ckd stage 3 that is me now

[Pattysckd69]

hello i had covid two years ago ended up with renal failure kidneys working at 15% they are now at 50% after being on 80 mg of predinsone now on 5mg. not on dialysis have numerous medical conditions just need to loose 50 pounds because of prednisone i am 69 and need none pills to get healthy. i need advise and others going thru this. I also now have prednisone indused type 2 diabetes. i am so depressed.

[bumblebee_tuna]

Stay positive, you survived a very difficult illness! Are you seeing a Nephrologist? I know you don’t want more drugs, but Farxiga is worth looking into for your case.

[honeybug]

🤗♥️🥰🙏🕊🌿🦋🌸

[orangecity41 NKF Ambassador]

Keep us posted on your CKD journey. On the CKD prescribed diet over time I lost 30 lbs. May Doctor told me would lose 25 lbs. I also get a walk in most days.

[Bassetmommer NKF Ambassador]

Prednisone is a menace, but a necessary one. Once your system is really clear of the drug, you will have an easier time of losing weight. Many drugs will cause weight gain, so have your pharmacist review them with you. It is near impossible to lose weight on some drugs. I put on 50 pound plus with certain meds over the years and it took about a year to get that weight off. And it has stayed off. I too had induced diabetes. Take a look at Ozempic with your doctor. Really helps with diabetes and with weight loss. But there are things you have to learn about with side effects.

I know it may seem like a lot. However, 50% of your kidney function is great. With proper meds and lifestyle changes you can get your weight down. The thing with diabetes is that you can get rid of it. And with CKD, you can improve and stop the decline.

[Pattysckd69 in reply to Bassetmommer]

thank you

[honeybug in reply to Bassetmommer]

🤗♥️🥰🙏🕊🌿🌸🦋

[Hidden in reply to Bassetmommer]

This is from diabetes.org.uk: Is steroid-induced diabetes permanent? Many people will find that their blood sugar levels return to a healthy range when they stop taking steroids. But for others, steroid-induced diabetes can continue even after you've stopped your treatment. This is more likely if you are at higher risk of type 2 diabetes.

[Bassetmommer NKF Ambassador in reply to Hidden]

Interesting thing... once your diabetic, it is hard to not be labeled diabetic. I was not diabetic at all before and only after the issues with the medications, I was labeled diabetic. Now, even though my A1c is down to 5.3 and they are weaning me off of insulin, they still are saying I am diabetic. What makes me laugh even more is when a doctor tried to say that the diabetes caused the CKD...... just so wrong. Big money in diabetes so let's label everyone and get them on the drugs.

[Blackknight1989 in reply to Bassetmommer]

That’s the truth…when the idiot here made that mistake because I asked for Jardiance…he said when I asked “you are not diabetic…yet when I messaged the nurse she confirmed he diagnosed me as T2D but “managing it well”. I had a come-apart and as I do (but only occasionally) I spent more time editing my reply because I ran out of available characters replying…this was after his well thought out reply when I asked about a renal dietitian of “diet doesn’t matter in stage 4.” Well the nurse ASSURED me it wasn’t in my “permanent” medical record. I just received my upgraded disability rating from the VA “CKD now rated at 80% due to “”well controlled T2D””. A1C 5.6 at the highest level…ever. While all other labs are a sea of red when the labs FOR THAT APPOINTMENT were drawn my blood glucose was 52…52! I’ve had some real winners in my journey but this one, while not as bad as the ER idiot was a close second…plus he fired me because, “didn’t I know HE WAS THE SPECIALIST why would I read the EMPA-Kidney study…”. Sometimes I think COVID changed the world NOT BECAUSE it was the super-bug we seeded our liberties too but because 9 months locked in together made narcissistic a##s more Good King Narcissis!

[Bassetmommer NKF Ambassador in reply to Blackknight1989]

OMG, this sounds so familiar. I think you are correct that Covid changed everything. When I was working, we had over 250 registered nurses, and another 200plus home health aides in our employ. They mandated COVID boosters or leave, and over 75 RNs left in a month. They have since dwindled down to less than 100 RNs employed and 40 HHAs. NO one wants to work. Now they hire anyone with a pulse. I saw an employment ad for a dialysis technician and all it required was a high school diploma. NO way I want someone like that doing my dialysis. I had an echo done this summer by a lady whose background was as a vet tech. She just did the training for running the machine. She was fine there, but her personal touch was very rough and she was not particularly compassionate, until we started talking about our dogs. She literally ripped my skin. Not being rude but being a professional educator, I do have some standards.

[CuriousCKD]

I am sorry you’re going through this, but I am so happy you’re back up to 50% function. I am learning to re-direct my negative thoughts and energies through research and forcing myself into better nutrition. It has been an extremely difficult learning curve, but it comes down to wanting to live as long as possible. I have come to realize that I had allowed myself to worry and be fearful, which is draining. It is a lonely situation no matter who is around, so it is up to me to bug my doctors, and ask lots of questions. A year ago, I could barely walk 50 steps with a walker. Now, for the first time in a long while, I made it to 1.02 miles in 37 minutes. I was euphoric! I am determined to improve. I also list 50 pounds with the help of Ozempic, but I must say, I got pretty sick for a couple of weeks. At this point, I’m trying to maintain the loss. I hope I have given you some encouragement. Don’t give up! 🙏✝️💯

[honeybug in reply to CuriousCKD]

🤗♥️🙏🕊🌿🌸🦋

[userotc]

A qualified Nutritional Therapist specialising in weight loss can not only help with that but also likely drug-free health.

[Porter20]

I too caught Covid in 2020 bad version, long hauler, lost my kidneys and had heart failure. Found out about the heart failure whilst going through routine tests for transplant. I was put on Entestro for 8 months received my transplant after 15 months of PD on 12/14/21. I am coming up in my 2 year anniversary. I also had Covid again in 9/22. It was like a bad cold. Thankfully no treatments for it either. I was going to do monoclonal antibodies but when I needed them there were none available.

Praise God everyday that I feel like my old self again! 🙏🏻🥰

[honeybug in reply to Porter20]

🤗♥️🙏🕊🌿🌸🦋

[honeybug]

🤗♥️🥰🙏🕊🌿🌸🦋

[Coniahwilcox]

Hey. Please dont feel bad. I am 67 and was told I had to lose 25 pounds right now. I almost laughed. But I said okay- lets see what I can do. I have been working hard on this since June. I have only lost twelve pounds but am encouraged. I have gone to a plant based whole food diet which is hard enough but then added intermittent fasting to that! Listen. I am a foodie. So losing meat was hard enough but I have started walking and going to the gym up to six days a week (half and half and some times less). I am at stage three and a half- 42%- but so far have been able to keep it there for seven years! From what I have been able to figure out- our kidneys struggle with meat. This is where our BUN goes high. But when I try vegetarian or vegan- I have been able to get my BUN down to normal and my creatinine to 1.14! Didn't understand what that meant at that time so I screwed up and my numbers changed. I am waiting to do my numbers again in November and am hoping I am proving this is the right direction. This is not easy. I wanted easy and have shot the gamut. Did not pay off well most of the time!

[renegade70]

Did you have kidney problems prior to covid? It sounds like you may have had acute kidney injury due to covid? I'm not medically trained and not trying to diagnose.

[edm101]

stay positive, you are not alone.