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Partner has Portal Vein Thrombosis - Any Advice Please?
Good morning from snowy Bristol! I have been on this group for a while, mostly watching and occasionally contributing, but most of you are all so we’ll informed my input would just repeat other replies. Forgive me, but I have some questions and a dilemma. Fair warning there’s quite a bit to process
Good morning from snowy Bristol! I have been on this group for a while, mostly watching and occasionally contributing, but most of you are all so we’ll informed my input would just repeat other replies. Forgive me, but I have some questions and a dilemma. Fair warning there’s quite a bit to process
Mufan99
in
British Liver Trust
7 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
7 months ago
Can't get warm
In dialysis today I had them raise the temp on the machine from 36 to 37 as I was so cold. When I got in the car to drive home I turned the temp all the way up. I have sweatpants on, 2 shirts and a hoodie with a light jacket and a blanket on my legs. I'm drinking a cup of coffee and still can not stop
In dialysis today I had them raise the temp on the machine from 36 to 37 as I was so cold. When I got in the car to drive home I turned the temp all the way up. I have sweatpants on, 2 shirts and a hoodie with a light jacket and a blanket on my legs. I'm drinking a cup of coffee and still can not stop
horsie63
in
Kidney Dialysis
7 months ago
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Conservative treatment
Hi I’ve just been told that my dad who is 93 can’t have dialysis because of a lot of other health problems. His egfr is 6. His treatment will just be palliative although he’s not suffering from many symptoms at the minute. Does anyone have experience of how low egfr has to get before it is fatal
Hi I’ve just been told that my dad who is 93 can’t have dialysis because of a lot of other health problems. His egfr is 6. His treatment will just be palliative although he’s not suffering from many symptoms at the minute. Does anyone have experience of how low egfr has to get before it is fatal
Hidden
in
Kidney Disease
7 months ago
Contradicting Dietary Advice
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
GosportNancy29
in
Kidney Disease
7 months ago
Contradicting Dietary advice
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
GosportNancy29
in
British Heart Foundation
7 months ago
gfr 6
with a gfr of 6 what is the life expectancy if you don’t want dialysis
with a gfr of 6 what is the life expectancy if you don’t want dialysis
Hidden
in
Kidney Disease
7 months ago
Yes, definitely
Losing weight using a healthy diet (no Rx) and exercise can definitely improve kidney function. Btw, most people with ckd die from a heart condition before reaching dialysis necessity (90%). Healthy diet and exercise greatly reduces cardiovascular risks for 98% of people.
Losing weight using a healthy diet (no Rx) and exercise can definitely improve kidney function. Btw, most people with ckd die from a heart condition before reaching dialysis necessity (90%). Healthy diet and exercise greatly reduces cardiovascular risks for 98% of people.
PensacolaSharon
in
Kidney Disease
7 months ago
I need some help with this
I am having the most painful but weird cramping. It is only a night and it is getting worse, not better. Yesterday I had them and I did not have dialysis because we infiltrated the fistula, AGAIN. We thought it was the iron I was taking, but I stopped that last week. These cramps are not in my calves
I am having the most painful but weird cramping. It is only a night and it is getting worse, not better. Yesterday I had them and I did not have dialysis because we infiltrated the fistula, AGAIN. We thought it was the iron I was taking, but I stopped that last week. These cramps are not in my calves
Bassetmommer
in
Kidney Dialysis
7 months ago
Don't panic
Don't panic. Read books. Start with Learn the Facts about Kidney Disease by Steven Rosansky, MD. He thoroughly covers it in all stages. Although you need to make changes in your life, preserve your remaining kidney function, you're not going to die next week and probably never end up on dialysis. Don't
Don't panic. Read books. Start with Learn the Facts about Kidney Disease by Steven Rosansky, MD. He thoroughly covers it in all stages. Although you need to make changes in your life, preserve your remaining kidney function, you're not going to die next week and probably never end up on dialysis. Don't
PensacolaSharon
in
Kidney Disease
7 months ago
17 months and counting...
I've lived without kidneys for 17 months and am doing very well! All my labs are were they should be and I have dialysis at home. The routine gets a bit monotonous, but that's life.
I've lived without kidneys for 17 months and am doing very well! All my labs are were they should be and I have dialysis at home. The routine gets a bit monotonous, but that's life.
KidneyFreeQueen
in
Kidney Transplant
7 months ago
Kidney Transplant
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
LisaGrehn
in
Kidney Transplant
7 months ago
First time on dialysis
I should have posted this here. I did originally posted it in the site for dialysis. But if you are looking toward dialysis, you would be on this site first. So, this is my journal though my first time on dialysis. You can see the replies if you can get on the HealthUnlocked for Kidney Dialysis. I know
I should have posted this here. I did originally posted it in the site for dialysis. But if you are looking toward dialysis, you would be on this site first. So, this is my journal though my first time on dialysis. You can see the replies if you can get on the HealthUnlocked for Kidney Dialysis. I know
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
Heart failure (HFpEF) and CKD with EGFR drop from 52 to 38 in 8 months - help!
Hi All, Just looking for some advice as the GP is not much help. My father has had CKD for a good few fews ago stage 3A since we found out 15 years ago. However in June last year he went in for open heart valve surgery. He had complications after surgery and was put back on a ventilator for a week
Hi All, Just looking for some advice as the GP is not much help. My father has had CKD for a good few fews ago stage 3A since we found out 15 years ago. However in June last year he went in for open heart valve surgery. He had complications after surgery and was put back on a ventilator for a week
diasy
in
Kidney Disease
8 months ago
Hemodialysis question
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
horsie63
in
Kidney Dialysis
8 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
8 months ago
Interest in home dialysis
Hi there, I'm looking to better understand the dialysis experience in hopes of improving it, especially better understanding home dialysis pain points. Would anyone be open to connecting to discuss their experience, or taking < 3 minutes to complete this survey? https://1eo2uvqe1o8.typeform.com/to/XfW4C9rN
Hi there, I'm looking to better understand the dialysis experience in hopes of improving it, especially better understanding home dialysis pain points. Would anyone be open to connecting to discuss their experience, or taking < 3 minutes to complete this survey? https://1eo2uvqe1o8.typeform.com/to/XfW4C9rN
HollyBurwick
in
Kidney Dialysis
8 months ago
Introduction
I joined a month or so ago. Got a very nice email from someone who really supports this website pushing me to contribute. Normally don't do this but here goes. I'm 65 and retired. Found out I had kidney disease in 1984. Untreated strep infection (theory then). Got bad quick. Asked family on Christmas
I joined a month or so ago. Got a very nice email from someone who really supports this website pushing me to contribute. Normally don't do this but here goes. I'm 65 and retired. Found out I had kidney disease in 1984. Untreated strep infection (theory then). Got bad quick. Asked family on Christmas
twicerecipient
in
Kidney Transplant
8 months ago
Mom and ICU
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
wcase372
in
ICUsteps
8 months ago
Stopping dialysis
Hi all. Is there anyone who has stopped dialysis through choice? I am currently in talks with my team re stopping. Just wondered what any of you think.
Hi all. Is there anyone who has stopped dialysis through choice? I am currently in talks with my team re stopping. Just wondered what any of you think.
Mydognala
in
Dialysis Support
8 months ago
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