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Continuous Ambulatory Peritoneal Dialysis
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Update on Transplant
Hi all Just a quick update, hubby is now making progress, still in intensive care, but they have removed the ventilator. On kidney dialysis but hopefully that will come good too. I know we have a long road ahead of us but I honestly was scared we might not even get the chance to go on it!!! The staff
Hi all Just a quick update, hubby is now making progress, still in intensive care, but they have removed the ventilator. On kidney dialysis but hopefully that will come good too. I know we have a long road ahead of us but I honestly was scared we might not even get the chance to go on it!!! The staff
Dannythedog
in
British Liver Trust
5 years ago
Help, with home hemo
I am hoping someone can help me, or at least give me information. I am new to the forum. I had been doing PD for about 18 months. I decided that I wanted to change to home hemodialysis as I feel the PD was really affecting my quality of life (not to mention the time commitment). I have just begun in-center
I am hoping someone can help me, or at least give me information. I am new to the forum. I had been doing PD for about 18 months. I decided that I wanted to change to home hemodialysis as I feel the PD was really affecting my quality of life (not to mention the time commitment). I have just begun in-center
nh9man
in
Kidney Disease
5 years ago
New member
Hi, I have just been diagnosed with obstructive sleep apnoea and have just started on the CPAP machine. I am finding the machine difficult as feel claustrophobic, does this pass? Thanks
Hi, I have just been diagnosed with obstructive sleep apnoea and have just started on the CPAP machine. I am finding the machine difficult as feel claustrophobic, does this pass? Thanks
Taz79
in
Sleep Matters
5 years ago
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Cirrhosis and Liver problems
Hi my brother was first diagnosed with cirrhosis and liver problem four years ago, after a few problem ie kidney dialysis, bleeding varices, fluid retention. He has generally been okay however he has recently been informed his pancreas is swollen. We have an appointment at the specialist coming up is
Hi my brother was first diagnosed with cirrhosis and liver problem four years ago, after a few problem ie kidney dialysis, bleeding varices, fluid retention. He has generally been okay however he has recently been informed his pancreas is swollen. We have an appointment at the specialist coming up is
Mar15
in
British Liver Trust
5 years ago
Whole Foods Plant Based Diet and My Kidney Expierence
Last week my GFR went down to 12.7%; since mid-September it has been declining and I was following a conventional renal diet as advised by health care officials. The only deviation was in August right after I was told my GFR had decreased by 50%. I was on vacation and began doing the only thing I could
Last week my GFR went down to 12.7%; since mid-September it has been declining and I was following a conventional renal diet as advised by health care officials. The only deviation was in August right after I was told my GFR had decreased by 50%. I was on vacation and began doing the only thing I could
jmkb
in
Kidney Disease
5 years ago
NIV Support Group UK
10 years ago I created a Facebook group for patients at Lane Fox Unit at St Thomas’s hospital. There aren’t many members so I’ve renamed it and opened it up to anyone who uses a ventilator or CPAP. The aim is to connect people to share information and experiences. It’s open to those who have non invasive
10 years ago I created a Facebook group for patients at Lane Fox Unit at St Thomas’s hospital. There aren’t many members so I’ve renamed it and opened it up to anyone who uses a ventilator or CPAP. The aim is to connect people to share information and experiences. It’s open to those who have non invasive
martinsymons
in
Lung Conditions Community Forum
5 years ago
Cpap, copd?
