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Continuous Ambulatory Peritoneal Dialysis
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Anyone here have obstructive sleep apnea too?
I have OSA along with my RLS. Since sleeping with a CPAP machine hooked up to my face is already difficult, adding worsening RLS to the mix has left me exhausted. Just wondering if any of you struggle with both conditions? My Dad had both conditions.....in his day there was no CPAP machine, and I
I have OSA along with my RLS. Since sleeping with a CPAP machine hooked up to my face is already difficult, adding worsening RLS to the mix has left me exhausted. Just wondering if any of you struggle with both conditions? My Dad had both conditions.....in his day there was no CPAP machine, and I
KickininAz
in
Restless Legs Syndrome
5 years ago
Moving forward with Stem Cell therapy
I've been stage five CKD for over a year now and have been told to "go get on dialysis and get on the transplant list as there's nothing more we can do for you". Although my health is otherwise good enough to get approved for a transplant, there's at least a seven year waiting list for a cadaver kidney
I've been stage five CKD for over a year now and have been told to "go get on dialysis and get on the transplant list as there's nothing more we can do for you". Although my health is otherwise good enough to get approved for a transplant, there's at least a seven year waiting list for a cadaver kidney
steve680
in
Kidney Disease
5 years ago
Sharing Experience
I just want to communicate with other people that are on it who have been on hemo dialysis for 5+ years as I have been.
I just want to communicate with other people that are on it who have been on hemo dialysis for 5+ years as I have been.
Shelbert66
in
Kidney Dialysis
5 years ago
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Sex tablet's do not work of Viagra connect
Yes I have trying so many times to get Erections still no luck I tried Viagra connect they said should work all I got was nothing at all I have now asking for my Doctor advice on how this can be repaired has I am been ask to marry a Chinese girl who want babies from me until I get older soon so I am
Yes I have trying so many times to get Erections still no luck I tried Viagra connect they said should work all I got was nothing at all I have now asking for my Doctor advice on how this can be repaired has I am been ask to marry a Chinese girl who want babies from me until I get older soon so I am
Petersilver
in
Men's Health Forum (Penis Health)
5 years ago
Worrying mother in a strange city learning to take care of her single kidney diebetic daughter
My twenty seven year old daughter was diagnosed diebetic two years ago then discovered with only one kidney and that one kidney is deteriorating. The doctor is talking about dialysis and transplant. I am so sad seeing my child so young but had to needle herself and take pills by handful. After graduation
My twenty seven year old daughter was diagnosed diebetic two years ago then discovered with only one kidney and that one kidney is deteriorating. The doctor is talking about dialysis and transplant. I am so sad seeing my child so young but had to needle herself and take pills by handful. After graduation
Hidden
in
Kidney Disease
5 years ago
Trying to get used to Cpap mask
Hi, I’m mainly on the thyroid page of health unlocked but I saw someone had mentioned sleep apnoea and this site so I strolled over. I also suffer from polymyalgia which is inflammation of the muscles and am on pain patches and co-codamol, unfortunately the patches fall off in hot weather and co-codamol
Hi, I’m mainly on the thyroid page of health unlocked but I saw someone had mentioned sleep apnoea and this site so I strolled over. I also suffer from polymyalgia which is inflammation of the muscles and am on pain patches and co-codamol, unfortunately the patches fall off in hot weather and co-codamol
Goldengirl01
in
Sleep Matters
5 years ago
New here, on dialysis
