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After NHL and BMT
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Onedayatatime2
in
Non Hodgkin's Lymphoma Friends
6 years ago
Need info on raising red cell count
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Lorray
in
CLL Support
6 years ago
Been there done that!
Hi my name is Dave I had a kidney transplant 5 months ago I feel I need to talk about my exspearance!i was on dialyses for 7 years and the last 4 I had more appointments than you could shake a stick at! Now I had my transplant 5 months ago there’s no more dialyses no more appointments! It’s amazing but
Hi my name is Dave I had a kidney transplant 5 months ago I feel I need to talk about my exspearance!i was on dialyses for 7 years and the last 4 I had more appointments than you could shake a stick at! Now I had my transplant 5 months ago there’s no more dialyses no more appointments! It’s amazing but
Gotthecall_123
in
Kidney Dialysis
6 years ago
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Disclosing CKD
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Socky
in
Early CKD Support
6 years ago
Pathos Report from Transurethral Urinary Bladder Tumor Resection
Finishing the surgery, my urologist thought the bladder tumors were entirely superficial and it shouldn’t affect my status for getting a lung transplant (the parameters are cancer free, smoke free for at least two years). Turns out some were low grade, but some were high grade (actively growing). Very
Finishing the surgery, my urologist thought the bladder tumors were entirely superficial and it shouldn’t affect my status for getting a lung transplant (the parameters are cancer free, smoke free for at least two years). Turns out some were low grade, but some were high grade (actively growing). Very
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
17w1d
Hello, I’m 17 weeks and 1 day pregnant with our first, last week we got told baby has very low amniotic fluid, not sure how it’s low I have no been leaking, I have drank 4-5 leters of water a day, i now started drinking coconut water in hopes that next week the fluid will re gain a bit . Has anyone had
Hello, I’m 17 weeks and 1 day pregnant with our first, last week we got told baby has very low amniotic fluid, not sure how it’s low I have no been leaking, I have drank 4-5 leters of water a day, i now started drinking coconut water in hopes that next week the fluid will re gain a bit . Has anyone had
Miraclebabe
in
Pregnancy and Parenting Support
6 years ago
Double lung transplant patients advice
Hi looking for any advice on a double lung transplant my neice needs in the near future from people that have had this operation please
Hi looking for any advice on a double lung transplant my neice needs in the near future from people that have had this operation please
Concernedunc
in
Lung Conditions Community Forum
6 years ago
SICKLE CELL NEWSWEEK
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
sicklecellnews
in
Sickle Cell Society
6 years ago
Transplant
Can a liver and kidney transplant patient use hymilayn salt on foods?
Can a liver and kidney transplant patient use hymilayn salt on foods?
SexMachine
in
Kidney Disease
6 years ago
So what does a liver transplant scar look like?
Just wondering??
Just wondering??
Brett11
in
British Liver Trust
6 years ago
My story
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
WYOAnne
NKF Ambassador
in
Kidney Transplant
6 years ago
Prescription exemption
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
CAZBERRY59
in
Thyroid UK
6 years ago
TIPS offered as alternative to transplant
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
hawksey
in
British Liver Trust
6 years ago
Surgery May Send Me to the Back of the Queue.
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
cll w/ a twist - Stem cell
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
chemosuxs
in
CLL Support
6 years ago
post liver op.
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
alfredthegreat
in
British Liver Trust
6 years ago
13 months post-transplant and quality of life
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
AndyEssex
in
British Liver Trust
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
Love your liver roadshow
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Liberty82
in
British Liver Trust
6 years ago
Inadvertently joined weight loss
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hidden
in
Weight Loss Support
6 years ago
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