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COVID and discontinuing Actemra
Have been off prednisone for over a month now and doing well. Tested positive Saturday for COVID (thought it was a cold). I am still taking my weekly Actemra injections, the last was Friday. The Actemra information sheet suggests discontinuing shots if ill. My last few blood tests have had extremely
Have been off prednisone for over a month now and doing well. Tested positive Saturday for COVID (thought it was a cold). I am still taking my weekly Actemra injections, the last was Friday. The Actemra information sheet suggests discontinuing shots if ill. My last few blood tests have had extremely
Abikitty
in
PMRGCAuk
1 year ago
Got covid - when test turns negative?
I am 53 yrs male. I had successful transplant 10 months ago. Everything has been going well by God Grace. Thankful for new life, living every moment with gratitude. Unfortunately, I got covid 12 days ago. I had fever for initial 2 days and then all subsided. My transplant team stopped my Mycophenolate
I am 53 yrs male. I had successful transplant 10 months ago. Everything has been going well by God Grace. Thankful for new life, living every moment with gratitude. Unfortunately, I got covid 12 days ago. I had fever for initial 2 days and then all subsided. My transplant team stopped my Mycophenolate
Live_Positive
in
Kidney Transplant
1 year ago
covid vaccines
hello everyone. I’m in the U.S. and completed BR in 11/18 and am in remission according to my labs so I have been getting all my screenings done. A month ago a skin cancer (basal cell) was removed from my right cheek just below my eye. In 4 weeks I have to have Mohs surgery to the site which means
hello everyone. I’m in the U.S. and completed BR in 11/18 and am in remission according to my labs so I have been getting all my screenings done. A month ago a skin cancer (basal cell) was removed from my right cheek just below my eye. In 4 weeks I have to have Mohs surgery to the site which means
Ladydi49
in
CLL Support
1 year ago
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Elevated Liver Enzymes Due to COVID?
Has anyone had COVID (Omicron) and then had elevated liver enzymes 3 to 4 months later?
Has anyone had COVID (Omicron) and then had elevated liver enzymes 3 to 4 months later?
Pain12345
in
Pernicious Anaemia Society
1 year ago
Covid Booster - For Info
Hi all. Just to let you know I had my 8th Covid Jab yesterday (6 Pfizer and 2 Moderna so far, yesterday was Pfizer), managed to book appointment using the app no problem but what I did notice was 2 things. A/ Much less choice of vaccination centre, I ended up driving 23 miles. B/ More stringent checks
Hi all. Just to let you know I had my 8th Covid Jab yesterday (6 Pfizer and 2 Moderna so far, yesterday was Pfizer), managed to book appointment using the app no problem but what I did notice was 2 things. A/ Much less choice of vaccination centre, I ended up driving 23 miles. B/ More stringent checks
Investigator1
in
Vasculitis UK
1 year ago
struggling with ET symptoms after covid
Hi all. I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of interferon weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide. Before mid
Hi all. I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of interferon weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide. Before mid
FashionLover
in
MPN Voice
1 year ago
Is it safe to have another Covid vaccination?
A month after having my 4th Covid vaccination & a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’. As this would be my first vaccination since being diagnosed I would be interested to
A month after having my 4th Covid vaccination & a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’. As this would be my first vaccination since being diagnosed I would be interested to
Sherlock57
in
PMRGCAuk
1 year ago
Covid
I am lying in hospital having been here for one month and having just had Covid. I had had PMR for 3 years and back up to 15 mg when back stopped working, had deep sciatica like pains in back and legs and could not rise from pillow nor walk to bathroom. Daughter dialled 111. My O2 of 85 got a 999 ambulance
I am lying in hospital having been here for one month and having just had Covid. I had had PMR for 3 years and back up to 15 mg when back stopped working, had deep sciatica like pains in back and legs and could not rise from pillow nor walk to bathroom. Daughter dialled 111. My O2 of 85 got a 999 ambulance
Abbeynan82
in
PMRGCAuk
1 year ago
Update - I saw rheumologist today
Hello all, I saw the rheumatologist today after being referred by respiratory consultant last week. The ‘take home ‘ was in a nutshell the rheumatologist has ‘low concerns but not zero’ . He believes I have had pneumonia from a covid infection at Christmas I didn’t realise I’d had! He’s reassured that
Hello all, I saw the rheumatologist today after being referred by respiratory consultant last week. The ‘take home ‘ was in a nutshell the rheumatologist has ‘low concerns but not zero’ . He believes I have had pneumonia from a covid infection at Christmas I didn’t realise I’d had! He’s reassured that
Bronte007
in
Lung Conditions Community Forum
1 year ago
Covid vaccine number 7
Hello everyone, I’m going to have my seventh covid vaccine next week, I take the Jak inhibitor Filgotinib. My white cells and neutrophils occasionally dip but nothing spectacular. My question to the community is, is there a limit to the number of covid vaccines one can have? Thanks everyone:)
Hello everyone, I’m going to have my seventh covid vaccine next week, I take the Jak inhibitor Filgotinib. My white cells and neutrophils occasionally dip but nothing spectacular. My question to the community is, is there a limit to the number of covid vaccines one can have? Thanks everyone:)
Pastels
in
NRAS
1 year ago
COVID and/or vaccine-induced PMR
Hi everyone, I met with my rheumatologist recently and she said some interesting things about what she and other rheumys in her department are seeing with regards to COVID-induced (and COVID vaccine-induced) myalgias, including PMR. Basically, what she said is that the patients she sees who present
Hi everyone, I met with my rheumatologist recently and she said some interesting things about what she and other rheumys in her department are seeing with regards to COVID-induced (and COVID vaccine-induced) myalgias, including PMR. Basically, what she said is that the patients she sees who present
sferios
in
PMRGCAuk
1 year ago
I don’t believe it!!
