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Cutaneous T cell lymphoma (CTCL)
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Well got my results back and I guess this explains alot 🤦🏼‍♀️
Sorry for the lighting, if you cant see it it says 96.6 for parietal cell antibody range 0.0 - 24.9 Thank you for pointing me in the right direction. Im not sure if this qualifies me as auto immune gastritis but thankfully we have discovered this.
Sorry for the lighting, if you cant see it it says 96.6 for parietal cell antibody range 0.0 - 24.9 Thank you for pointing me in the right direction. Im not sure if this qualifies me as auto immune gastritis but thankfully we have discovered this.
JennaShi
in
Thyroid UK
6 years ago
SCT just got real.
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
KAS8
in
CLL Support
6 years ago
left shoulder hurting again
been on pred since oct 2016, 40 to start, then tapered well to 10 up til august 2017, rheu my wanted to keep me at that dose of 10 until into new year 2018, as my son who was diagnosed with multiple myeloma was having stem cell transplant in jan 2018, she said with the additional stress, did not want
been on pred since oct 2016, 40 to start, then tapered well to 10 up til august 2017, rheu my wanted to keep me at that dose of 10 until into new year 2018, as my son who was diagnosed with multiple myeloma was having stem cell transplant in jan 2018, she said with the additional stress, did not want
arvine
in
PMRGCAuk
6 years ago
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The Bloodline with LLS ------------------------------------ A PODCAST FOR PATIENTS AND CAREGIVERS
http://www.lls.org/ [i]( a USA base organization but the links and audio programs etc. should work world wide- Len)[/i] Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as Alicia Patten
http://www.lls.org/ [i]( a USA base organization but the links and audio programs etc. should work world wide- Len)[/i] Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as Alicia Patten
lankisterguy
Volunteer
in
CLL Support
6 years ago
Muscle heaviness .
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Dewdrop456
in
PMRGCAuk
6 years ago
Low b12, paretial antibodies negative, is it PA?
Hi all 👋🏼 Please bear with me, this is my first time posting. After a loooong time of feel tired beyond belief, low mood, gastro issues and irregular periods (is that a low b12 thing???) my dr tested my b12. My serum levels came back as 126 and my active b12 was 27. I’ve just finished the 6 loading
Hi all 👋🏼 Please bear with me, this is my first time posting. After a loooong time of feel tired beyond belief, low mood, gastro issues and irregular periods (is that a low b12 thing???) my dr tested my b12. My serum levels came back as 126 and my active b12 was 27. I’ve just finished the 6 loading
Emmy2018
in
Pernicious Anaemia Society
6 years ago
I feel sad and alone
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
Hello, It has been about a year since I posted here for the first time and this is the second time. I have COPD from the complication called GVHD from my stem cell transplant for my lukimia. It has been getting worse and I was in hospital a few times last year and twice already this year. Last year I
mnonchan
in
Lung Conditions Community Forum
6 years ago
Dovetailing
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Wow getting red hair to warn bad news to stay away is certainly working. Saw osteo surgeon again today regarding the initial hip pain and looked at all scan and MRI results. Seeing as I had a bone marrow transplant and radiation 27 years ago, which made me post menopausal, I have really good bones for
Angiejnz
in
PMRGCAuk
6 years ago
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon. The 34-year-old from Bristol was desperately ill when he underwent pioneering CAR T therapy in the US city of Philadelphia in 2016. Mike was suffering from chronic lymphocytic leukaemia (
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Yay good bones
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed with pmr. My back with compressed vertebrae and failed fusions has improved, with t score going from .7 to .8 and z score going from -0.1to 0.2, forearm score going
Angiejnz
in
PMRGCAuk
6 years ago
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
kay7954
in
PMRGCAuk
6 years ago
Eejit!!!!
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Hidden
in
PMRGCAuk
6 years ago
What if venetoclax and/or ibritinib stops working?
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
JanAmsterdam
in
CLL Support
6 years ago
24 Month results post Randomisation— Phase 2 Flair trial
Hi Everyone, Not posted for a while. But thought a few of you of you taking Imbruvica & Retuximab May find it interesting Neutrophil count 1.8 — 3.0 Lymphocyte Count 89.3 —2.9 Full blood count W 92.1—6.5 Haemoglobin estimation 93.—142. Platelet count 73.—-175. Red blood cell c 2.92—-4.71 Monocytes
Hi Everyone, Not posted for a while. But thought a few of you of you taking Imbruvica & Retuximab May find it interesting Neutrophil count 1.8 — 3.0 Lymphocyte Count 89.3 —2.9 Full blood count W 92.1—6.5 Haemoglobin estimation 93.—142. Platelet count 73.—-175. Red blood cell c 2.92—-4.71 Monocytes
Carpenters52
in
CLL Support
6 years ago
Lumber puncture
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I only had 2 doses and I can’t tell if it’s working. Or how long it takes to kick in. I’m hoping to go home tomorrow. But my right leg is bothering
Hali12
in
PMRGCAuk
6 years ago
Need Clarification regarding Splenic Marginal Zone Lymphoma
I am from India and I was informed by the doctors that my mother, who is 61 years, has a rare disease called Splenic Marginal Zone Lymphoma. The percentage of Lymphocytes in her blood is 85% and I was told that she is in stage IV of blood cancer. I would like to get the following clarifications: a.
I am from India and I was informed by the doctors that my mother, who is 61 years, has a rare disease called Splenic Marginal Zone Lymphoma. The percentage of Lymphocytes in her blood is 85% and I was told that she is in stage IV of blood cancer. I would like to get the following clarifications: a.
sellakumar
in
CLL Support
6 years ago
So confusing continued
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Angiejnz
in
PMRGCAuk
6 years ago
Who the Hell is Ali ibn Isa?
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali! Another very technical (and to me, the layperson) mind boggling editorial about recent advances in giant cell arteritis and impacts to how the disease
Hidden
in
PMRGCAuk
6 years ago
Oncotype DX rest Details Colon Cancer
Hi, I have been diagnosed with colon tumor and the same has been removed through surgery 3 weeks ago. Pathology report says T3, M0 , N0. I understand with doctor discussion that fortunately it’s not spread to any lymph nodes. But still doctor advised me to go for chemo. I’m lot worried about side effects
Hi, I have been diagnosed with colon tumor and the same has been removed through surgery 3 weeks ago. Pathology report says T3, M0 , N0. I understand with doctor discussion that fortunately it’s not spread to any lymph nodes. But still doctor advised me to go for chemo. I’m lot worried about side effects
Hidden
in
Breast Cancer India
6 years ago
Male hypo's support and advice
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Jeffreyt
in
Thyroid UK
6 years ago
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