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Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
4 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
4 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
4 months ago
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Tonsil Stones from IVF Treatment - Anyone Else?
I began my first cycle of IVF back in the summer of 2020. Whilst in treatment and injecting Gonal F, I started having tonsil stones. These are debris that builds up and sit in your tonsils causing some discomfort. I ended up doing 4 rounds of IVF so obviously the drugs/hormones messed up my body somewhat
I began my first cycle of IVF back in the summer of 2020. Whilst in treatment and injecting Gonal F, I started having tonsil stones. These are debris that builds up and sit in your tonsils causing some discomfort. I ended up doing 4 rounds of IVF so obviously the drugs/hormones messed up my body somewhat
anz07
in
Fertility Network UK
7 months ago
Stuck cough on the throat
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Candor8
in
PSP Association
4 months ago
Cold Calling
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
Tykelady
in
Lung Conditions Community Forum
4 months ago
Cold weather trigger?
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Garaidh
in
Atrial Fibrillation Support
4 months ago
Rituximab- cold- flu - covid
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
ks1966
in
NRAS
4 months ago
chest infection
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
kalgoorlie
in
PMRGCAuk
4 months ago
Period flu?
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Ps-endo
in
Endometriosis UK
4 months ago
Thrush 3 days before FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
raverg
in
Fertility Network UK
7 months ago
COPD and Pneumonia
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
nyla668
in
Lung Conditions Community Forum
4 months ago
Asthma
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
E44E44
in
Asthma Community Forum
4 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
7 months ago
Side effects of Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
Several persons on this site have already helped me but I want to ask the general following about the use of Buprenorphine for treatment of RLS. and its augmentation After testing in vain, pregabalin, oxycodone several other less well advertised RLS treatments I got agreement from my GP to try Buprenorphine
davchar23
in
Restless Legs Syndrome
7 months ago
Issues sleeping, and other things
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
PW_R
in
Lung Conditions Community Forum
4 months ago
Bad cold sore should I wait to inject Methotrexate?
I was at the dentist last Thursday - not my usual one - and she was a bit rough! She split my lip in the corner and it's came out with large cold sores which are not healing! 😔 I'm considering not injecting today to give them a better chance to heal - what do you think? They're sore and I can't eat
I was at the dentist last Thursday - not my usual one - and she was a bit rough! She split my lip in the corner and it's came out with large cold sores which are not healing! 😔 I'm considering not injecting today to give them a better chance to heal - what do you think? They're sore and I can't eat
marie66
in
NRAS
4 months ago
Pneumonia and collapsed lung after catching the ‘100 day cough’
For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in hospital. I was diagnosed with Lupus in February 2022. I’ve had a rough ride for the past few years, ending up in hospital every year for one thing
For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in hospital. I was diagnosed with Lupus in February 2022. I’ve had a rough ride for the past few years, ending up in hospital every year for one thing
Loopy1971
in
LUPUS UK
4 months ago
Antibiotics and Increasing B12
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
LynetteinUSA
in
Pernicious Anaemia Society
7 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
4 months ago
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