Hello, I'm a 52 year old female in Greece, 1 year on Dialysis now, after a journey of failed fistula creation attempts and finally a graft placement due to very thin veins. Started dialysis last July after an 18 year diet struggle to keep function of the one kidney I have. (the other one was lost for
Hello, I'm a 52 year old female in Greece, 1 year on Dialysis now, after a journey of failed fistula creation attempts and finally a graft placement due to very thin veins. Started dialysis last July after an 18 year diet struggle to keep function of the one kidney I have. (the other one was lost for
PaolaS
in
Kidney Dialysis
5 years ago
s
Has anyone had to deal with the issue of stop taking the drug, Lithium, to delay dialysis or decided to stay on Lithium until her kidneys were destroyed, but felt a little better mentally in other ways? Lithium was a drug that helped me tremendously in my life, but in the end is destroying my kidneys
Has anyone had to deal with the issue of stop taking the drug, Lithium, to delay dialysis or decided to stay on Lithium until her kidneys were destroyed, but felt a little better mentally in other ways? Lithium was a drug that helped me tremendously in my life, but in the end is destroying my kidneys
color123
in
Kidney Dialysis
5 years ago
A Summer Day on Manual PD
Drain overnight exchange at 7am and immediately start the day exchange. Eat breakfast (replenish the protein loss with egg white bagel and protein bars). Start preparing and packing for day out. Drain at 10am and start driving to the beach. Get to beach at 1pm. Enjoy a nice grilled hamburger with fries
Drain overnight exchange at 7am and immediately start the day exchange. Eat breakfast (replenish the protein loss with egg white bagel and protein bars). Start preparing and packing for day out. Drain at 10am and start driving to the beach. Get to beach at 1pm. Enjoy a nice grilled hamburger with fries
curiousmind2019
in
Kidney Disease
5 years ago
First week on hemo - no energy, cramping, limited mobility
Hi everyone, I just completed my first week on dialysis. I had 4 days from Friday the 19th to Friday the 26th. First session was with my fistula last 3 days were on a Permacath as the nurse was unable to use my fistula after the first day (says it needs to be raised). A Couple of notes: - My BP usually
Hi everyone, I just completed my first week on dialysis. I had 4 days from Friday the 19th to Friday the 26th. First session was with my fistula last 3 days were on a Permacath as the nurse was unable to use my fistula after the first day (says it needs to be raised). A Couple of notes: - My BP usually
NoskieAJ
in
Kidney Dialysis
5 years ago
Daughter to father transplant
Hi, I want to donate to my father who is a ESRD patient, not yet on dialysis. He is averse to this unable to bear the idea of accepting a kidney from his own daughter. If any of you have been in this situation and have successfully managed to effect a change in mind of your parent, please help me out
Hi, I want to donate to my father who is a ESRD patient, not yet on dialysis. He is averse to this unable to bear the idea of accepting a kidney from his own daughter. If any of you have been in this situation and have successfully managed to effect a change in mind of your parent, please help me out
LilyInMay
in
Kidney Donation
5 years ago
Struggle to use CPAP
I struggled with poor sleep all my life, but am also a loud snorer. Many mornings I was convinced that I’d had zero sleep, but would be told I’d been snoring all night. Wife often moved to another room & even kids complaining from their rooms. So I went to the doc & had several overnight sleep studies
I struggled with poor sleep all my life, but am also a loud snorer. Many mornings I was convinced that I’d had zero sleep, but would be told I’d been snoring all night. Wife often moved to another room & even kids complaining from their rooms. So I went to the doc & had several overnight sleep studies
knackersyard
in
Sleep Matters
5 years ago
Anyone Else??
