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Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
2 months ago
Questions about TSH and advice on results over the past year much appreciated
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Heybella
in
Thyroid UK
2 months ago
Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
2 months ago
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3 am protocol for T3, please tell me about it?
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
thyr01d
in
Thyroid UK
2 months ago
Apohealth Shipping Cist Doubled again
Hi all aghhh!!! Just ordered more B12 and shipping was €20 last month and now €38 😭😭😭😭 🤗🤗🤗
Hi all aghhh!!! Just ordered more B12 and shipping was €20 last month and now €38 😭😭😭😭 🤗🤗🤗
Wwwdot
in
Pernicious Anaemia Society
2 months ago
New results after being discharged by endocrinologist.
Hi I will add my previous post but I will also give a quick recap: I first came on with low T4 levels but TSH in range. The doctors did regular tests saying it wasn't being tested properly. I eventually got referred to an endocrinologist. After a while of more testing I was discharged and told that
Hi I will add my previous post but I will also give a quick recap: I first came on with low T4 levels but TSH in range. The doctors did regular tests saying it wasn't being tested properly. I eventually got referred to an endocrinologist. After a while of more testing I was discharged and told that
Moviegeek7
in
Thyroid UK
2 months ago
Advice from the University of sussex on how to inject B12.
https://www.unimed.co.uk/wp-content/uploads/2020/05/B12-self-injecting.pdf
https://www.unimed.co.uk/wp-content/uploads/2020/05/B12-self-injecting.pdf
charks
in
Pernicious Anaemia Society
2 months ago
Id really appreciate your thoughts on my latest blood test results on Erfa 2 grains -still not feeling great- Im thinking bloods now? Help!
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Starseed56
in
Thyroid UK
2 months ago
Feeling weird
Hi on the 6th I had a loading dose of b12 although. My doctor said I didn't need it as I had a reading for of 2000 Buy since having it a feel very jittery sleeping gonee to pot and feel hot ifs this common or possible many thanks
Hi on the 6th I had a loading dose of b12 although. My doctor said I didn't need it as I had a reading for of 2000 Buy since having it a feel very jittery sleeping gonee to pot and feel hot ifs this common or possible many thanks
gpw61
in
Pernicious Anaemia Society
2 months ago
Error in Design
I experienced successful results of a 12 day trial of 1.5 mg of adenosylcobalamin and 1.5 mg of methylcobalamin 5 times a day including setting an alarm and injecting at night. 50 mg of P-5-P B6 twice a day to treat B6 deficiency. So I designed a trail to explore the results of injecting three forms
I experienced successful results of a 12 day trial of 1.5 mg of adenosylcobalamin and 1.5 mg of methylcobalamin 5 times a day including setting an alarm and injecting at night. 50 mg of P-5-P B6 twice a day to treat B6 deficiency. So I designed a trail to explore the results of injecting three forms
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
After Some Super Advice on This Forum
Firstly, thank you for all your advice on my last thread, needless to say I took it onboard and proceeded to get another blood test with the advised timings and vitamins etc. So once again I hope I can ask for your advice again, I'll post Januarys and now March's, they look better to me, but as I said
Firstly, thank you for all your advice on my last thread, needless to say I took it onboard and proceeded to get another blood test with the advised timings and vitamins etc. So once again I hope I can ask for your advice again, I'll post Januarys and now March's, they look better to me, but as I said
MurphysMama
in
Thyroid UK
2 months ago
B12 Frequency Research
Hi All The frequency of B12 dosing is a regular topic so I thought I would share this in a post if it’s own. Three months ago I revisited "What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY" by our wonderful Martyn Hooper. The following paragraph on page 143 struck a cord in relation
Hi All The frequency of B12 dosing is a regular topic so I thought I would share this in a post if it’s own. Three months ago I revisited "What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY" by our wonderful Martyn Hooper. The following paragraph on page 143 struck a cord in relation