I was all set for a speed run this morning; only 3 long runs away from HM. I don’t usually run on Fridays but my Thursday run had to be postponed because of a friend’s funeral. She was a lovely gracious human dynamo of a lady from church who won the Queen’s Award for volunteering. She didn’t run, but
I was all set for a speed run this morning; only 3 long runs away from HM. I don’t usually run on Fridays but my Thursday run had to be postponed because of a friend’s funeral. She was a lovely gracious human dynamo of a lady from church who won the Queen’s Award for volunteering. She didn’t run, but
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
1 year ago
1st full blown flare on Tocilizumab….😞
Yesterday at about 10am I started to get mild pain in my left foot, cuboid/metatarsal joint. It became more and more painful as the day progressed, till I was limping badly. I have been getting very minor flares for months, the roaming pain kind of thing where it hits a joint, hurts for a wee while
Yesterday at about 10am I started to get mild pain in my left foot, cuboid/metatarsal joint. It became more and more painful as the day progressed, till I was limping badly. I have been getting very minor flares for months, the roaming pain kind of thing where it hits a joint, hurts for a wee while
Brushwork
in
NRAS
1 year ago
CDC OKs COVID-19 vaccine, allows older adults and immunocompromised adults to get second dose Bi Valent vaccine on Wednesday, April 19, 2023
CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and immunocompromised adults to get second dose of the updated vaccine U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Media Statement For Immediate Release: Wednesday, April 19, 2023 - (
All my nearby CVS pharmacies had stock
CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and immunocompromised adults to get second dose of the updated vaccine U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Media Statement For Immediate Release: Wednesday, April 19, 2023 - (
All my nearby CVS pharmacies had stock
lankisterguy
Volunteer
in
CLL Support
1 year ago
covid vaccine
hi have been informed to have my spring covid vaccination has anyone else on methotrexate injections had it
hi have been informed to have my spring covid vaccination has anyone else on methotrexate injections had it
Shaza123
in
PMRGCAuk
1 year ago
Covid
Hi there, just wanted to double check, im 2 days into positive result for covid, feel absolutely awful, im hoping all the aches are covid related and /or my upper body is the recovery of my first yoga class in 3 years, last Friday!Im on 4mg pred apparently according to endo with adrenal insufficiency
Hi there, just wanted to double check, im 2 days into positive result for covid, feel absolutely awful, im hoping all the aches are covid related and /or my upper body is the recovery of my first yoga class in 3 years, last Friday!Im on 4mg pred apparently according to endo with adrenal insufficiency
Lovetobe
in
PMRGCAuk
1 year ago
New: Health and Social Care Secretary statement on Covid-19 vaccination of at-risk children aged 6 months to 4 years
Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the Health and Social Care Secretary Steve Barclay has issued a statement formally accepting it. The JCVI advises that children aged 6 months to 4 years
Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the Health and Social Care Secretary Steve Barclay has issued a statement formally accepting it. The JCVI advises that children aged 6 months to 4 years
Nicola-NRAS
Partner
in
JIA-at-NRAS
1 year ago
Covid Injections reactivated RA
Having spent the past 11+ years with my RA in remission being managed by 17.5 Mtx and Hydroxychloroquine. The Constant Covid Jabs of the past 2years have reactivated my crazy immune system to a point where my medication has had to be changed. (Which has as yet failed to bring it back under control)
Having spent the past 11+ years with my RA in remission being managed by 17.5 Mtx and Hydroxychloroquine. The Constant Covid Jabs of the past 2years have reactivated my crazy immune system to a point where my medication has had to be changed. (Which has as yet failed to bring it back under control)
Baileyparklands
in
NRAS
1 year ago
loss of taste
been a while i have been having some changes. still having leg pains and cramps mainly at night. muscle relaxants help some. starting to have some swallowing problems, i have to keep a drink nearby at all times. sleep problems a big problem. some nights i don't sleep at all, but on average I don't sleep
been a while i have been having some changes. still having leg pains and cramps mainly at night. muscle relaxants help some. starting to have some swallowing problems, i have to keep a drink nearby at all times. sleep problems a big problem. some nights i don't sleep at all, but on average I don't sleep
horseandwolf
in
PSP Association
1 year ago
I've got Covid - any suggestions on when I can do a Thyroid Function Test?
My Covid has been confirmed with a swab test. I've got a test kit for a standard finger-prick TFT (Thyroid Function Test) i.e. TSH + Free T4 + Free T3. I want to do it ASAP without Covid interfering too much with the results (or at all, if possible). When would be a good time to do it after recovery
My Covid has been confirmed with a swab test. I've got a test kit for a standard finger-prick TFT (Thyroid Function Test) i.e. TSH + Free T4 + Free T3. I want to do it ASAP without Covid interfering too much with the results (or at all, if possible). When would be a good time to do it after recovery
humanbean
in
Thyroid UK
1 year ago
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