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Continuous Ambulatory Peritoneal Dialysis
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Time management skills during dialysis
Hello there, I am in search of better ways to manage my CKD. Doing peritoneal dialysis three time a week at nighttime. How do you keep up with your demands and schedule? What do you find works the best for you while struggling with ESRD? Anyone loves to journal this stage of our lives?
Hello there, I am in search of better ways to manage my CKD. Doing peritoneal dialysis three time a week at nighttime. How do you keep up with your demands and schedule? What do you find works the best for you while struggling with ESRD? Anyone loves to journal this stage of our lives?
mhawk123
in
Kidney Dialysis
5 years ago
Can i prevent dialysis
Hi, I am 45, got diagnosed with type-2 diabetes last year, hypertension since 2014. Discovered low LVEF in 2014 but recovered and its high normal now. My creatinine was around 1.9-2 in 2014 but it has shot up recently as i became careless with diet. It was 2.32 in May 2019, 2.84 in July 2019 and 3.29
Hi, I am 45, got diagnosed with type-2 diabetes last year, hypertension since 2014. Discovered low LVEF in 2014 but recovered and its high normal now. My creatinine was around 1.9-2 in 2014 but it has shot up recently as i became careless with diet. It was 2.32 in May 2019, 2.84 in July 2019 and 3.29
AshPan
in
Early CKD Support
5 years ago
End stage renal failure
Hi everyone, I’m new to the site but have scrolled through for the past hour and would like to comment on the positive attitudes that is coming through. For the last 17 years I knew I had kidney disease although for the first 10 I can quite easily say I was in the dark as my Dr told me very little,
Hi everyone, I’m new to the site but have scrolled through for the past hour and would like to comment on the positive attitudes that is coming through. For the last 17 years I knew I had kidney disease although for the first 10 I can quite easily say I was in the dark as my Dr told me very little,
jg2015
in
Early CKD Support
5 years ago
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Malawi study confirms lasting impact of life-saving technology.
National CPAP program improves survival of newborns with respiratory illness. Malawi’s national adoption of affordable, rugged, neonatal CPAP technology as a part of routine hospital care resulted in sustained improvements in the survival of babies with respiratory illness, according to a new study
National CPAP program improves survival of newborns with respiratory illness. Malawi’s national adoption of affordable, rugged, neonatal CPAP technology as a part of routine hospital care resulted in sustained improvements in the survival of babies with respiratory illness, according to a new study
2greys
in
Lung Conditions Community Forum
5 years ago
Ambulance Transport to Dialysis Sucks
Hi everyone, My name is Steven and I’m an EMT that works for an ambulance company primarily transporting patients to and from dialysis. I’m here because I feel like the ambulance ride to & from dialysis is not a pleasant experience, and that it could be improved immensely. What are some things you hate
Hi everyone, My name is Steven and I’m an EMT that works for an ambulance company primarily transporting patients to and from dialysis. I’m here because I feel like the ambulance ride to & from dialysis is not a pleasant experience, and that it could be improved immensely. What are some things you hate
ImproveDialysis
in
Kidney Dialysis
5 years ago
Suggestion for first travel on PD
Hi, I'm located in the US. This year has been a rough one going into end stage and then starting dialysis in June and with tons of disappointments on transplant donor search / testing. I'm still on manual PD but am looking forward to planning a trip with my boyfriend so we can still feel some normalcy
Hi, I'm located in the US. This year has been a rough one going into end stage and then starting dialysis in June and with tons of disappointments on transplant donor search / testing. I'm still on manual PD but am looking forward to planning a trip with my boyfriend so we can still feel some normalcy
curiousmind2019
in
Kidney Dialysis
5 years ago
Dialylsis
So I need dialysis. What's the difference of process between a central line and a PD line? I know where and how they are fixed on but not sure what the difference in process is? I'm already on Immunosuppressant so I'm concert by infection. Thanks
So I need dialysis. What's the difference of process between a central line and a PD line? I know where and how they are fixed on but not sure what the difference in process is? I'm already on Immunosuppressant so I'm concert by infection. Thanks
Munf
in
Kidney Disease
5 years ago
When is the right time?