cpap, copd. My Dr prescribed cpap, even though I am low risk. After 8 days I could no longer expand my lungs to breathe, oxygen dropped from 98 to 94, 2 days woke up with headache, became lethargic, didn't care if my hair was combed etc. I quit using it after 8 days. That was 3 weeks ago, still have
cpap, copd. My Dr prescribed cpap, even though I am low risk. After 8 days I could no longer expand my lungs to breathe, oxygen dropped from 98 to 94, 2 days woke up with headache, became lethargic, didn't care if my hair was combed etc. I quit using it after 8 days. That was 3 weeks ago, still have
xx11xx
in
COPD Friends
5 years ago
Gut affected by Scleroderma
Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out of hospital since. In July, she had renal failure and was admitted to Intensive Care shortly after her first dialysis with all her major organs failing. The condition has affected her guts severely and is unable to drink
Hi, My wife was diagnosed with Scleroderma in May 2019 and have been in and out of hospital since. In July, she had renal failure and was admitted to Intensive Care shortly after her first dialysis with all her major organs failing. The condition has affected her guts severely and is unable to drink
simon_m
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
GFR near 60 for 2.5 years
2.5 years ago I went to my doctor for a regular physical. He took blood and I was told I had a GFR of 59, two weeks later it was 54. Two weeks after that it was over 60. In the 2.5 years since it has been just over 60 every time. I am 48, not diabetic, no high blood pressure. I had a scan of my kidneys
2.5 years ago I went to my doctor for a regular physical. He took blood and I was told I had a GFR of 59, two weeks later it was 54. Two weeks after that it was over 60. In the 2.5 years since it has been just over 60 every time. I am 48, not diabetic, no high blood pressure. I had a scan of my kidneys
AlwaysForward
in
Kidney Disease
5 years ago
Being on dialysis
I’m 44 yrs old, I’m currently in dialysis 3xs a week for 3 1/2 hours
I’m 44 yrs old, I’m currently in dialysis 3xs a week for 3 1/2 hours
Hotgirl74
in
Kidney Disease
5 years ago
Does dialysis make you feel better or worse
My husband's creatinine is at a level 10 and is not on dialysis. He doesn't have too many physical symptoms except a little fatigue and doesn't sleep well. His nephrologist talks to him about but I think he's scared not knowing what to expect. Does it make you feel better or worse? I heard that it makes
My husband's creatinine is at a level 10 and is not on dialysis. He doesn't have too many physical symptoms except a little fatigue and doesn't sleep well. His nephrologist talks to him about but I think he's scared not knowing what to expect. Does it make you feel better or worse? I heard that it makes
brynat2
in
Kidney Disease
5 years ago
Still feeling tired and no energy.
I have had my levo raised to 100mg/75 on alternate days. My mood is better, but still have days where I could sleep all day. I still get orthostatic intolerance my nails and hair seem to have slightly improved. I take vitamin D and B12 supplements. I also have osteoarthritis, sleep apnea (have cpap
I have had my levo raised to 100mg/75 on alternate days. My mood is better, but still have days where I could sleep all day. I still get orthostatic intolerance my nails and hair seem to have slightly improved. I take vitamin D and B12 supplements. I also have osteoarthritis, sleep apnea (have cpap
raine-wager
in
Thyroid UK
5 years ago
can-anyone-make-use-of-residue-dialysis-support-materials
Thank all that responded to my request. I eventually found a willing recipient of our leftover dialysis support materials, it's the Furness Hedgehog society. It was the suggestion to contact a Vets that lead me to the. The Vets were not permitted to make use of the materials, neither was anyone else,
Thank all that responded to my request. I eventually found a willing recipient of our leftover dialysis support materials, it's the Furness Hedgehog society. It was the suggestion to contact a Vets that lead me to the. The Vets were not permitted to make use of the materials, neither was anyone else,
ukoilgas
in
Kidney Dialysis
5 years ago
kkoniar@yahoo.com
Hi. My name is Kathy and I am at renal failure (so they say). I have been fighting this for months. I lived in Milwaukee County all my life and was diagnosed as having Stage 3 for a couple years. I had to move to Green Bay when I was laid off and could not get another job nor afford my high rent.
Hi. My name is Kathy and I am at renal failure (so they say). I have been fighting this for months. I lived in Milwaukee County all my life and was diagnosed as having Stage 3 for a couple years. I had to move to Green Bay when I was laid off and could not get another job nor afford my high rent.
