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Best IRON supplements for RLS? Currently trying Pramipexole but learning about the risk of augmentation...
I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up to my thighs and would not always go away with sleep... The last 3 years it has increasingly become unbearable. I have it deep in my hips, up
I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up to my thighs and would not always go away with sleep... The last 3 years it has increasingly become unbearable. I have it deep in my hips, up
Catsmeow13
in
Restless Legs Syndrome
1 month ago
Statins and Paroxysmal afib stopped?
Anyone else experienced this? there is research showing statins reduce PAF burden.Used to have episode every 3-6 months, very upsetting! Also take iron, b12 and magnesium supplements. Afib free for a year now. Tempting fate of course....🫣.also enjoying a couple of pints now and then which is nice.
Anyone else experienced this? there is research showing statins reduce PAF burden.Used to have episode every 3-6 months, very upsetting! Also take iron, b12 and magnesium supplements. Afib free for a year now. Tempting fate of course....🫣.also enjoying a couple of pints now and then which is nice.
DJPH23
in
Atrial Fibrillation Support
1 month ago
Blood results
Had my blood test results and all within range but I guess not optimal: Ferritin 34 (been at this level for few years) Range (13-150) B12 - 592 (range 197-771) Serum folate 10.2 (range 3.89 / 9999 Vitamin D 81 (range 50 to 374) FBC all I. Range too. Any advice ?
Had my blood test results and all within range but I guess not optimal: Ferritin 34 (been at this level for few years) Range (13-150) B12 - 592 (range 197-771) Serum folate 10.2 (range 3.89 / 9999 Vitamin D 81 (range 50 to 374) FBC all I. Range too. Any advice ?
Ellen70
in
Thyroid UK
1 month ago
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Hypothyroidism vs Blood Pressure
Hi Community. Would anyone have any thoughts: since I have had my Thyroid removed 1 year ago and am taking Levothyroxine, it seems my blood pressure is creeping up. Would this be an indicator of incorrect dosages, or type of hormone replacement. Getting to see an endocrinologist is difficult since I
Hi Community. Would anyone have any thoughts: since I have had my Thyroid removed 1 year ago and am taking Levothyroxine, it seems my blood pressure is creeping up. Would this be an indicator of incorrect dosages, or type of hormone replacement. Getting to see an endocrinologist is difficult since I
Dirhams
in
Thyroid UK
1 month ago
Advice please on blood results please - confused - too much levo?
Hi everyone. It's taken me a while to get it together to write this post and I apologise in advance for its length. I was diagnosed with Hashimoto's in May 2023 and since then had regular blood tests and given very small increases in Levothyroxine from 25 up to 100 ug in April 2024. My June 2024 blood
Hi everyone. It's taken me a while to get it together to write this post and I apologise in advance for its length. I was diagnosed with Hashimoto's in May 2023 and since then had regular blood tests and given very small increases in Levothyroxine from 25 up to 100 ug in April 2024. My June 2024 blood
florasmate
in
Thyroid UK
1 month ago
optimal vitamin and mineral levels
Hi, I’m new to the group . Joining after a Hashimoto’s diagnosis and subclinical hypothyroidism. Currently taking 25mg of levothyroxine. I’m having blood tests for Vit d , B12 , folate and ferritin. What are optimal levels for these please?
Hi, I’m new to the group . Joining after a Hashimoto’s diagnosis and subclinical hypothyroidism. Currently taking 25mg of levothyroxine. I’m having blood tests for Vit d , B12 , folate and ferritin. What are optimal levels for these please?
Ellen70
in
Thyroid UK
1 month ago
Hey Houston we have a problem!
After Helen's last set of results we decided to take things into our own hands and start with some supplements after a long discussion with Greygoose and Jaydee 1507 we have been useing the following: 1. Magnesium Bisgycinate which has been changed to Magnesium Citrate as Helen became bound up, However
After Helen's last set of results we decided to take things into our own hands and start with some supplements after a long discussion with Greygoose and Jaydee 1507 we have been useing the following: 1. Magnesium Bisgycinate which has been changed to Magnesium Citrate as Helen became bound up, However
helenshubby
in
Thyroid UK
1 month ago
Can levo cause low FT3?
Hi I am hypothyroid with Hashimoto’s, suspect both for decades but never tested/ treated until 2 years ago. I also took private tests at the same time and whilst my TSH and FT4 were both around 8, my FT3 was optimal. I was put on levo by GP and titrated to 100mcg but last autumn got worse, (also privately
Hi I am hypothyroid with Hashimoto’s, suspect both for decades but never tested/ treated until 2 years ago. I also took private tests at the same time and whilst my TSH and FT4 were both around 8, my FT3 was optimal. I was put on levo by GP and titrated to 100mcg but last autumn got worse, (also privately
Opal79
in
Thyroid UK
1 month ago
Methylcobalamin B12
Hi I’m going to try and do the B12 injections myself but I’m looking for the methylcobalamin B12 I’ve heard a lot of people buy it from Germany please could someone tell me where is a reputable place to purchase it from thank you
Hi I’m going to try and do the B12 injections myself but I’m looking for the methylcobalamin B12 I’ve heard a lot of people buy it from Germany please could someone tell me where is a reputable place to purchase it from thank you
Bess48
in
Pernicious Anaemia Society
1 month ago
Purchasing Hydroxocobalamin Ampoules UK
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
New144
in
Pernicious Anaemia Society
1 month ago
Optimal Dose For Oral B12 In a Test To Replace Injections.
