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Cutaneous T cell lymphoma (CTCL)
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Good news- got approved for zarxio shots for entire year! Buh bye neutropenia!
Hooray finally something positive :) in addition my oncologist dr Fang just called said there is no transformed lymphoma still just SLL and waiting on the FISH results still .I also was able to make an appt w lymphoma specialist May 14 at Rutgers Cancer Instutute - Dr. Strair . I had a very productive
Hooray finally something positive :) in addition my oncologist dr Fang just called said there is no transformed lymphoma still just SLL and waiting on the FISH results still .I also was able to make an appt w lymphoma specialist May 14 at Rutgers Cancer Instutute - Dr. Strair . I had a very productive
Luckyliss
in
CLL Support
6 years ago
Am I in crisis?
I have been suffering from occasional foot swelling and severe pain, for about 4-5yrs. It has recently become more frequent and more painful. Body is sore and always tired. However... I was told by doctor as a teen I have the sickle trait. My mother says I have sickle cell. Can trait become actual sickle
I have been suffering from occasional foot swelling and severe pain, for about 4-5yrs. It has recently become more frequent and more painful. Body is sore and always tired. However... I was told by doctor as a teen I have the sickle trait. My mother says I have sickle cell. Can trait become actual sickle
SarahXo
in
Sickle Cell Society
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
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Vitamin D may help immunotherapy drugs work better
Interesting interview with Dr. James Fleet on AICR website : https://tinyurl.com/y7u293vh
Interesting interview with Dr. James Fleet on AICR website : https://tinyurl.com/y7u293vh
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Greetings from Melbourne
Hi all, Just reaching out to the CLL community. This is a great site and need help I am a fairly fit 47 year old and 18 months ago I was diagnosed with Synovial Sarcoma in the palm of my left hand. I lost my index finger and had radiotherapy at the Alfred hospital in Melbourne, Australia. I have just
Hi all, Just reaching out to the CLL community. This is a great site and need help I am a fairly fit 47 year old and 18 months ago I was diagnosed with Synovial Sarcoma in the palm of my left hand. I lost my index finger and had radiotherapy at the Alfred hospital in Melbourne, Australia. I have just
Trav_Aus_1970
in
CLL Support
6 years ago
Here it is. Times piece today on CLL and access to drugs. Skip dumb comments....
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
romarin
in
CLL Support
6 years ago
Hodgkins Lymphoma versus Non-Hodgkins Lymphoma
There are important differences between the two diagnoses explained here: https://tinyurl.com/yd2yrvn2
There are important differences between the two diagnoses explained here: https://tinyurl.com/yd2yrvn2
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Stem cell transplant outcomes
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
jane13
in
MPN Voice
6 years ago
High GGT post treatment for Acute Myeloid Leukaemia
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hidden
in
British Liver Trust
6 years ago
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines http://www.cancernetwork.com/prostate-cancer/immunotherapy-prostate-cancer-where-do-we-go-herepart-1-prostate-cancer-vaccines?rememberme=1&elq_mid=783&elq_cid=46147&GUID=9788B328-44C7-46BA-B5C5-6194C08E4B16
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines http://www.cancernetwork.com/prostate-cancer/immunotherapy-prostate-cancer-where-do-we-go-herepart-1-prostate-cancer-vaccines?rememberme=1&elq_mid=783&elq_cid=46147&GUID=9788B328-44C7-46BA-B5C5-6194C08E4B16
JLS1
in
Advanced Prostate Cancer
6 years ago
Any bowel problems with GPA?
Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness. But the problem continues and have had a couple of episodes of near incontince of faeces. And deep rectal pain. Just wondered if any one else has had similar symptoms.
Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness. But the problem continues and have had a couple of episodes of near incontince of faeces. And deep rectal pain. Just wondered if any one else has had similar symptoms.
ludo
in
Vasculitis UK
6 years ago
reducing
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
arvine
in
PMRGCAuk
6 years ago
CAR-T coming to OSU Medical Center
Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T (Chimeric Antigen Receptor – T cell) therapy is to become a reality at the James hospital at OSU Medical Center for CLL. I heard over a year ago that it was in the planning but while I was
Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T (Chimeric Antigen Receptor – T cell) therapy is to become a reality at the James hospital at OSU Medical Center for CLL. I heard over a year ago that it was in the planning but while I was
ThreeWs
in
CLL Support
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
ADVISE ON HOW TO STOP STOMACH PAIN IN MY 5 YR SICKLE CELL CHILD
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
mosesmale
in
Sickle Cell Society
6 years ago
Hair
Does anyone eles have real dry hair. Mine has never been so blah. Tangles so easy. My sister has non hopkins lymphoma. She has lost her hair in chemotherapy and i have long hair i was going to get it cut for her. But its so dry.
Does anyone eles have real dry hair. Mine has never been so blah. Tangles so easy. My sister has non hopkins lymphoma. She has lost her hair in chemotherapy and i have long hair i was going to get it cut for her. But its so dry.
My-life
in
PBC Foundation
6 years ago
LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
wmay13241
in
CLL Support
6 years ago
Transplant Viability
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
Laird_Mac
in
AMN EASIER
6 years ago
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