I'm new here and just wanted to ask for any advice that anyone has. To give you a brief history of my condition:
When I was about 3 years old I got E.coli. I don't remember it but according to my parents I had almost, if not complete, kidney failure. I still have scars on my stomach from the catheters and whatever else I was hooked up to (I'm assuming dialysis). I'm told I have or had Hemolytic Euremic Syndrome. For whatever reason, the higher powers above or the scientific miracles of mankind, I came back from it and was able to grow up with a normal childhood. I never took any medications or had to see any doctors growing up.
It wasn't until I was 16 years old that I went for a regular doctor checkup where they discovered my blood pressure was at about 190/100. They did tests and found that I had Kidney Disease. I was told to take blood pressure medications and it was left at that. My blood pressure returned to a normal 120/80 and I met with my nephrologist about every 3 months. My creatinine levels was 1.5-1.7 from 16 years old till about 26 years old when it started to increase.
I am now 29 years old and my creatinine levels have been increasing steadily for the past year or two. I just met with my nephrologist today, and my creatinine levels have reached 3.1 and my GFR is about 29-34. My nephrologist says that is almost time to start looking at my options as far as dialysis goes, as well as a transplant. I always knew of my condition, obviously, but I never worried about it. Now I'm starting to get scared. Everyone my age is getting married, having kids and buying houses while I am now having to deal with this and I'm terrified of what my next few years holds.
I'm asking for any advice on mainly eating habits for Kidney Disease patients. I have met with a dietitian as well but it's hard to remember everything they tell you. They tell me to stay away from high protein, dairy, red meat and anything with phosphorus. Are there any recipes or sites to look at foods so I can try to slow down the disease as best I can?