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continuing the journey
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
FiArt12X
in
CLL Support
18 hours ago
EMDR THERAPY
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
kanzler1987
in
Anxiety and Depression Support
2 days ago
Sorry it has been a while with an update on Ruxolitinib
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
wendycu
in
MPN Voice
3 days ago
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Quite the CLL journey
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
FiArt12X
in
CLL Support
3 days ago
does it ever completely go away?
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
Kalee55
in
Heal My PTSD
3 days ago
Japan and stem cells treatment
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Bluebell2022
in
Cure Parkinson's
3 days ago
feeling Weird
lately I’ve been off as most of you may know. I’m on 30mg of fluox and 2mg of Xanax it helps but. It as much as I would like for it too. I get dizzy feel derealization and Dizzy at times. I know it’s all anxiety I’ve been dealing with it for almost 15yrs and I hate it so Much.
Don’t get me wrong [
lately I’ve been off as most of you may know. I’m on 30mg of fluox and 2mg of Xanax it helps but. It as much as I would like for it too. I get dizzy feel derealization and Dizzy at times. I know it’s all anxiety I’ve been dealing with it for almost 15yrs and I hate it so Much.
Don’t get me wrong [
Mindfulnessxo
in
Anxiety and Depression Support
5 months ago
My endo management kit
I've unknowingly had endo for about 10 years, dismissed early on I just ignored the fact my periods sometimes felt like a miscarriage. About 3 years ago it got so bad I couldn't ignore it anymore and 2 years ago I left work. In these two years I've tried everything I could think of to change it. I can't
I've unknowingly had endo for about 10 years, dismissed early on I just ignored the fact my periods sometimes felt like a miscarriage. About 3 years ago it got so bad I couldn't ignore it anymore and 2 years ago I left work. In these two years I've tried everything I could think of to change it. I can't
x_emily_x
in
Endometriosis UK
6 months ago
please help- blood and mucus is stool. Desperate!
i have been suffering from terrible gas and bloating for 6 months and tested high positive for sibo so left it to that. Got better with the antibiotics, resumed normal life and since then am until now on a lowfod map diet for the sibo. 7 months and half later have lost 5 kg ( which i atributed to the
i have been suffering from terrible gas and bloating for 6 months and tested high positive for sibo so left it to that. Got better with the antibiotics, resumed normal life and since then am until now on a lowfod map diet for the sibo. 7 months and half later have lost 5 kg ( which i atributed to the
Sofia81
in
Colon Cancer Connected
7 months ago
Update re: Gallbladder issue.
I am having my gall bladder removed on the 9th any advice or tips on recovery would be very welcome. Backstory is that I have had intermittent issues for several years. Mentioned to my GP (Male) who to be honest did not seem very interested in my symptoms, was given PPI for "indigestion" as blood
I am having my gall bladder removed on the 9th any advice or tips on recovery would be very welcome. Backstory is that I have had intermittent issues for several years. Mentioned to my GP (Male) who to be honest did not seem very interested in my symptoms, was given PPI for "indigestion" as blood
Manderson27
in
British Liver Trust
5 months ago
Avastin following taxol/carbo
Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discuss going onto avastin however, I'm not sure whether that is needed at this stage. I have ovarian 4b and have been debunked. My ca125 levels were 7 before the last chemo 3 weeks ago. I feel very fit and healthy.I've not had
Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discuss going onto avastin however, I'm not sure whether that is needed at this stage. I have ovarian 4b and have been debunked. My ca125 levels were 7 before the last chemo 3 weeks ago. I feel very fit and healthy.I've not had
Bendywendy1
in
My Ovacome
8 months ago
TBill
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
TBill
in
Advanced Prostate Cancer
9 months ago
has anyone had a lumpectomy with MBC?
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Georgelila
in
SHARE Metastatic Breast Cancer
9 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
21 days ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
22 days ago
Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
9 months ago
gallstones?
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
Gardeningbuff
in
British Liver Trust
6 months ago
Newly diagnosed
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
Stacky66
in
Prostate Cancer Network
9 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
25 days ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
26 days ago
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