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9 years and counting
Today marks my 9th anniversary of being admitted to ICU by ambulance for 3 months where I was so close to death with double pneumonia and severe sepsis which lead to multiple organ failure with 6 weeks on dialysis, severe ARDS with respiratory arrest for 10 mins and 2 cardiac arrests thrown in for good
Today marks my 9th anniversary of being admitted to ICU by ambulance for 3 months where I was so close to death with double pneumonia and severe sepsis which lead to multiple organ failure with 6 weeks on dialysis, severe ARDS with respiratory arrest for 10 mins and 2 cardiac arrests thrown in for good
Luckyone
in
ICUsteps
5 years ago
Barely making it to the toilet....
I am stage 5 waiting to start dialysis. I noticed today that I was peeing more and barely making it to the toilet. I have also had a lot of cramps in my toes. I am not dehydrated but my feet and toes are acting like it. Has anyone else experienced this in late stage?
I am stage 5 waiting to start dialysis. I noticed today that I was peeing more and barely making it to the toilet. I have also had a lot of cramps in my toes. I am not dehydrated but my feet and toes are acting like it. Has anyone else experienced this in late stage?
SadMad
in
Kidney Disease
5 years ago
Hughes Syndrome - December 2019
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
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Nephrologist doctor with CKD... what do you think?
While I am very new to this forum, I am SO glad that I found you people!! It gives me hope to see the success stories, and it also makes me realize how disinterested the medical community is in truly helping CKD patients, until the disease is too far advanced, and dialysis is required. Why are nephrologists
While I am very new to this forum, I am SO glad that I found you people!! It gives me hope to see the success stories, and it also makes me realize how disinterested the medical community is in truly helping CKD patients, until the disease is too far advanced, and dialysis is required. Why are nephrologists
Whitetail66
in
Kidney Disease
5 years ago
Sudden drop in GFR due to dehydration?
Just a bit scared. (I didnt think I had kidney disease) , but yesterday I went to the ER for several near syncopal episodes. My bun was 26, creat was 1.75, and my GFR was 30. The last physical I had was in March, and my creat was 1.1 at that time. My GFR has always been >=60. I do have hypertension
Just a bit scared. (I didnt think I had kidney disease) , but yesterday I went to the ER for several near syncopal episodes. My bun was 26, creat was 1.75, and my GFR was 30. The last physical I had was in March, and my creat was 1.1 at that time. My GFR has always been >=60. I do have hypertension
Vodnurse1
in
Kidney Disease
5 years ago
Meduallry Sponge Kidney
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
PurdySelph88
in
Kidney Disease
5 years ago
Insurance confusion
Hi, Does anyone know a bit about insurance? It can be so confusing! I currently have health insurance from COBRA, but was reccomended to apply for medicaid to cover the out of pocket maximum i will have when it starts over next yr. I am on dialysis. They dont want me to apply for medicare until cobra
Hi, Does anyone know a bit about insurance? It can be so confusing! I currently have health insurance from COBRA, but was reccomended to apply for medicaid to cover the out of pocket maximum i will have when it starts over next yr. I am on dialysis. They dont want me to apply for medicare until cobra
Vlc17
in
Kidney Disease
5 years ago
Hospitalised
Hi there, for those who have read my posts on going onto PD dialysis and getting my catheter fitted this is an update, on Wednesday of last week exactly one week after getting it fitted I was rushed to A&E as and then subsequently admitted into the renal ward as all my numbers were down and way off the
Hi there, for those who have read my posts on going onto PD dialysis and getting my catheter fitted this is an update, on Wednesday of last week exactly one week after getting it fitted I was rushed to A&E as and then subsequently admitted into the renal ward as all my numbers were down and way off the
Hidden
in
LUPUS UK
5 years ago
Amyloidosis
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
I am new to this online community. I was diagnosed with APO-CII amyloidosis which has affected my kidneys by the Mayo Clinic in 2017. It is a very rare form of a very rare disease. I'm interested to know if anyone else in this online community also has this disease. At this point, I am close to Stage
Amyloid_Leslie
in
Kidney Disease
5 years ago
CKD 4
Hi I am 55 yo, My GFR is 14 and creatinine is 400. Heart function 48%. Anemia. My renal doctor keep telling me to go for dialysis but I want to try vegan diet first. What will happen to my body, help needed. Thank you.
Hi I am 55 yo, My GFR is 14 and creatinine is 400. Heart function 48%. Anemia. My renal doctor keep telling me to go for dialysis but I want to try vegan diet first. What will happen to my body, help needed. Thank you.