Wwwdot
in
Pernicious Anaemia Society
2 months ago
B12 Manufacturing Process
I was reading a post about an Etsy shop offering injectable B12 doses so I decided to research where B12 is manufactured. I found this really interesting site and thought others might also find it interesting. https://quadram.ac.uk/case_studies/an-environmentally-friendly-vitamin-b12-production-method-that-makes-manufacture-more-affordable
I was reading a post about an Etsy shop offering injectable B12 doses so I decided to research where B12 is manufactured. I found this really interesting site and thought others might also find it interesting. https://quadram.ac.uk/case_studies/an-environmentally-friendly-vitamin-b12-production-method-that-makes-manufacture-more-affordable
MoKayD
in
Pernicious Anaemia Society
2 months ago
Brothers operation
My brother is in hospital waiting for an operation on a blocked bile duct! I just had a thought about the supplements he is taking.. Should he stop all supplements He is taking B complex Vitamin D ( no K ) Probiotics 2x day Liquid multi ( Metabolics) Spray B12 ( his was very low) My brother
My brother is in hospital waiting for an operation on a blocked bile duct! I just had a thought about the supplements he is taking.. Should he stop all supplements He is taking B complex Vitamin D ( no K ) Probiotics 2x day Liquid multi ( Metabolics) Spray B12 ( his was very low) My brother
Bean101
in
Thyroid UK
2 months ago
Understanding my results
Hi, Would anyone be able to help me make sense of the following blood results? I went to the doctor's as I've been experiencing constant headaches with dizziness. I don't have the headline symptoms of hyperthyroidism. I had the following results in January Serum free T4 level 21.7 pmol/L [11.0 -
Hi, Would anyone be able to help me make sense of the following blood results? I went to the doctor's as I've been experiencing constant headaches with dizziness. I don't have the headline symptoms of hyperthyroidism. I had the following results in January Serum free T4 level 21.7 pmol/L [11.0 -
TechCat
in
Thyroid UK
2 months ago
B12 available from Etsy.
Etsy are selling B12 vials. https://www.etsy.com/uk/listing/1559248520/10-2ml-b12-hydroxocobalamin-5000mcg?click_key=351ed22c28790a7d762da131cfd3542e741f0a1e%3A1559248520&click_sum=a74d7058&external=1&rec_type=cs&ref=pla_similar_listing_top-5&sts=1 Is this legal?
Etsy are selling B12 vials. https://www.etsy.com/uk/listing/1559248520/10-2ml-b12-hydroxocobalamin-5000mcg?click_key=351ed22c28790a7d762da131cfd3542e741f0a1e%3A1559248520&click_sum=a74d7058&external=1&rec_type=cs&ref=pla_similar_listing_top-5&sts=1 Is this legal?
charks
in
Pernicious Anaemia Society
2 months ago
results and getting it right
did do everything properly when doing the test had TT dew to goitre and other nodules and being overactive once removed and tested a very small amount of cancer found I take 75mg one day and 100 mg another saw NP today regarding symptoms but just said it take time and won’t do anything cause results
did do everything properly when doing the test had TT dew to goitre and other nodules and being overactive once removed and tested a very small amount of cancer found I take 75mg one day and 100 mg another saw NP today regarding symptoms but just said it take time and won’t do anything cause results
Bobbin5
in
Thyroid UK
2 months ago
Are my results looking ok
had TT oct had recent blood test done with medicheck im aching, tired headaches ringing in my ears restless legs my ferritin was on the lower side of normal 32 so seen hp today but won’t prescribe anything cause results are in normal range so I asked for a iron tablet I can buy over the counter which
had TT oct had recent blood test done with medicheck im aching, tired headaches ringing in my ears restless legs my ferritin was on the lower side of normal 32 so seen hp today but won’t prescribe anything cause results are in normal range so I asked for a iron tablet I can buy over the counter which
Bobbin5
in
Thyroid UK
2 months ago
Confusing first results on T4/T3
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Cassav
in
Thyroid UK
2 months ago
Reaction to B12 injection?
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
Ix49
in
Pernicious Anaemia Society
2 months ago
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