I AM ON STUDY TRANSPLANT LIST: I signed up... - Kidney Dialysis

Kidney Dialysis

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I AM ON STUDY TRANSPLANT LIST

TaffyTwoshoes27 profile image
8 Replies

I signed up at my Transplant Hospital to be one of the study participants in the hep C+ deceased kidney transplant recipients. The transplant doctor said it could be three days or 70 days until I receive a kidney, but it will not be waiting four more years on the Wait List. I was put on the Wait List in 2015 and I have been on dialysis since January 2016.

I had to get off some medications before I could be put on the transplant list. One was Eliquis, a blood thinner. I am in the middle of transitioning over to Warfarin. I also had to quit taking pantoprazole, an acid reflux medication. The nephrologist for the transplant center said that it interferes with the anti-rejection drug.

My transplant coordinator called Monday and said I am officially on the transplant list now. I am saying my prayers and packing my overnight bag!

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TaffyTwoshoes27
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8 Replies

Congratulations. I'll keep good thoughts for your success.

TaffyTwoshoes27 profile image
TaffyTwoshoes27 in reply to

Thanks! They are using Epclusa as study med for Hep C eradication. 98% success rate. One guy in the study never contracted Hep C when transplanted!

in reply toTaffyTwoshoes27

Keep us informed. I speak to several groups each month about CKD and when asked questions about this and other issues I'm not following closer I have to take the information and get back to them. Any information you could provide either post it here or PM me and I'll pass it along when I get asked about it. Thanks.

TaffyTwoshoes27 profile image
TaffyTwoshoes27

Is this Cameron?

Bunkin profile image
Bunkin

Congratulations! You’re in my prayers 😀

WYOAnne profile image
WYOAnneNKF Ambassador

Congratulations! Let's hope it's real soon. Please keep us all posted. This is a new idea for many of us. I have read some about it through the NKF. With so many people waiting for a kidney..... I had my transplant in 1999 when there was 65,000 people on the list and now something like 110,000. The success rate with Hep C kidneys is fantastic.

Prayers and positive thoughts coming your way!

TaffyTwoshoes27 profile image
TaffyTwoshoes27 in reply toWYOAnne

Thank you!! I pray this will be successful and I will feel like a new woman!

JEanes55 profile image
JEanes55

Good luck to you!! Sounds like you’re on your way!!

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