Lilly234
in
Kidney Disease
5 years ago
Transplant eligibility with CHF and T2 diabetes
Hi. I’ve been posting about my husband for a little while now and have gotten the newest test results. It appears that it’s his heart that has caused his kidney problems and not so much the diabetes. He got a virus 21 years ago that caused cardiomyopathy and CHF. It was really bad at first (EF = 18)
Hi. I’ve been posting about my husband for a little while now and have gotten the newest test results. It appears that it’s his heart that has caused his kidney problems and not so much the diabetes. He got a virus 21 years ago that caused cardiomyopathy and CHF. It was really bad at first (EF = 18)
PamelaSC
in
Kidney Disease
5 years ago
Newbie and overwhelmed. Waiting on referrals to be finished to see a nephrologist.
I'm on a rollercoaster of emotions right now. Three months ago I had an efgr of 55. Five days ago they rechecked it and it's dropped to 36.9. They ran it again two days ago and it was 36.7. Not one person in the medical office was concerned. They are making the referrals now but had to pushed to do
I'm on a rollercoaster of emotions right now. Three months ago I had an efgr of 55. Five days ago they rechecked it and it's dropped to 36.9. They ran it again two days ago and it was 36.7. Not one person in the medical office was concerned. They are making the referrals now but had to pushed to do
Sassysmom
in
Kidney Disease
5 years ago
Still on the fence about dialysis...
I got my most recent lab report. Urea nitrogen 82 High Creatinine 1.99 High eGFR is 27 Low Potassium 5.4 High Phosphate [phosphorous] 4.7 High Protein/Creatinine ratio 167 High Non-fasting glucose 129 [good for me] And this is new, I have had a deteriorating thyroid for at least 10 years. My parathyroid
I got my most recent lab report. Urea nitrogen 82 High Creatinine 1.99 High eGFR is 27 Low Potassium 5.4 High Phosphate [phosphorous] 4.7 High Protein/Creatinine ratio 167 High Non-fasting glucose 129 [good for me] And this is new, I have had a deteriorating thyroid for at least 10 years. My parathyroid
Cape_Cod_Sharon
in
Kidney Disease
5 years ago
Oldeguye with ADPKD
Old Korean Veteran(83) with stage 4 ADPKD: GFR21, Creatinine 2.91. Heart valve replaced 2 years ago, 4 stents, emphysema (not on oxygen yet), asthma, 3 hernias (abdominal, umbilical and hiatal), the usual leg and foot swelling, elevated BP per the bad kidneys, a few allergies, low thyroid, minor(?) arthritis
Old Korean Veteran(83) with stage 4 ADPKD: GFR21, Creatinine 2.91. Heart valve replaced 2 years ago, 4 stents, emphysema (not on oxygen yet), asthma, 3 hernias (abdominal, umbilical and hiatal), the usual leg and foot swelling, elevated BP per the bad kidneys, a few allergies, low thyroid, minor(?) arthritis
Hidden
in
Kidney Disease
5 years ago
What is your experience post transplant?
I am posting for the first time. I am , still working and I have known about my PKD for twenty years. I am just now getting ready for a live donor transplant this December and I am feeling overwhelmed. While I have slowed down significantly these last few months, I find myself very worried that this
I am posting for the first time. I am , still working and I have known about my PKD for twenty years. I am just now getting ready for a live donor transplant this December and I am feeling overwhelmed. While I have slowed down significantly these last few months, I find myself very worried that this
Powerfalcon
in
Kidney Transplant
5 years ago
Gross Hematuria
I am getting blood in urine with puss cells, urine culture shows no growth. I am on dialysis post transplant failure. Doctor prescribed antibiotic injections but no benefit. Anyone has any suggestions?
I am getting blood in urine with puss cells, urine culture shows no growth. I am on dialysis post transplant failure. Doctor prescribed antibiotic injections but no benefit. Anyone has any suggestions?
ashok5085
in
Kidney Transplant
5 years ago
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