I just recently stopped urinating completely I was wondering will I ever pee again while on dialysis?
2nd question
I use to be able to drink and tolerate a little more than the 32 oz of water I was allowed to drink a day and now I can’t even tolerate two 8oz bottles of water a day without needing to go to dialysis to remove the extra fluids it’s so annoying
I’m not sure, this happened to me to
There are too many issues that can be causing this. Are you, in addition to seeing a nephrologist, seeing a urologist? If not, make an appointment as soon as possible. It is a serious issue if you are not eliminating waste through urination.
Most dialysis patients STOP producing urine the longer they are on dialysis. This is not something to be alarmed about if you have been on dialysis for a few years or more. Seeing a urologist without first consulting your nephrologist is probably a waste of time and money.. That's probably not something you were aware of, now you know.
Actually I was aware of it. I started my post by saying that there were many issues that could cause that, and I further stated that in addition to a nephrologist I suggested seeing a urologist. To put their mind at ease, a urologist can either confirm it is the result of the dialysis or finds something else. Peace of mind is worth a visit to a knowledgeable urologist. Now you know my reason for the suggestion.
But you also closed your post with "it is a serious issue if you are not eliminating waste through urination"
That IS serious. That is why it is called kidney failure and why one needs dialysis. Yes we stop eliminating waste through urination. Yes it is a serious issue we deal with on a daily issue. Why do you think it's called kidney failure. I mean ????
Back to your post, "Most dialysis patients STOP producing urine the longer on dialysis..." Most doesn't mean ALL. Let me tell you a story that led to my response. This past summer I was in a southwestern city visiting a dialysis center. One of the men I meet and spoke with shared his story. Let me paraphrase. His wife had CKD and he was bringing her to the center for dialysis training. Her urination stopped and the staff told her that it happened to dialysis patients. They accepted that. The end of story is that his wife passed about seven weeks later and it was found she had a tumor that was undiagnosed. The tumor was in her bladder. He now is on dialysis (different city, different center) and does in-center. My point is it never hurts to have a second opinion.
Yeah that's why I suggested he consult with his nephrologist who could better assess the patients issues and concerns. Sure lots of dreadful stories to spread for fear factors but often unnecessary. You have your opinion as do I. I do feel my personal experiences of near 2 decades on dialysis gives mine a little more on hand truths. But we could both be wrong. I've been there and done that.
As a CKD stage 2-3? Why would you be visiting a dialysis center? And do you know cause of her ESRD, if they consulted with nephrologist or just staff? Reported other symptoms? Fast growing tumor?
No matter.
You are asking personal questions and I will choose to answer what I can. When I was diagnosed with CKD I fell into the depression that many of us feel. I had no idea that my T2D and HBP were the causes until my (then) nephrologist told me. Since then I've been very proactive. Learning all I can about CKD and it's a process that I continue. I never intend to be surprised with health issues again. Towards that goal, I never want to make a decision regarding my health at a time I'm under stress. I've learned what I need to know about the modalities for dialysis and made my choice for dialysis if and when that time comes. My former nephrologist, before he went back to teaching concurred and passed that information on to the new nephrologist who took over the practice.
I'll make an exception this one time. It's no business of yours why I speak to folks at dialysis centers. I do and these visits are set up for me in conjunction with my travels by folks in my nephrologist's office. I speak to groups there about CKD, meal plans, and basically share my story. Once I have my trips set up, I notify my nephrologist's office staff and they see if there is any interest in my speaking to them where I'm going to visit. If so, and we can work out the time, I share what I've learned. A couple of visits have been held at dialysis centers and others have been at a room reserved at a local library. I give them handouts from different sources. I offer no medical advice, I promote no specific meal plan or exercise regimen. I tell them where to find information and how to go about being proactive and the most important person on their Care Team.
As to the questions you asked regarding the man who spoke to that group about his wife. His emotions were still raw and I saw no reason to question him about his late wife's history. It was his story and he shared it. End of story.
As to fear factor... The fear comes from the unknown, not the known.
Asking the same doctor for the same opinion is not the same as getting a second opinion from a different doctor. Since this was a problem with urination, I suggested the poster get the second opinion from a Urologist.
Peace of mind is a wonderfully comforting thing.
No it's none of my business. But you never had to respond with any stories or personal information. I didn't ask why you speak at centers. I didn't have the information. I didn't ask about the man's story either.
Yes fear can for some be from unknown. For others it differs.
Good for you for getting out and speaking of your limited experiences and sharing the information you have. All sorts of organizations rely on patients. Like NKF, AAKP, DPC, PKD, ALPORTS, PKD,ESRD Networks across the country and many more. They are always looking for volunteers ( mostly dialysis patients or care partners or transplant patients). I'm sure your story has been helpful.
Me
Most dialysis patients STOP producing urine the longer on dialysis but please talk to your nephrologist about this.
As for fluid intake, the less you pre away, the more will need to be removed via dialysis/machine. You must be in control by limiting your intake. Without control, the more difficult it is for fluid removal causing fatigue cramping headaches drops in blood pressure dizziness and more. The less you drink the less will need to be removed and most of those symptoms will be lessened.
Blessings Amy
Dialysis nearly 18 years
Once the kidney stops producing urine if it is coz of the Renal failure it is very unlikely you will start again. Whoever it may be a blockage or some other underlying issue. Speak with your Renal team and let them explain everything to you. I was on dialysis for over 4 years and I never stopped passing urine but it was the only one in the whole unit who could still go to the bathroom with no worries. I was told I was a very rare case. But once urine finally stood you have to be so careful about your fluid intake or you could end up drowning yourself. Please keep me up to date with what your team says and good luck 😉
If you still peeing, kidneys are working 
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