I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis.
I have had FCR when i was arround 26/27.
I gave me 2 years of no threatment.
Then it came back and i was place in a studie group for GDC199 (venetoclax).
Veneoclax worked well, but only gave me 1,5 years of no threatment.
We again did Venetoclax only this time i responed really bad to the medicine and had to stopp as i could not take it anymore. Also my kidneys took heavy blows.
Now they gave me ibritinub wich seems to do the job well. (only been taking it for 4 weeks now)
I know my CLL will come back eventually as it will defend it selve against ibritinib and wil become resisstant.
My question is: how is science doing with a new generation of medicine? I am really sacared that i have to do a bone marrow transplant when ibritinib stops working.
I really dont want to do chemo anymore, i even considering stopping threatment if no new medicine besides chemo exists.
Anyone here nows what science has been up to?