I have eGFR of 11%, and am working full time. I'm generally very tired, and am starting to feel nauseous a lot of the time. My consultant isn't suggesting dialysis yet, and I would like some advice as to when is the right time to take this step. I know that dialysis brings it's own problems, so don't
I have eGFR of 11%, and am working full time. I'm generally very tired, and am starting to feel nauseous a lot of the time. My consultant isn't suggesting dialysis yet, and I would like some advice as to when is the right time to take this step. I know that dialysis brings it's own problems, so don't
JoanneLi
in
Kidney Dialysis
5 years ago
Egfr rapidy falling
My egfr function has dropped from 18% to 13% on 3 days. I have been drinking as much water as I can and try to eat salt as Drs has advised my sodium is very low and suggest I'm not taking enough in. So anyway phoned kidney until the asked me to come in to take a look at me. Giving me some fluid. Saw
My egfr function has dropped from 18% to 13% on 3 days. I have been drinking as much water as I can and try to eat salt as Drs has advised my sodium is very low and suggest I'm not taking enough in. So anyway phoned kidney until the asked me to come in to take a look at me. Giving me some fluid. Saw
Munf
in
Kidney Disease
5 years ago
Looking for answers
my son is on dialysis and he's locked up I feel so helpless. Take mine Lord. i need help they want money so they provide dialysis, I want my son. I Called around even wrote Michelle Obama today the news stations in my state just needing answers. Didnt kno such a place like even existed good looking
my son is on dialysis and he's locked up I feel so helpless. Take mine Lord. i need help they want money so they provide dialysis, I want my son. I Called around even wrote Michelle Obama today the news stations in my state just needing answers. Didnt kno such a place like even existed good looking
gerardmcneal01
in
Kidney Dialysis
5 years ago
I need encouragement
I just got to stage 3b of CKD (IGA) (36 GFR). and also just became a dad for the 4th time. It is all sinking in and I am extremely depressed and anxious. I should be home with my new baby, other babies and happy wife but all I can do is cry... and I am not like that... ever... don’t think I have cried
I just got to stage 3b of CKD (IGA) (36 GFR). and also just became a dad for the 4th time. It is all sinking in and I am extremely depressed and anxious. I should be home with my new baby, other babies and happy wife but all I can do is cry... and I am not like that... ever... don’t think I have cried
MPStilwell
in
Kidney Disease
5 years ago
Cycler alarm goes off 4 times a night during drain cycle
My 76 year old husband is new to at home peritoneal dialysis on the cycler every night. Every night, he is awakened by the alarm four times a night when the cycler reaches the drain portion of the treatment. He must shut the alarm, put his feet on the floor and move up and down before the drain cycle
My 76 year old husband is new to at home peritoneal dialysis on the cycler every night. Every night, he is awakened by the alarm four times a night when the cycler reaches the drain portion of the treatment. He must shut the alarm, put his feet on the floor and move up and down before the drain cycle
mspworker
in
Kidney Dialysis
5 years ago
Cycler alarm goes off 4 times every night at drain cycle
My 76 year old husband is new to at home peritoneal dialysis on the cycler every night. Every night, he is awakened by the alarm four times a night when the cycler reaches the drain portion of the treatment. He must shut the alarm, put his feet on the floor and move up and down before the drain cycle
My 76 year old husband is new to at home peritoneal dialysis on the cycler every night. Every night, he is awakened by the alarm four times a night when the cycler reaches the drain portion of the treatment. He must shut the alarm, put his feet on the floor and move up and down before the drain cycle
mspworker
in
Kidney Dialysis
5 years ago
Over 80, a month in the ICU
Dear all, I joined this group in order to find more information from people living through similar experience of having a loved one in intensive care. My dad is 83 and he’s been hospitalised for 30 days now. He is in what seems to be vegetative state followed by two weeks in a coma. He was there due
Dear all, I joined this group in order to find more information from people living through similar experience of having a loved one in intensive care. My dad is 83 and he’s been hospitalised for 30 days now. He is in what seems to be vegetative state followed by two weeks in a coma. He was there due
El_Violet
in
ICUsteps
5 years ago
Life beyond ITU
Hi everyone, so I’m new to this group so this is my first post. My key message is no matter how bleak things look keep fighting, life changing events can open new horizons. I am very lucky having received first class care and surrounded by caring family and friends. After 10 years of health service encounters
Hi everyone, so I’m new to this group so this is my first post. My key message is no matter how bleak things look keep fighting, life changing events can open new horizons. I am very lucky having received first class care and surrounded by caring family and friends. After 10 years of health service encounters
Longbottom
in
ICUsteps
5 years ago
Question re: Sleeping meds for insomnia?
