Hello!
I'm a three time kidney transplant recipient. I was hospitalized and diagnosed with ESRD as an otherwise healthy 21 year old (no known cause). I I was on dialysis (hemodialysis and peritoneal dialysis) briefly before my first transplant four months later. Four months after that, my transplanted kidney was removed because of a neurofibroma growing on it. I was back on dialysis for another year, waiting for a kidney. We had hopes for a quick transplant from an aunt until a last minute positive cross-match. My second transplant (from an unrelated living donor) lasted 14 years when chronic kidney failure put me back on dialysis. I was due for a transplant after about 8 months when we had ANOTHER last minute positive cross-match - that set me back. I finally had my third transplant in June of 2016, and (after some surgical complications) I've been healthy since. I'm interested in sharing and listening stories related to this insane journey. I've dealt with all kinds of rare and strange kidney issues, including skin warts after transplant, CMV, inguinal hernia, renal cell carcinoma in my failed kidneys (unrelated to my initial kidney failure!), two nephrectomies, anemia, and the indescribable isolation of having a chronic illness as a young person. I look forward to connecting!