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Cutaneous T cell lymphoma (CTCL)
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Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia Support
6 years ago
A remembrance of P.C. Venkat - plus
Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the ending of my 7th year for successful containment of my CLL with PCI-32765 (Ibrutinib/Imbruvica). It is a bittersweet anniversary in the knowledge that it has also been just 2 days past 10 years ago that our community lost P.C
Hi All, I am emailing from the Kafe Kerouac on High St. in Columbus OH on the ending of my 7th year for successful containment of my CLL with PCI-32765 (Ibrutinib/Imbruvica). It is a bittersweet anniversary in the knowledge that it has also been just 2 days past 10 years ago that our community lost P.C
ThreeWs
in
CLL Support
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
T
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Cell
Lymphoma
6/13 ∙ Update on Marginal Zone Lymphoma 6/14 ∙ Life with Graft vs.
T
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Cell
Lymphoma
6/13 ∙ Update on Marginal Zone Lymphoma 6/14 ∙ Life with Graft vs.
lankisterguy
Volunteer
in
CLL Support
6 years ago
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GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
Labs
These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC with Diff: Eosinophil 23%, Eosinophil Absolute 1.2k/CMM, HGB 11.8, PLT 136. CCP Complete Chemical Profile: Anion Gap 3, Alkaline Phosphatase 120, SGOT (AST) 41, Chloride Serum 109. Last week my Ellictocytes was 1+, Eosinophil
These are my labs from today. Manual Diff: Ellictocytes 1+, Poikilocytes 1+. CBC with Diff: Eosinophil 23%, Eosinophil Absolute 1.2k/CMM, HGB 11.8, PLT 136. CCP Complete Chemical Profile: Anion Gap 3, Alkaline Phosphatase 120, SGOT (AST) 41, Chloride Serum 109. Last week my Ellictocytes was 1+, Eosinophil
Mamawof25
in
CLL Support
6 years ago
Sickle Cell trait pain
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
MrsReese
in
Sickle Cell Society
6 years ago
New here - advice needed please!
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?
barton444
in
Pernicious Anaemia Society
6 years ago
Stem Cell Transplants
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
Paul123456
in
MPN Voice
6 years ago
Intrinsic Factor vs Parietal Cell Antibodies
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
topher2018
in
Pernicious Anaemia Society
6 years ago
WBC %
May be a silly question but had bloods today and was wondering about the WBC % I have 82% Lymphocytes (27.2) out of WBC 33.2 how high can this percentage be and what is the normal range? Also Basophils 0.3% Had a few minor infections recently which is why I am a little concerned. Thanks in advance
May be a silly question but had bloods today and was wondering about the WBC % I have 82% Lymphocytes (27.2) out of WBC 33.2 how high can this percentage be and what is the normal range? Also Basophils 0.3% Had a few minor infections recently which is why I am a little concerned. Thanks in advance
Hevs333
in
CLL Support
6 years ago
And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
sondya
in
PMRGCAuk
6 years ago
Waking after neurotoxicity
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after Stem Cell Transplant. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks. He recently emerged from coma is very weak and is still not able to speak or utter any sound
My dad suffered from neurotoxicity, pneumonia, and a fungal infection after Stem Cell Transplant. He had a unexpected and terrible reaction to anti-rejection medications and has been in a coma/ICU for 6 weeks. He recently emerged from coma is very weak and is still not able to speak or utter any sound
skatergirl
in
ICUsteps
6 years ago
My new CLL Treatment
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
umpireman
in
CLL Support
6 years ago
Interesting Question for the Psychiatrists and Geneticists Out There
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
I have always wanted to ask these two closely related questions; especially since my Psychiatrist told me that he had never heard of any situation even remotely close to mine and/or of any studies related at all to it. I am now a 54-year-old man with ADD. My symptoms are mainly "tactile" and "attention
strawbjt
in
CHADD's Adult ADHD Support
6 years ago
Rituximab
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
My wife and APS - Looking for help
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
Newcomer
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Feelsolow
in
CLL Support
6 years ago
HG and platelet number for starting therapy
My doctor recommended me that chemotherapy should be started because my number of hemoglobin went down less than 11.0 g/dl (it is international criterion for starting therapy) to 10.8 g/dl. However, I do not want to start therapy now. I want to ask a question to especially someone who has experience
My doctor recommended me that chemotherapy should be started because my number of hemoglobin went down less than 11.0 g/dl (it is international criterion for starting therapy) to 10.8 g/dl. However, I do not want to start therapy now. I want to ask a question to especially someone who has experience
Miee
in
CLL Support
6 years ago
10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Crime: Pastor With 5 SS Children Receives Judgment July 6
For the past 6 years, Pastor Abel Olukayode Adewale, 57, has been embroiled in legal tussles against one of Nigeria’s biggest and most powerful banks. The whole saga began on March 5 2012, when the Apostolic Church pastor received an alert for the sum of N1 million on his account with Wema Bank Plc.
For the past 6 years, Pastor Abel Olukayode Adewale, 57, has been embroiled in legal tussles against one of Nigeria’s biggest and most powerful banks. The whole saga began on March 5 2012, when the Apostolic Church pastor received an alert for the sum of N1 million on his account with Wema Bank Plc.
sicklecellnews
in
Sickle Cell Society
6 years ago
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