Search
Search
About
Log in
Join
Experiences with
Cyanovit-B12
Posts
Communities
29,858 public posts
Filter results
CCUS/MDS and B12 def
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Annaunge
in
Pernicious Anaemia Society
8 months ago
B12 supplements which to take?
Hi all, Looking to start B12 supplements to boost levels but unsure which to take. There are alot of different brands out there Please could you advise me which are the most effective to take? Thank you.
Hi all, Looking to start B12 supplements to boost levels but unsure which to take. There are alot of different brands out there Please could you advise me which are the most effective to take? Thank you.
Shellian
in
Thyroid UK
8 months ago
Hypothesis VII
That the human body has an innate ability to adjust to low levels of available B12. Un-discovered to date. —---------------------------------------------------------------------- If this happened to be true it should be a consideration when self treating. The increase in symptoms that some but
That the human body has an innate ability to adjust to low levels of available B12. Un-discovered to date. —---------------------------------------------------------------------- If this happened to be true it should be a consideration when self treating. The increase in symptoms that some but
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
This resonates with me.
Sometimes when a thought comes from someone else it resonates with me. This one is my thought. Treating B12 deficency could be better expressed as treating the damage caused by having been B12 deficient. Severity of symptoms could be better expressed as the amount of damage caused by B12 deficiency
Sometimes when a thought comes from someone else it resonates with me. This one is my thought. Treating B12 deficency could be better expressed as treating the damage caused by having been B12 deficient. Severity of symptoms could be better expressed as the amount of damage caused by B12 deficiency
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Vitamin B Complex
Hi All! Please could you advise if this b complex is good? I just bought it. I’d like to ask if the folic acid is sufficient for supplementation? It says to take 2 a day. I don’t have my results on me but my folic acid was low in range. Also I’m taking 1000mcg of b12 in active form (methylconalamin
Hi All! Please could you advise if this b complex is good? I just bought it. I’d like to ask if the folic acid is sufficient for supplementation? It says to take 2 a day. I don’t have my results on me but my folic acid was low in range. Also I’m taking 1000mcg of b12 in active form (methylconalamin
Angie10116
in
Thyroid UK
8 months ago
Mid and South Essex (MSE) Intergrated care board
I wrote on October 10th 2023 ( apparently ,as a vague recollection as alot going on ) Had a reply today. My complaint about inconsistency in prescribing b12 . Lack of training with Gps and nurses. Ignoring clear NICE guidelines. Challenging my prescription time and time again. Withholding treatment
I wrote on October 10th 2023 ( apparently ,as a vague recollection as alot going on ) Had a reply today. My complaint about inconsistency in prescribing b12 . Lack of training with Gps and nurses. Ignoring clear NICE guidelines. Challenging my prescription time and time again. Withholding treatment
Nackapan
in
Pernicious Anaemia Society
8 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
New diagnosis - MBL or CLL?
Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I finally was given a diagnosis of CLL by the Haematologist but after checking on here and elsewhere I am now a bit confused. The flow cytometry came back with MBL (CLL phenotype) but just below the threshold
Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I finally was given a diagnosis of CLL by the Haematologist but after checking on here and elsewhere I am now a bit confused. The flow cytometry came back with MBL (CLL phenotype) but just below the threshold
Geoff_S
in
CLL Support
8 months ago
Frequency of B12 injections
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
Suesue246
in
Pernicious Anaemia Society
8 months ago
Hypothesis IV
That the body when injected less than every 4 to six hours (I have not yet determined what interval or amount that is appropriate for me) goes through a process that is detrimental to healing as the body waits for the next injection. Over time infrequent injections may result in improvement. AKA
That the body when injected less than every 4 to six hours (I have not yet determined what interval or amount that is appropriate for me) goes through a process that is detrimental to healing as the body waits for the next injection. Over time infrequent injections may result in improvement. AKA
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Ozempic overdosing
I don't know about any of you, but I just heard on the news that they are docing out of Ozempic,in a multidose vial with a needle for people to draw up and administered to themselves at will. People are overdosing, but yet they're still given them a syringe and their medicine. For weight loss, it's meant
I don't know about any of you, but I just heard on the news that they are docing out of Ozempic,in a multidose vial with a needle for people to draw up and administered to themselves at will. People are overdosing, but yet they're still given them a syringe and their medicine. For weight loss, it's meant
EllaNore
in
Pernicious Anaemia Society
8 months ago
t3/t4 combo advice please
I am feeling very fed up, very low and like I can’t keep going with all this… Saw endo last month and was advised to take 7.5 t3 and choice of whether I wanted to drop to 50 or 62.5mcg levo - down from 75. I opted to stick with 62.5 levo as 50 had no symptom relief before! I started slow adding 2.5
I am feeling very fed up, very low and like I can’t keep going with all this… Saw endo last month and was advised to take 7.5 t3 and choice of whether I wanted to drop to 50 or 62.5mcg levo - down from 75. I opted to stick with 62.5 levo as 50 had no symptom relief before! I started slow adding 2.5
GreenTealSeal
in
Thyroid UK
8 months ago
I’m Quite Annoyed Over My Latest Blood Tests.