Hi: I just moved from Boston to California and my new primary is a PA who at my 2nd visit in 2 weeks (very taxing, a bit overkill & ? Insurance abuse) - typically I saw my old primary once a year=wellness, flushot etc! Anyhow original cancer was in 2010–hate opioids so I’ve dealt with post surgical pain
Hi: I just moved from Boston to California and my new primary is a PA who at my 2nd visit in 2 weeks (very taxing, a bit overkill & ? Insurance abuse) - typically I saw my old primary once a year=wellness, flushot etc! Anyhow original cancer was in 2010–hate opioids so I’ve dealt with post surgical pain
Bailey3266
in
SHARE Metastatic Breast Cancer
5 years ago
Health Update - Massive Drop in eGFR
My latest lab results: ACR = 27.5, increased from 18.1 six months ago. GFR = 88, decreased from 103 six months ago. Creatinine = 96 ml/mmol, increased from 84 six months ago. My GP said I need not worry. It still fluctuates in the normal range, especially after an increased dose of Losartan. It could
My latest lab results: ACR = 27.5, increased from 18.1 six months ago. GFR = 88, decreased from 103 six months ago. Creatinine = 96 ml/mmol, increased from 84 six months ago. My GP said I need not worry. It still fluctuates in the normal range, especially after an increased dose of Losartan. It could
SamuelChin
in
Early CKD Support
5 years ago
Camping with panic attacks
It's about 68 degrees with a cool breeze. I'm supposed to be camping. I told my friends I'd meet them at this spot that's an hour and a half away. Kids are looking forward and so is my wife. I was going to white knuckle it and just go. All it took was my wife saying " We're not going to get there until
It's about 68 degrees with a cool breeze. I'm supposed to be camping. I told my friends I'd meet them at this spot that's an hour and a half away. Kids are looking forward and so is my wife. I was going to white knuckle it and just go. All it took was my wife saying " We're not going to get there until
dom410
in
Anxiety and Depression Support
5 years ago
Weight Struggle
I can't lose weight. I follow a dialysis diet fairly closely. I admit sweets are my weakness. I try to eat more fruits than "goodies" & am good for awhile. I have used a good diary, consulted with my dietitian, more walking, all the things I'm supposed to do. I have to many "slip ups". Night eating is
I can't lose weight. I follow a dialysis diet fairly closely. I admit sweets are my weakness. I try to eat more fruits than "goodies" & am good for awhile. I have used a good diary, consulted with my dietitian, more walking, all the things I'm supposed to do. I have to many "slip ups". Night eating is
Shelbert66
in
Kidney Dialysis
5 years ago
Kidney Transplant
Hello everyone, I am 48 yrs old women in Indiana. I need to know how long does it take to get a kidney transplant? My son is wanting to get tested and the actual transplant center that I'm going to it seem like they're taking all day or getting things going I am currently not on dialysis yet but I'm
Hello everyone, I am 48 yrs old women in Indiana. I need to know how long does it take to get a kidney transplant? My son is wanting to get tested and the actual transplant center that I'm going to it seem like they're taking all day or getting things going I am currently not on dialysis yet but I'm
Rene70
in
Kidney Disease
5 years ago
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