid UK
4 months ago
can any help??
Hi all, I’ve not been on here in a very long time as I’ve had a lot of family issues. But I’ve had a lot of health problems of late like tiredness, sleep problems etc. so spoke to a new doctor and she suggested I do some bloods. I was wondering if there was someone who could shine a light on them
Hi all, I’ve not been on here in a very long time as I’ve had a lot of family issues. But I’ve had a lot of health problems of late like tiredness, sleep problems etc. so spoke to a new doctor and she suggested I do some bloods. I was wondering if there was someone who could shine a light on them
HappyBadger
in
Thyroid UK
4 months ago
Blood tests results. Can anyone help me understand please?
serum iron level 30.3 umol serum transferrin 2.6 transferrin saturdation index 47.5 serum sodium 140 mmol serum potassium 5.1 mmol serum chloride 103 mmol serum urea level 4.3 mmol serum creatinine 72 umol HbA1c 32.0 mmol serum albumin 44 g/l serum alkaline phosphatase 55 u/l serum inorganic
serum iron level 30.3 umol serum transferrin 2.6 transferrin saturdation index 47.5 serum sodium 140 mmol serum potassium 5.1 mmol serum chloride 103 mmol serum urea level 4.3 mmol serum creatinine 72 umol HbA1c 32.0 mmol serum albumin 44 g/l serum alkaline phosphatase 55 u/l serum inorganic
dalzell
in
Thyroid UK
4 months ago
Hello!
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hidden
in
Pernicious Anaemia Society
4 months ago
Good news - After Endo
Well, what can I say? I went to my Endo appointment on Thursday armed with research papers, questions and my stand on having my thyroid taken out or ablated. Quite surprisingly, I saw a different consultant to the previous one I had seen last year, who sent me a letter stating that if I came back,
Well, what can I say? I went to my Endo appointment on Thursday armed with research papers, questions and my stand on having my thyroid taken out or ablated. Quite surprisingly, I saw a different consultant to the previous one I had seen last year, who sent me a letter stating that if I came back,
LadyAbash
in
Thyroid UK
4 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
4 months ago
feelings of palpitations in torso and faint ..
I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.. why do I get periods when I feel well and then get a dip even after a B12 jab ? I am wondering if I should be taking folate (folic acid) ? I also
I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.. why do I get periods when I feel well and then get a dip even after a B12 jab ? I am wondering if I should be taking folate (folic acid) ? I also
Altinkum50
in
Pernicious Anaemia Society
4 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
4 months ago
vitamin results help and advice please
hi there, I posted in December to say my GP had reluctantly agreed an increase in my Levothyroxine from 50mcg to 75mcg following a blood test which showed: TSH 2.91 (0.35-5.5) T4 13.9 (10.5-21.0) He also requested some more blood tests and I asked for vitamin D,B12, Ferritin and Folate as per guidance
hi there, I posted in December to say my GP had reluctantly agreed an increase in my Levothyroxine from 50mcg to 75mcg following a blood test which showed: TSH 2.91 (0.35-5.5) T4 13.9 (10.5-21.0) He also requested some more blood tests and I asked for vitamin D,B12, Ferritin and Folate as per guidance
Wilma76
in
Thyroid UK
4 months ago
Second blood test - subclinical? Please help!
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
littlebluegnome
in
Thyroid UK
4 months ago
NICE Guidelines Delay?
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
RoseFlowerDew
in
Pernicious Anaemia Society
4 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
4 months ago
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