I'm due to see my new endo this afternoon so am just writing up some notes for them and wondering if you think there is anything else I should mention in regards to my thyroid.
My symptoms are mainly fatigue and weakness, slow heartrate and cold/tingling hands and feet.
My bloods from last week were as follows:
TSH - 1.51 (0.25-4.25)
T4 - 14.1 (12-22)
T3 - 4 (3.1-6.8)
TPO Antibodies - 9 (<34)
My iron and vitamin B12 etc unfortunately clotted so they've sent me another test to redo it and my vitamin D was 49 (range for adequate at this lab seems to be 38-62)
I think whatever is going on isn't going to be a simple one thing diagnosis but just wondering whta your thoughts were in terms of results/discussing with endo to exclude thyroid as a cause.
Thanks.
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Mrs_Walsh
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It was morning and I am UK based - I've double checked and it's definitely in nmol/l as you've said. No TG antibodies - I took the Monitor My Health test so only TPO is included.
I did take the other tests but my blood clotted before they could do them so they've sent me another kit to redo folate/b12/ferritin/HB.
At the beginning of the year:
Vitamin D - 49 again (but was then put on an active vitamin D tablet for phosphate issues and lab said they couldn't retest on NHS for 6 months but I did a lateral flow style test that said it was still in good range)
Iron - 29 (10-50)
Ferritin was 229 when I had my check up post iron infusion (approx 2 months ago) so should be within range now I hope (10-180)
B12 - 346 (200-900) which neurologist signed off as good enough
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Post discussing how biotin can affect test results
I'm not hoping they exclude it - just expecting them too but want to give them as much as possible to go on so they don't just see TSH and dismiss it as you've mentioned. I'm printing off the list now and will take with me. Thank you so much.
It's a monumental disgrace that they are so badly informed about thyroid disease.....
Use the %ages as well ....they will be wrong if they dismiss them!
Push for thyroid hormone replacement....levothyroxine
With correct hormone replacement you will feel better...but be patient, it will take some time.
Medics are too quick to accept results as " fine" if they are somewhere in the range....that's not the point....they need to be at a point in the range where symptoms are resolved
I think I'd been low iron for most of my life due to previous heavy menstruation and just couldn't get back on top of it with supplementation (not veggie but not eating a lot of meat or iron dense food at that time which has now changed). It was my first infusion and I won't be having another one as I had a bad reaction (which is why I'm at the endo in the first place - it sent me into hypophosphatemia which has now been corrected). I'm 34 so pre-menopause (my mother keeps badgering about menopause but I'm still the most regular I've ever been although they are becoming lighter so I don't think menopause is coming yet)
I just wanted to say a thank you for all your advice last week.
The endo appointment was an absolute waste of my time - I went with all issues and symptoms and results plotted out in paper form but she just was not interested in anything but my blood glucose (which I'm having relevant testing for next week anyway so she literally wasted all of our time).
I have since taken the medichecks advanced thyroid test as suggested above and the blood reached them this morning so hopefully those results will be in soon.
I also had some of my remaining results back and my active B12 has dropped again so I'm going to try and get the GP to actually test me for intrinsic factor etc which they didn't want to do in October. I'll wait and see what the medichecks level is first so I'll have three results as evidence that it's barely within range never mind optimum.
Again thanks for all your advice so far and I will update when these new results come in - fingers crossed.
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