Having been self injecting for a year now and in a good place, with all cofactors applied, I’m wanting to test myself in increasing the gap between EOD injections and when I feel symptoms returning to then introduce oral supplementation. So if someone can, maybe from experience, recommend an optimal
Having been self injecting for a year now and in a good place, with all cofactors applied, I’m wanting to test myself in increasing the gap between EOD injections and when I feel symptoms returning to then introduce oral supplementation. So if someone can, maybe from experience, recommend an optimal
B12again
in
Pernicious Anaemia Society
1 month ago
New and desperately seeking advice and support
Hello, This is my first post, I’m hoping to get some support, advice and knowledge to help me understand what is going on in my body. Please bear with me as I give some background - I have been seen for the past couple of years by endocrinologists after a pituitary macroadenoma was incidentally found
Hello, This is my first post, I’m hoping to get some support, advice and knowledge to help me understand what is going on in my body. Please bear with me as I give some background - I have been seen for the past couple of years by endocrinologists after a pituitary macroadenoma was incidentally found
Yuki9
in
Thyroid UK
1 month ago
does anyone use cyano b12 and have mthfr mutated genes
hello Everyone, I have been studying reading on this issue and find it very controversial, I feel more calm on the cyano for my last two inj. and have been on the methyl b12 because I read I had to take that only but I realized it was on sites that were selling vitamins. does anyone have any information
hello Everyone, I have been studying reading on this issue and find it very controversial, I feel more calm on the cyano for my last two inj. and have been on the methyl b12 because I read I had to take that only but I realized it was on sites that were selling vitamins. does anyone have any information
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
90 day Update.
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Active B12 better, do I reduce injections?
I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. I have recently done a Medichecks test which showed my folate and Active B12 are now in good range - will post in comments. I wouldn’t say any of my symptoms are gone, some have improved very slightly. Dr Klein thinks I can
I started on hydroxocobalamin injections EOD at the end of May, plus cofactors. I have recently done a Medichecks test which showed my folate and Active B12 are now in good range - will post in comments. I wouldn’t say any of my symptoms are gone, some have improved very slightly. Dr Klein thinks I can
Chickens44
in
Pernicious Anaemia Society
1 month ago
Ropinirole and dizziness
Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m currently taking 0.5mg of ropinirole every night. I was on a higher dose of Pramipexole - I tried to come off it without understanding the withdrawal effects. After two weeks of no sleep at all I was broken went to the gp
Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m currently taking 0.5mg of ropinirole every night. I was on a higher dose of Pramipexole - I tried to come off it without understanding the withdrawal effects. After two weeks of no sleep at all I was broken went to the gp
LunaWise
in
Restless Legs Syndrome
1 month ago
Medichecks Optimal Health Blood Test
Just received my results back from Medichecks. £199 plus £35 to go to a clinic to get the blood drawn so not cheap. I received 4 pages of results and a Doctors report so very comprehensive. I had not taken any supplements especially B12 for a few weeks as instructed by Medichecks. TSH 3.2, B12 150
Just received my results back from Medichecks. £199 plus £35 to go to a clinic to get the blood drawn so not cheap. I received 4 pages of results and a Doctors report so very comprehensive. I had not taken any supplements especially B12 for a few weeks as instructed by Medichecks. TSH 3.2, B12 150
john159
in
Pernicious Anaemia Society
1 month ago
Usual diagnosis problems
Hello all, first post, but been reading for a while. I seem to be in the usual position, I think I have B12 deficiency but my doctors think otherwise. My initial bloods gave a B12 of 320, but I was taking supplements at the time, and although this falls in the indeterminate zone the GP says I do not
Hello all, first post, but been reading for a while. I seem to be in the usual position, I think I have B12 deficiency but my doctors think otherwise. My initial bloods gave a B12 of 320, but I was taking supplements at the time, and although this falls in the indeterminate zone the GP says I do not
frogmore
in
Pernicious Anaemia Society
1 month ago
Results - advice please
Can I have some advice as to what I should do. Even though my energy levels seem ok, I have been feeling anxious, brain fog, suffering from palpitations and starting to feel low mood too. I wasn't going to get these bloods done until October but then decided I would - regardless of the cost - as I
Can I have some advice as to what I should do. Even though my energy levels seem ok, I have been feeling anxious, brain fog, suffering from palpitations and starting to feel low mood too. I wasn't going to get these bloods done until October but then decided I would - regardless of the cost - as I
Sunflower535
in
Thyroid UK
1 month ago
follow up
I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at my progress on the more regular B12. Interestingly, my most recent blood tests for the neurologist included B12/folate levels (which I wasn’t fussed about as I’m self-managing the B12 at home). I had done an injection the
I just had a follow-up with my GP (the unicorn one) - she’s been gobsmacked at my progress on the more regular B12. Interestingly, my most recent blood tests for the neurologist included B12/folate levels (which I wasn’t fussed about as I’m self-managing the B12 at home). I had done an injection the
PlatypusProfit8077
in
Pernicious Anaemia Society
1 month ago
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