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My Mucusy
Someone on this forum used this term and I found it helpful. I know what that experience means to me in that I know when I am mucusy. I have had this experience my whole life. It happens when my body is stressed both eustress and stress. I have noticed it in others. I can often tell that a person is
Someone on this forum used this term and I found it helpful. I know what that experience means to me in that I know when I am mucusy. I have had this experience my whole life. It happens when my body is stressed both eustress and stress. I have noticed it in others. I can often tell that a person is
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Lean muscle, raised metabolism and feeling warm all the time (further points added at the end)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3661116/ I am now about 6 months into a longer term project (with a sports nutritionist) to sort out my long term health issues around inflammation, insulin resistance, metabolism, energy levels, sleep and well being. One part of that is that for me I have
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3661116/ I am now about 6 months into a longer term project (with a sports nutritionist) to sort out my long term health issues around inflammation, insulin resistance, metabolism, energy levels, sleep and well being. One part of that is that for me I have
Danielj1
in
Thyroid UK
7 months ago
starting on ndt Thyroid-S
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
MiaMam
in
Thyroid UK
7 months ago
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latest blood tests
can anyone comment if these are ok, thank you Pathology Investigations B12 Serum vitamin B12 level 439 ng/L [197.0 - 771.0] Serum CA 125 (cancer antigen 125) level Serum CA 125 (cancer antigen 125) level 8 ku/L [0.0 - 35.0]; Measured using the Roche Cobas System Serum ferritin level 457
can anyone comment if these are ok, thank you Pathology Investigations B12 Serum vitamin B12 level 439 ng/L [197.0 - 771.0] Serum CA 125 (cancer antigen 125) level Serum CA 125 (cancer antigen 125) level 8 ku/L [0.0 - 35.0]; Measured using the Roche Cobas System Serum ferritin level 457
Foxylady1066
in
Thyroid UK
7 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
7 months ago
Vitamin B12 deficiency & Low Vit D
I’ve just started on B12 injections (6 over 2 weeks ouch ) as my levels were low . Many of the symptoms are similar to what I get with heart issues, extreme tiredness and breathlessness. It was only by chance that they added B12 onto my annual check up bloods after I mentioned being more exhausted
I’ve just started on B12 injections (6 over 2 weeks ouch ) as my levels were low . Many of the symptoms are similar to what I get with heart issues, extreme tiredness and breathlessness. It was only by chance that they added B12 onto my annual check up bloods after I mentioned being more exhausted
ScoobyDoo71
in
British Heart Foundation
7 months ago
Do people on here have hypothyroidism or CFS?
I recovered from ME/CFS a while ago although I did have one period where I had myclonic jerks at night along with fatigue which seemed to go away when I took B12 supplements even though my B12 was in the low normal range (350 or somehting like that it was and the low range was 190). ANyway, I am wondering
I recovered from ME/CFS a while ago although I did have one period where I had myclonic jerks at night along with fatigue which seemed to go away when I took B12 supplements even though my B12 was in the low normal range (350 or somehting like that it was and the low range was 190). ANyway, I am wondering
MEguy
in
Fibromyalgia Action UK
7 months ago
Does PA count as a disability?
I have PA and have a diagnosis by a doctor of such. It manifests itself through physical and mental health conditions. For me, I have hearing loss (I am not deaf but, for example, struggle using the phone. I am not sure if this is caused by PA), difficulties walking (although I can walk slowly and
I have PA and have a diagnosis by a doctor of such. It manifests itself through physical and mental health conditions. For me, I have hearing loss (I am not deaf but, for example, struggle using the phone. I am not sure if this is caused by PA), difficulties walking (although I can walk slowly and
BleekerStreet
in
Pernicious Anaemia Society
7 months ago
G.p consult
As per previous post. My B12 repeat prescription was removed by a pharmacist admin. Got an appointment with new online service but at a different surgery 5 miles away ? This G.p listened. She said a pharmacy admin ca cancer a repeat prescription if not ususl despite z G.p prescribing it. That was
As per previous post. My B12 repeat prescription was removed by a pharmacist admin. Got an appointment with new online service but at a different surgery 5 miles away ? This G.p listened. She said a pharmacy admin ca cancer a repeat prescription if not ususl despite z G.p prescribing it. That was
Nackapan
in
Pernicious Anaemia Society
7 months ago
Best time for a blood test?