Pekko
in
Kidney Disease
5 years ago
How Sleep Apnea Differs in Women
At the 39 minute mark of this podcast there is an interesting piece on how sleep apnea can be different in women and the overall AHI numbers may not be the best measurement. Apparently women often have an issue with REM. This is exactly what happened in my sleep study. I had a large number of apneas
At the 39 minute mark of this podcast there is an interesting piece on how sleep apnea can be different in women and the overall AHI numbers may not be the best measurement. Apparently women often have an issue with REM. This is exactly what happened in my sleep study. I had a large number of apneas
Kaz747
in
AF Association
5 years ago
Is there any home scale that measures dry weight?
Hello All. Does anyone know of a home scale that use to keep track of my daily dry weight? I am having problems with my technicians pulling to much fluids from my body as I suffer from cramps during and after treatment. I weigh myself on an old pounds scale and convert it to kg using the internet before
Hello All. Does anyone know of a home scale that use to keep track of my daily dry weight? I am having problems with my technicians pulling to much fluids from my body as I suffer from cramps during and after treatment. I weigh myself on an old pounds scale and convert it to kg using the internet before
silkyone
in
Dialysis Support
5 years ago
Hi everybody
I am a dialysis doctor. If you need anything to ask please feel free
I am a dialysis doctor. If you need anything to ask please feel free
DrBasti
in
Dialysis Support
5 years ago
Kidney transplants at older age
I would like to know about success of kidney transplant at age of 68 yrs specifically in India. The patient had CKD because of diabetes and currently undergoes dialysis thrice a week. It has been 2.5 years since.
I would like to know about success of kidney transplant at age of 68 yrs specifically in India. The patient had CKD because of diabetes and currently undergoes dialysis thrice a week. It has been 2.5 years since.
prashantr
in
Kidney Disease
5 years ago
Will I ever urinate again?
I just recently stopped urinating completely I was wondering will I ever pee again while on dialysis? 2nd question I use to be able to drink and tolerate a little more than the 32 oz of water I was allowed to drink a day and now I can’t even tolerate two 8oz bottles of water a day without needing to
I just recently stopped urinating completely I was wondering will I ever pee again while on dialysis? 2nd question I use to be able to drink and tolerate a little more than the 32 oz of water I was allowed to drink a day and now I can’t even tolerate two 8oz bottles of water a day without needing to
missalyrey
in
Kidney Disease
5 years ago
Foam In Urine After Rhabdomyolysis, but tests show no protein?
Hi all, I am a 24 Y/O South East Asian Male. I had Rhabdomyolysis back in Jan 2019 when I worked out too hard one day and pee'd Cola Colored urine, I din't seek for medical attention immediately as I was persistently persuaded by my mom that it was simply because I din't have enough sleep, the Cola
Hi all, I am a 24 Y/O South East Asian Male. I had Rhabdomyolysis back in Jan 2019 when I worked out too hard one day and pee'd Cola Colored urine, I din't seek for medical attention immediately as I was persistently persuaded by my mom that it was simply because I din't have enough sleep, the Cola
jason95xx
in
Kidney Disease
5 years ago
Noni
Age 23 egfr20.7 createnine3.3 two dialysis done high pressures taking med dr said for re transplant any suggestions for hemodialysis is better or peritonial is better because donor finding workup took months if any body who can help
Age 23 egfr20.7 createnine3.3 two dialysis done high pressures taking med dr said for re transplant any suggestions for hemodialysis is better or peritonial is better because donor finding workup took months if any body who can help
Chandgul
in
Early CKD Support
5 years ago
Dialysis
So this time tomorrow morning I'll be checking into hospital to get my catheter fitted so I can start dialysis in 6 weeks time. To say I'm bricking it is an understatement, been absolutely fine through the whole thing except the weekend when I had a wee wobble. It's a step into the unknown but one I
So this time tomorrow morning I'll be checking into hospital to get my catheter fitted so I can start dialysis in 6 weeks time. To say I'm bricking it is an understatement, been absolutely fine through the whole thing except the weekend when I had a wee wobble. It's a step into the unknown but one I
Hidden
in
LUPUS UK
5 years ago
What is the difference between “normal” tired and dialysis tired?
I have heard that you get tired and weak after dialysis so I’m asking if the tired I am feeling is a tired after dialysis or am I just normally tired? I hope that made sense
I have heard that you get tired and weak after dialysis so I’m asking if the tired I am feeling is a tired after dialysis or am I just normally tired? I hope that made sense
Hidden
in
Kidney Dialysis
5 years ago
I AM ON STUDY TRANSPLANT LIST
I signed up at my Transplant Hospital to be one of the study participants in the hep C+ deceased kidney transplant recipients. The transplant doctor said it could be three days or 70 days until I receive a kidney, but it will not be waiting four more years on the Wait List. I was put on the Wait List
I signed up at my Transplant Hospital to be one of the study participants in the hep C+ deceased kidney transplant recipients. The transplant doctor said it could be three days or 70 days until I receive a kidney, but it will not be waiting four more years on the Wait List. I was put on the Wait List
TaffyTwoshoes27
in
Kidney Dialysis
5 years ago
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