I've been on hemo dialysis 5 years (going on 6). I'm on my 2nd graft. I've had my parathyroid removed due to calcium issues. Now my hands tingle & feel like they are going to sleep when I hold a pen or do something with small items (stirring, typing, holding the remote, knitting etc) Has anyone else
I've been on hemo dialysis 5 years (going on 6). I'm on my 2nd graft. I've had my parathyroid removed due to calcium issues. Now my hands tingle & feel like they are going to sleep when I hold a pen or do something with small items (stirring, typing, holding the remote, knitting etc) Has anyone else
Shelbert66
in
Kidney Dialysis
5 years ago
People of HealthUnlocked | Meet Max
[i] Happy Friday everyone! We have a treat for you this week, as Max from our Sleep Matters community has kindly sent us a video of his health journey. Max explains that after months of poor quality sleep, he posted his symptoms in the Sleep Matters community, where another member suggested he should
[i] Happy Friday everyone! We have a treat for you this week, as Max from our Sleep Matters community has kindly sent us a video of his health journey. Max explains that after months of poor quality sleep, he posted his symptoms in the Sleep Matters community, where another member suggested he should
MarketingHU
in
HealthUnlocked Blog
5 years ago
Life update
Hello all! A lot of you have been following my journey through dialysis and recently transplant, and I really appreciate all of the support that you've given! I celebrated 6 months post transplant on 7/8/19, and after lowering my tac to 6mg daily (3 pills 2×/day), switching from Metoprolol to Losartan
Hello all! A lot of you have been following my journey through dialysis and recently transplant, and I really appreciate all of the support that you've given! I celebrated 6 months post transplant on 7/8/19, and after lowering my tac to 6mg daily (3 pills 2×/day), switching from Metoprolol to Losartan
Ladybug_05
in
Kidney Disease
5 years ago
Living with stage 5 ckd without dialysis
Hi I was diagnosed with end stage renal disease in 2007. Since then, I have had no transplant and no dialysis. I am still going strong. My GFR is 12. i am still realtively young (57). As far as I can find, no one has heard of a case like mine. I should not be alive. I was wondering if anyone had some
Hi I was diagnosed with end stage renal disease in 2007. Since then, I have had no transplant and no dialysis. I am still going strong. My GFR is 12. i am still realtively young (57). As far as I can find, no one has heard of a case like mine. I should not be alive. I was wondering if anyone had some
Leektone
in
Kidney Disease
5 years ago
Flecainide - from PIP to 2x100/day now want to get off of it
Hi everyone, My first post on here. I'm reaching out because I've had some issues with Flecainide that my doctors don't acknowledge and I know I'm not crazy. I've had PAF for 30 years. Would have an event maybe once a year or slightly more. Then I gained weight and got severe obstructive sleep apnea
Hi everyone, My first post on here. I'm reaching out because I've had some issues with Flecainide that my doctors don't acknowledge and I know I'm not crazy. I've had PAF for 30 years. Would have an event maybe once a year or slightly more. Then I gained weight and got severe obstructive sleep apnea
Norbu
in
AF Association
5 years ago
Restless legs keeps coming back
My mum has suffered from rls since about 8 years, she's been on many medications and all will work for a while. Recently she was diagnosed with sleep apnea and was using cpap which made all her rls symptoms go away however after 2 months it has returned really bad. I took her to the gp and he has prescribed
My mum has suffered from rls since about 8 years, she's been on many medications and all will work for a while. Recently she was diagnosed with sleep apnea and was using cpap which made all her rls symptoms go away however after 2 months it has returned really bad. I took her to the gp and he has prescribed
Bejwo50
in
Restless Legs Syndrome
5 years ago
Sources for Masks?
I'm not sure this type of post should be made...moderators, feel free to delete, close or let me know if that's the case. I'm wondering if there are 'aftermarket' sources for CPAP masks. I'm guessing not. All sources I am finding online have what appears to be a vendor locked down price (ie. $154.00)
I'm not sure this type of post should be made...moderators, feel free to delete, close or let me know if that's the case. I'm wondering if there are 'aftermarket' sources for CPAP masks. I'm guessing not. All sources I am finding online have what appears to be a vendor locked down price (ie. $154.00)
56_kruiser
in
Sleep Matters
5 years ago
Help with Kt/V dropping
I have been experiencing lowering numbers in my Kt/V labs, and my Renal Nurse doesn't have any specific ideas on how to elevate it again. Here's what has occurred: In August, 2018, my Kt/V was 3.93 (2.0 and higher is the target). In November, 2018, it went down to 1.87. In Feb 2019, it was back up
I have been experiencing lowering numbers in my Kt/V labs, and my Renal Nurse doesn't have any specific ideas on how to elevate it again. Here's what has occurred: In August, 2018, my Kt/V was 3.93 (2.0 and higher is the target). In November, 2018, it went down to 1.87. In Feb 2019, it was back up
TaffyTwoshoes27
in
Kidney Disease
5 years ago
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