Hi all, I've ordered a comprehensive blood test from Medichecks, as I've been working on my ferritin levels amongst other things. (Obviously, I'll be ignoring the inevitable out of range B12 result! 😁) Problem is, I had a mild tummy bug 3 days ago. My bloods appointment is for a week after this,
Hi all, I've ordered a comprehensive blood test from Medichecks, as I've been working on my ferritin levels amongst other things. (Obviously, I'll be ignoring the inevitable out of range B12 result! 😁) Problem is, I had a mild tummy bug 3 days ago. My bloods appointment is for a week after this,
KBird01
in
Pernicious Anaemia Society
7 months ago
Vitamin B12 deficiency
Recently started on B12 injections due to B12 deficiency. Hoping will boost my energy and relieve some of the symptoms. Lots of similarities with this to heart symptoms. Wondering how many heart patients are potentially B12 deficient that could have some benefit from treatment for this which in conjunction
Recently started on B12 injections due to B12 deficiency. Hoping will boost my energy and relieve some of the symptoms. Lots of similarities with this to heart symptoms. Wondering how many heart patients are potentially B12 deficient that could have some benefit from treatment for this which in conjunction
ScoobyDoo71
in
British Heart Foundation
7 months ago
Help getting B12 injections
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
Flowers2
in
Pernicious Anaemia Society
7 months ago
Catsmud
I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizziness bout 5 times throughout the day really scary especially driving doesn’t last more than seconds leaves me with headache is this a side effect.. or would it happen if it was a different batch of serum maybe
I had my b12 3 weeks ago but 4 days ago started to have head rushes and dizziness bout 5 times throughout the day really scary especially driving doesn’t last more than seconds leaves me with headache is this a side effect.. or would it happen if it was a different batch of serum maybe
Catsmud
in
Pernicious Anaemia Society
7 months ago
Some Potentially Alarming Changes to Blood
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Horsechestnut
in
CLL Support
7 months ago
Grandmother, 88 being denied B12 injections
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
TMur1990
in
Pernicious Anaemia Society
7 months ago
Higher CSF/serum free-T4 ratio is associated with improvement of quality of life during treatment with L-thyroxine
An interesting paper. Note a parallel with Pernicious Anaemia/B12 deficiency in which some have low CSF B12 while having high serum B12. Asking the question, though the answer is almost certan, has anyone ever had their CSF thryoid hormone levels tested? On Twitter: [i]Johannes W. Dietrich @drjwdietrich
An interesting paper. Note a parallel with Pernicious Anaemia/B12 deficiency in which some have low CSF B12 while having high serum B12. Asking the question, though the answer is almost certan, has anyone ever had their CSF thryoid hormone levels tested? On Twitter: [i]Johannes W. Dietrich @drjwdietrich
helvella
Thyroid UK
in
Thyroid UK
7 months ago
blood test results ! 10/10/23
New blood test results! Two of the important ones where missed! On the NICE guidelines I am borderline deficient on B12 and folate! I didn’t ask for T3 but got it! It’s 5.3 pmol/ ( 3.1-6.8) and my T4 is 19.1 pmol/l (12-22) I said not to bother with TSH Many thanks
New blood test results! Two of the important ones where missed! On the NICE guidelines I am borderline deficient on B12 and folate! I didn’t ask for T3 but got it! It’s 5.3 pmol/ ( 3.1-6.8) and my T4 is 19.1 pmol/l (12-22) I said not to bother with TSH Many thanks
Doris11
in
Thyroid UK
7 months ago
Endo appointment, T3 results at last and hyperparathyroidism possible
Thanks for your replies to my previous post and also the advice that I should investigate hyperparathyroidism. I saw the endocrinologist today and apparently my July '23 results (which I hadn't been told, and certainly they'd never mentioned they'd do T3) were: TSH: 0.02 (0.27-4.2) T4: 20.5 (12-
Thanks for your replies to my previous post and also the advice that I should investigate hyperparathyroidism. I saw the endocrinologist today and apparently my July '23 results (which I hadn't been told, and certainly they'd never mentioned they'd do T3) were: TSH: 0.02 (0.27-4.2) T4: 20.5 (12-
Maztee
in
Thyroid UK
7 months ago
Thyroid medication update
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
So presently taking 60 NDT and 25 t4 synthroid. I couldn't tolerate 90 ndt so my doctor gave me 25 t4 as a slower release and doesn't hit as hard as ndt. So it seems this addition of t4 has helped me. My sleep is better, my eyebrows filling in more, the few pounds I was holding onto seem to have dropped
Nora3
in
Thyroid UK
7 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
7 months ago
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