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Hebden Bridge Help Needed Please
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Wwwdot
in
Pernicious Anaemia Society
5 months ago
Mum's journey with adrenal insuffiency and hypothyroidism
Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history of adrenal insufficiency and hypothyroidism. She takes two 5mg cortate acetate per day. Previously, she had anaemia and low neutrophils as
Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history of adrenal insufficiency and hypothyroidism. She takes two 5mg cortate acetate per day. Previously, she had anaemia and low neutrophils as
quicklyinsignificant
in
PMRGCAuk
5 months ago
Update with Vit B12 & Folate results
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Sunnyyellowlady
in
Thyroid UK
5 months ago
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Does anyone know anything about low SigA levels and links with b12 deficiency please?
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Jo5454
in
Pernicious Anaemia Society
5 months ago
Thoughts on my blood test results please
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
TiredMummy
in
Thyroid UK
5 months ago
Back to life thanks to this forum! GP Next steps though - further levo increase?
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
CherryPie2
in
Thyroid UK
5 months ago
Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
5 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
5 months ago
Mission Impossible
My Medical No is 112624120. (sequence of factorials). My doctor can ring me on is 0112358132134. (Fibonacci code) I am 48 years old, 169 cm tall, weigh 54 kg, I have 6 children. My vital statistics are………..Sorry, I thought I was Angelina Jolie for a moment. In 2023, The World Health Organisation
My Medical No is 112624120. (sequence of factorials). My doctor can ring me on is 0112358132134. (Fibonacci code) I am 48 years old, 169 cm tall, weigh 54 kg, I have 6 children. My vital statistics are………..Sorry, I thought I was Angelina Jolie for a moment. In 2023, The World Health Organisation
Narwhal10
in
Pernicious Anaemia Society
2 months ago
Vertigo 3 months after starting the B12 treatment
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Trialerror
in
Pernicious Anaemia Society
5 months ago
Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
5 months ago
Help?
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
PlatypusProfit8077
in
Pernicious Anaemia Society
5 months ago
Help please
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
mollyjo
in
Thyroid UK
5 months ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
5 months ago
Hope this is a blip...
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Myoldcat
in
Pernicious Anaemia Society
5 months ago
List of medications to avoid?
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Myoldcat
in
Pernicious Anaemia Society
5 months ago
steroid reduction problems
I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit down for a couple of hours to recover. To be fair this has been the case for weeks. I don’t do any housework ( husband does it) can’t attend yoga
I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit down for a couple of hours to recover. To be fair this has been the case for weeks. I don’t do any housework ( husband does it) can’t attend yoga
Sheeplegs
in
PMRGCAuk
5 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
5 months ago
T3 (Cytomel): How would you fit it in these results? Or would you? And all the mistakes I have made on this journey
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Litatamon
in
Thyroid UK
5 months ago
Confused
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
dottyb09
in
Thyroid UK
5 months ago
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