Back home from hospital

[horsie63]

Got released Thursday after dialysis and back home by 530 pm. Took forever to get the discharge paperwork, get the IV out and the supplies to change my dressing.

I have several follow up appointments and new meds. I med to gain 10-15 pounds and get my strength back. For the most part my labs are good but my protein is low. I got tired of hospital food.

While I was in my BP was high (go figure) but this morning it’s low after taking my new BP med. I’ll be tracking it for my appointment with my primary.

Thank everyone for their prayers and well wishes I truly appreciate them all.

[Porter20]

🙏🏻

[Darlenia]

Hugs to you, Horsie63. Glad you're back home - that's the the best place in the world. I chuckled about it "taking forever to get the discharge papers" and related. It literally does take hours! I don't understand how some people "walk out of the hospital" like it's a snap of the fingers. Not our experience. Anyway, may your days become sunnier and sunnier as you figure out new diets and new routines. Sending positivity your way!

[Beachgirl32]

So glad you are home yeah waiting on discharge papers are forever. My friend was in the er the other day she said I’m just waiting on papers and then I can leave it should be in a few minutes she text me yeah you are right discharge papers 2 hours later .

[Bassetmommer]

Yeah, glad you are out and feeling better. Sent you a bunch of ideas for gaining weight. I hope you saw them. Take care and make sure you rest. Even if you can sleep while in the hospital, it is exhausting.

[horsie63 in reply to Bassetmommer]

I did see them and saved the post. Thank you for sharing.

[Jayhawker]

So glad to hear you’re back home! When I have little appetite for meat I drink a high protein shake. I like pure protein shakes. But there are a variety of options. Some are better for persons on dialysis etc. I’ll add the link to Davita below. But you should also talk with a dietician at your dialysis center. I added liquid egg whites to a lot of my food, like steel cut oatmeal and so forth.I still drink pure protein shakes today. They gave 30g protein per shake.

Jayhawker

davita.com/diet-nutrition/a...

[Jayhawker]

Your post reminded me of my Mother and her final hospital stay. They had found her abdominal cavity o poop ached with malignant tumors; nothing they could do but keep her comfortable as her cancer had become terminal, they says she’d be discharged later that day. They didn’t get the paperwork processed. Mom was frustrated. The next day we were still waiting for the official discharge. I finally went home to get some lunch.

I had just gotten home and my phone rang. It was my Mother. I’ll never forget what she said, “You have to come and get me. I’ve been bad.” I started laughing. My Mother was the most compliant, patient person I knew. I couldn’t fathom her “being bad.” I asked her what had happened. She said she’d tell me when I got there and which entry she’d be waiting at.

I learned that she had dressed herself, packed her bag, walked to the nurses station and said that they had her insurance information so she wasn’t running out on her bill but that she was leaving. She then began walking to the elevator.

To this day I think about my mother “being bad” and taking things into her urn hands That was my Mon!!!!

Jayhawker

[RhenDutchess123 in reply to Jayhawker]

They told her to go home and be comfortable...nothing more they could do..but wait for our stupid paperwork???...I would have let the first day...they stole 2 of her last days from her....bless her heart ❤

[Jayhawker in reply to RhenDutchess123]

Yeah, it was crazy!

Jayhawker

[RhenDutchess123 in reply to Jayhawker]

Did the hospital realize how that sounded...she needed their "discharge" to go home and die...I wonder if they told God that...

[Jayhawker in reply to RhenDutchess123]

Well said! Mom made it clear that all they could do for her at that point was let her go home.

Jayhawker

[RhenDutchess123 in reply to Jayhawker]

How long did she live after leaving ?

[Jayhawker in reply to RhenDutchess123]

She was terminal when discharged. She lived a little over 3 months. I was able to take her back to her home town, Long Lake, NY, to see her remaining siblings. But she faded quickly and wanted to be back home to see her children and grandchildren. So we only stayed in New York about a week. About a week after we returned my brother and his family arrived from Oregon. We spent a week together. Mom slept a lot during that week.

A few weeks later she had deteriorated to the point that either my sister or I stayed with her in her home daily. That lasted about a month. Then Mom was admitted to the hospital. She had wanted to be at the hospital with comfort care rather than in hospice.

They kept her comfortable. I have two vivid memories from her time there.

First, she woke up one evening as I was watching the news. She wasn’t too alert by that point but had a moment of awareness. She saw the date on the TV screen and said, .”I have to die soon. I’m almost out of money.” A frugal Mennonite to the end…

Then the last conversation I had with her. Her doctors had told us she would likely pass that night. She motioned me to the bed. I leaned in expecting her to tell me she loved me or something like that. Instead she said, “It’s not too late to marry.” I really did start laughing. Of course, I realized that she didn’t want me to be alone. But it was funny.

I often say that my Dad taught me how to live with serious medical problems. My Mother showed me how to face terminal illness with strength and peace. Invaluable life lessons.

Jayhawker

[RhenDutchess123 in reply to Jayhawker]

Oh my Jayhawker..You are such a remarkable person...Your Mom was lucky to have you and your beautiful Spirit

[jodaer in reply to Jayhawker]

That happened to me too. My own doctor said I was good to go but the hospitalist was dragging her feet as I had some high BP. Which was caused by the delay. I finally walked up to the nurses station and said I'm leaving AMA. The nurse immediately got a release for me to sign and I was out of there. By the time I got home my BP was about 120/70

[Jayhawker in reply to jodaer]

Yeah, they just don’t seem to get themselves organized…

Jayhawker

[RhenDutchess123]

Glad to hear you are home...rest and get better...we are all rooting for you

[Erifre]

Hello Horsie!, we are very happy to know that you are back home!, we have kept you in or prayers, you are a strong and resilient person, the worst already passed, so now try to rest and take care, we send you tons of good vibes and wish you a speedy recovery as well! Don’t forget to keep us posted and if you need anything, count all of us in!, this community loves you very much! You have always been very nice and caring when you give advice, so good things come back and I have no doubt these are going to reach you soon!

[jodaer]

Horsie, so glad you made it home. Sending tons of healing energy and hugs your way.

[drmind]

Yay, you're home. So glad to hear this. Now, get at it eating all those suggested proteins and stuff. Keep us posted.

[Jamok]

So glad to hear you are home!

[cs65 NKF Ambassador]

Thank goodness you're home! Now the healing can begin.