Hey everyone I have IGAN.
Approximately 3 months ago I started the process of getting on the kidney transplant list. At the time I was referred for transplant by my nephrologist because my GFR was 16 and we both thought dialysis was looming. I started the process and went through all the testing required to be listed.
Early this week I heard from my transplant coordinator, I am now listed. The good thing since I started the process was that my GFR Is now 20. I am listed for a “preemptive kidney transplant” hoping that I will receive my transplant before I need to go through dialysis.
Has anyone ever been in a similar situation and if so did what was your outcome? At what point do you move forward with transplant?
I have been very luck so far. My kidney failure symptoms have improved. I just wonder how long this will last 😞. I want to be totally realistic, I know that with my disease process I will eventually go into End stage CKD.