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update/ advice
hi all, so a small update, I'm now 30+6 things seem to be going well so far 🤞 I'm having twice weekly ctg for wellbeing as wasn't feeling any movement until just after 24 weeks even then they were faint, I've been monitored since 26 week with ctg. I am somedays still only having faint movement some
hi all, so a small update, I'm now 30+6 things seem to be going well so far 🤞 I'm having twice weekly ctg for wellbeing as wasn't feeling any movement until just after 24 weeks even then they were faint, I've been monitored since 26 week with ctg. I am somedays still only having faint movement some
AngelMum1
in
Pregnancy and Parenting Support
5 months ago
Sick and tired
I'm 57, had anxiety and depression as long as I can remember. I'm so tired. I don't want to deal with it anymore. My family is tired of it so I don't talk about it. I have run my friends off in a big fight early this year. My boyfriend is sweet and tries to understand but doesn't get it. My doc wants
I'm 57, had anxiety and depression as long as I can remember. I'm so tired. I don't want to deal with it anymore. My family is tired of it so I don't talk about it. I have run my friends off in a big fight early this year. My boyfriend is sweet and tries to understand but doesn't get it. My doc wants
Oshunlvr
in
Anxiety and Depression Support
5 months ago
Does kidney function get affected by this?
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
FormulaRob
in
Advanced Prostate Cancer
9 months ago
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Today's Rabbit Hole has ended in ThyForlife - a new(ish) thyroid health tracking app
I was looking into apps and bluetooth enabled digital thermometers on another post. As I went further I came across this app ThyForlife, developed by a Canadian Thyroid Cancer survivor. It is still an ongoing and developing project. It sets out to enable the user to track a variety of thyroid-related
I was looking into apps and bluetooth enabled digital thermometers on another post. As I went further I came across this app ThyForlife, developed by a Canadian Thyroid Cancer survivor. It is still an ongoing and developing project. It sets out to enable the user to track a variety of thyroid-related
Sneedle
in
Thyroid UK
9 months ago
Metastatic Bone Cancer
Hello again, I started using Google to find out this info but then I recalled the community here telling me to NOT do that - I understood when I started reading the first post - ugg. Anyways, my question to you today is why can't we zap or otherwise kill the prostate cancer that has spread to the
Hello again, I started using Google to find out this info but then I recalled the community here telling me to NOT do that - I understood when I started reading the first post - ugg. Anyways, my question to you today is why can't we zap or otherwise kill the prostate cancer that has spread to the
Yzinger
in
Advanced Prostate Cancer
9 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
7 months ago
hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
steve5441
in
CLL Support
5 months ago
Help getting B12 injections
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
Flowers2
in
Pernicious Anaemia Society
7 months ago
WHY ???????????
Like i have said, Pluvicto is the new method in fighting my long-time prostate cancer. I was diagnosed in 1999. This disease is so hard on the body and mind that it makes you want to throw in the towel, and scream, "Fights Over". " I was sitting in the television room , slouched down in my chair with
Like i have said, Pluvicto is the new method in fighting my long-time prostate cancer. I was diagnosed in 1999. This disease is so hard on the body and mind that it makes you want to throw in the towel, and scream, "Fights Over". " I was sitting in the television room , slouched down in my chair with
Kian28
in
Advanced Prostate Cancer
9 months ago
NMSC is globally the most common cancer
NMSC - Non-melanoma Skin Cancer is globally the most common form of cancer. 1 in 4 men and 1 in 5 women in the UK will be diagnosed with NMSC in their lifetime - and if diagnosed once, you could have many more! Learning how to spot the early signs and symptoms is vital, as if detected, diagnosed and
NMSC - Non-melanoma Skin Cancer is globally the most common form of cancer. 1 in 4 men and 1 in 5 women in the UK will be diagnosed with NMSC in their lifetime - and if diagnosed once, you could have many more! Learning how to spot the early signs and symptoms is vital, as if detected, diagnosed and
SkcinHQ
Partner
in
Skin Cancer UK
9 months ago
stressor after stressor
I went to the er last night because my heart rate was 153 and everything came back ok. They gave me medicine to lower my hr and sent me home. I’ve felt so anxious and my chest has been hurting ever since. I can’t seem to shake it. I just feel jittery and weird feeling under my ribs
I went to the er last night because my heart rate was 153 and everything came back ok. They gave me medicine to lower my hr and sent me home. I’ve felt so anxious and my chest has been hurting ever since. I can’t seem to shake it. I just feel jittery and weird feeling under my ribs
anonleo
in
Anxiety and Depression Support
5 months ago
Caffeine and Anxiety
I had an extra pot of coffee yesterday and noticed my anxiety was way worse than today, when I had only one cup. I did some research and see that there is a link between caffeine and anxiety/panic attacks. Does caffeine make your symptoms worse? I might have to stop consuming it altogether, or in
I had an extra pot of coffee yesterday and noticed my anxiety was way worse than today, when I had only one cup. I did some research and see that there is a link between caffeine and anxiety/panic attacks. Does caffeine make your symptoms worse? I might have to stop consuming it altogether, or in
davidthecoder
in
Anxiety and Depression Support
5 months ago
Belittling your Anxiety
I use to fear getting my anxiety attacks! Then something I read that has helped me over the years has been to belittle my Anxiety. Now, I have not fixed my problem but it did help. I used to hide that I had anxiety or intrusive thinking from everyone! Then I read a book that taught me to not
I use to fear getting my anxiety attacks! Then something I read that has helped me over the years has been to belittle my Anxiety. Now, I have not fixed my problem but it did help. I used to hide that I had anxiety or intrusive thinking from everyone! Then I read a book that taught me to not
Coolvibes311
in
Anxiety Support
5 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
3 hours ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
3 days ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
5 days ago
BAD NEWS
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
8 days ago
Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻‍♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻‍♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
11 days ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
11 days ago
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