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Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
TiredTavern
in
Myalgic Encephalomyelitis Community
4 months ago
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid?
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Shewulf
Administrator
in
LDN Research Trust
4 months ago
COVID
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
lbenmaor
in
My MSAA Community
4 months ago
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New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
4 months ago
starting again!
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
Aclotintrainers
in
Anticoagulation Support
4 months ago
Lurgy again!
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
Gthants
in
Bridge to 10K
4 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
9 months ago
Covid injections
Are the next covid injections due soon
Are the next covid injections due soon
Spacecat1
in
Lung Conditions Community Forum
4 months ago
After 10+ years I've been discharged from the Vascular Department
Morning AllI live in London, UK and just before Christmas was discharged from a Vascular Department in a London hospital. I had been under their care for over 10 years, this was the place I went to have the xray where they inject the dye between your toes that will show how and light up how your lymphatic
Morning AllI live in London, UK and just before Christmas was discharged from a Vascular Department in a London hospital. I had been under their care for over 10 years, this was the place I went to have the xray where they inject the dye between your toes that will show how and light up how your lymphatic
Applekenke172
in
LSN
4 months ago
I’m currently having investigations into Endo-sorry long post but need some advice or any reassurance:)
Hi I’m Sara and I’ve just turned 22, this month, and over the last 3 years I have symptoms (similar to the ones listed for endometriosis) and they have become more severe or more frequent/longer episodes that have been stopping me from working or functioning properly (exercise, sex, going out); it has
Hi I’m Sara and I’ve just turned 22, this month, and over the last 3 years I have symptoms (similar to the ones listed for endometriosis) and they have become more severe or more frequent/longer episodes that have been stopping me from working or functioning properly (exercise, sex, going out); it has
Butterfly0509
in
Endometriosis UK
9 months ago
Accidently took 2 Calquence tablets last night instead of one
I've been on Calquence for about 1.5 years. Started with 1 pill 2x daily and eventually cut back to just the evening dose. The morning dose was more than I could handle. Messed up my stomach, digestion and I got so tired that I couldn't really accomplish any thing during the day due to extreme fatigue
I've been on Calquence for about 1.5 years. Started with 1 pill 2x daily and eventually cut back to just the evening dose. The morning dose was more than I could handle. Messed up my stomach, digestion and I got so tired that I couldn't really accomplish any thing during the day due to extreme fatigue
rwsehorn
in
CLL Support
10 months ago
Chest specialists Cyprus/Holiday insurance advice
Hi, I haven't travelled abroad since late 2019, when I was diagnosed with bronchiectasis, due to Covid concerns. I know many people on this forum have travelled extensively since the start of the pandemic and I'm planning to go to wedding in Cyprus in June - I understand Greek Cypriots are more
Hi, I haven't travelled abroad since late 2019, when I was diagnosed with bronchiectasis, due to Covid concerns. I know many people on this forum have travelled extensively since the start of the pandemic and I'm planning to go to wedding in Cyprus in June - I understand Greek Cypriots are more
Leafsweeper
in
Lung Conditions Community Forum
4 months ago
Hypothyroid symptoms but normal test results
Thank you in advance for any insight. These are my test results, sourced from a private company - Randox. I would be hugely grateful for any help in interpreting these or my symptoms. I have experienced severe weight gain - which NOTHING will shift including weight loss drugs. I have had a hormonal
Thank you in advance for any insight. These are my test results, sourced from a private company - Randox. I would be hugely grateful for any help in interpreting these or my symptoms. I have experienced severe weight gain - which NOTHING will shift including weight loss drugs. I have had a hormonal
Scribed
in
Thyroid UK
4 months ago
Leukocytes, protein and blood.
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Vqueen
in
Vasculitis UK
2 months ago
Covid for 3rd time
hi I have just tested positive for Covid can I get anti virals for a 3rd time. Going to call dr but I thought I'd ask you guys first
hi I have just tested positive for Covid can I get anti virals for a 3rd time. Going to call dr but I thought I'd ask you guys first
Dawnee28
in
NRAS
4 months ago
Smell Training (Olfactory Training)
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Bolt_Upright
in
Cure Parkinson's
4 months ago
Also pill anxiety!
Its one thing to have anxiety then on top of it taking the medication for first time anxiety. I pace call my friend to talk me into taking and have to take an ativan to take the antidepressant! No issues taking Ativan lol. But to add to it I took cipralex 6 mths ago and horribke reaction and took them
Its one thing to have anxiety then on top of it taking the medication for first time anxiety. I pace call my friend to talk me into taking and have to take an ativan to take the antidepressant! No issues taking Ativan lol. But to add to it I took cipralex 6 mths ago and horribke reaction and took them
Ladytrue
in
Anxiety and Depression Support
10 months ago
covid and metratrexate for RA
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
Mybirthday1975
in
NRAS
4 months ago
TINGLY FEET
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Wallydb
in
PMRGCAuk
4 months ago
Feeling deflated
I had my follow up with the consultant today, after having my ultrasound in August. He said that my uterus, fallopian tubes and ovaries look healthy, and that if there is endometriosis then it is ‘superficial’. He said that surgery isn’t necessary because of this. He wants me to come off the implant
I had my follow up with the consultant today, after having my ultrasound in August. He said that my uterus, fallopian tubes and ovaries look healthy, and that if there is endometriosis then it is ‘superficial’. He said that surgery isn’t necessary because of this. He wants me to come off the implant
loc26
in
Endometriosis UK
10 months ago
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