Three months ago my Levo was reduced because they thought I was taking too much. This week I had my blood test and they haven’t even tested T3 as last time so how am I supposed to know if it’s much better or not?. The September results were: TSH - 0.03 [0.35-4.94] FT4 - 20.1 [9.0-19.0] FT3 - 4.89 [
Three months ago my Levo was reduced because they thought I was taking too much. This week I had my blood test and they haven’t even tested T3 as last time so how am I supposed to know if it’s much better or not?. The September results were: TSH - 0.03 [0.35-4.94] FT4 - 20.1 [9.0-19.0] FT3 - 4.89 [
Ellie-Louise
in
Thyroid UK
8 months ago
Deliveries from Germany
Have just been advised that my recent order from versandapo.de will be delivered today. (Not B12!) However, while the pharmacy had the package done (as usual) within a few hours of receiving my order, DHL managed to keep the parcel in their Dorsten depot for around a week. Could well be because they
Have just been advised that my recent order from versandapo.de will be delivered today. (Not B12!) However, while the pharmacy had the package done (as usual) within a few hours of receiving my order, DHL managed to keep the parcel in their Dorsten depot for around a week. Could well be because they
helvella
in
Pernicious Anaemia Society
8 months ago
B12 injections out of stock at Versandapo.de (Panpharma)
The B12 Panpharma injections are out of stock, I normally use the hydroxocobalamin. It says enter your email and we will notify when they’re back in stock, which I have done. Does anyone know if they do actually email you when back in stock ? or how long it takes to be back in stock. The packs of 10
The B12 Panpharma injections are out of stock, I normally use the hydroxocobalamin. It says enter your email and we will notify when they’re back in stock, which I have done. Does anyone know if they do actually email you when back in stock ? or how long it takes to be back in stock. The packs of 10
Ryaan
in
Pernicious Anaemia Society
8 months ago
copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
8 months ago
Updated bloods after 25mcg dose increase
Hey everyone, Just had my latest round of bloods after a 25mcg increase from 150 to 175 daily. Pre increase: (still didnt feel right at all) TSH - 1.83 mU/L (TSH range - 0.30 - 4.20) T4 - 14.3 pmol/L (T4 range - 9.0 - 19.0) T3 - 3.7 pmol/L (T3 range - 3 - 5.4) New bloods: TSH - 0.74
Hey everyone, Just had my latest round of bloods after a 25mcg increase from 150 to 175 daily. Pre increase: (still didnt feel right at all) TSH - 1.83 mU/L (TSH range - 0.30 - 4.20) T4 - 14.3 pmol/L (T4 range - 9.0 - 19.0) T3 - 3.7 pmol/L (T3 range - 3 - 5.4) New bloods: TSH - 0.74
dexterholland91
in
Thyroid UK
8 months ago
It is not me it is you.
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Latest reults
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
Chell1
in
Thyroid UK
8 months ago
New medichecks,advice please.
Brief history,diagnosed graves 2018,thyroidectomy June 2022.Fine on levo only until Jan 2023(100mcg 5 days,50mcg 2 days)Had a blood test at GP for unrelated illness and was referred back to endo as TSH was >10. Endo has gradually increased levo and I am now on 100mcg levo mon-thurs and 125mcg Fri-sun
Brief history,diagnosed graves 2018,thyroidectomy June 2022.Fine on levo only until Jan 2023(100mcg 5 days,50mcg 2 days)Had a blood test at GP for unrelated illness and was referred back to endo as TSH was >10. Endo has gradually increased levo and I am now on 100mcg levo mon-thurs and 125mcg Fri-sun
Cavapoochonowner
in
Thyroid UK
8 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
13722 results
Pernicious Anaemia Society
12485 results
Cure Parkinson's
967 results
View top 10 communities
Sort by
Most Relevant
Newest