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Continuous Ambulatory Peritoneal Dialysis
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Paying for Dialysis
When you get the news that you have CKD money may not be the first thing that you think of but it should be the second thing as paying for treatment can be more of a life disruption than the treatment it self. I didn’t look into programs that assist you with the out of pocket expenses early enough
When you get the news that you have CKD money may not be the first thing that you think of but it should be the second thing as paying for treatment can be more of a life disruption than the treatment it self. I didn’t look into programs that assist you with the out of pocket expenses early enough
ZenPDX
in
Kidney Dialysis
5 months ago
fell kt/v again going to do EXTRANEAL bags question about that
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Beachgirl32
in
Kidney Dialysis
5 months ago
Numbers higher
I stopped eating sweets, and it has helped me improve my Stage # 3 to Stage 2. Now, I want to get to Stage 1, and then I will have no kidney issues at all. I believe Everything is Possible with a Lifestyle change. I decided that I didn't choose to be on dialysis and knew if I didn't change what I
I stopped eating sweets, and it has helped me improve my Stage # 3 to Stage 2. Now, I want to get to Stage 1, and then I will have no kidney issues at all. I believe Everything is Possible with a Lifestyle change. I decided that I didn't choose to be on dialysis and knew if I didn't change what I
purifire7777
in
Kidney Disease
5 months ago
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GFR and dialysis
Does everyone know what their GFR number is since they’ve started PD or HD I was just wondering if it improves or declines with dialysis. Thanks
Does everyone know what their GFR number is since they’ve started PD or HD I was just wondering if it improves or declines with dialysis. Thanks
TDPowers
in
Kidney Disease
5 months ago
Using cannabis oil for rls.
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
art37
in
Restless Legs Syndrome
5 months ago
Using cannabis oil for rls.
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
art37
in
Restless Legs Syndrome
5 months ago
fell kt/v test
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
Beachgirl32
in
Kidney Dialysis
6 months ago
Constipation - any ideas with restricted fluid intake because of dialysis?
I eat a lot of fruit and vegetables but that's getting old quickly
I eat a lot of fruit and vegetables but that's getting old quickly
Hidden
in
Kidney Dialysis
6 months ago
Question about dialysis
I was hoping someone could tell me how do they do dialysis if you don’t have good veins. Mine are so tiny even blood draws are difficult let alone a iv started. I’ve had major abdominal surgery three times so a lot of scar tissue and mesh . Hopefully I never need it but in the back of my mind I always
I was hoping someone could tell me how do they do dialysis if you don’t have good veins. Mine are so tiny even blood draws are difficult let alone a iv started. I’ve had major abdominal surgery three times so a lot of scar tissue and mesh . Hopefully I never need it but in the back of my mind I always
Chimama
in
Kidney Disease
6 months ago
itchy skin
to know if the itch i have is related to the proteinuria i have since i get it on the head back arms or leg s or feet i heard loss of proteins in the urine makes everything dehydrated and that that s when the itch comes Dry skin is seen in 50% to 80% of people who undergo dialysis to treat kidney disease
to know if the itch i have is related to the proteinuria i have since i get it on the head back arms or leg s or feet i heard loss of proteins in the urine makes everything dehydrated and that that s when the itch comes Dry skin is seen in 50% to 80% of people who undergo dialysis to treat kidney disease
Pantwhite
in
Kidney Disease
6 months ago
Another update 4/13.
Feels strange to day would have been our son Johns 63rd birthday. He passed last Nov. I stood beside Bills hospital thinking of John & praying for Bill to come back there is still much to be done. They restarted dialysis on him & he does have a feeding tube in place. all his numbers look good. they
Feels strange to day would have been our son Johns 63rd birthday. He passed last Nov. I stood beside Bills hospital thinking of John & praying for Bill to come back there is still much to be done. They restarted dialysis on him & he does have a feeding tube in place. all his numbers look good. they
kycmary
in
My MSAA Community
6 months ago
Nifedipine/blood pressure
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
What a week!! (Starting HD, continued)
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
PeaB4YouGo
in
Kidney Dialysis
6 months ago
from PD to HD
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Imaanforever
in
Kidney Dialysis
6 months ago
going to be evaluated at another transplant center
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
Beachgirl32
in
Kidney Transplant
6 months ago
Finishing College with CKD
Hi, I'm 22 and finishing my last semester in college with a gfr of 12. I've recently been feeling high levels of anxiety around my health issues and have found it difficult to be by myself for fear of passing out or having some kind of medical emergency due to my chronic kidney disease. I'm not on dialysis
Hi, I'm 22 and finishing my last semester in college with a gfr of 12. I've recently been feeling high levels of anxiety around my health issues and have found it difficult to be by myself for fear of passing out or having some kind of medical emergency due to my chronic kidney disease. I'm not on dialysis
BabyB23
in
Early CKD Support
6 months ago
Any Medicare Advice for ESRD?
My son is 25 and has endstage renal disease. He is on dialysis and preparing to learn more about a transplant. He is off our insurance in a few months and has been accepted for Medicare, but medicare is confusing, and some choices cannot be undone. SSA would not answer questions and I am overwhelmed
My son is 25 and has endstage renal disease. He is on dialysis and preparing to learn more about a transplant. He is off our insurance in a few months and has been accepted for Medicare, but medicare is confusing, and some choices cannot be undone. SSA would not answer questions and I am overwhelmed
LaraMC
in
Kidney Disease
6 months ago
My gfr is om 15 % already but I dont want dialysis
Hi everyone happy Easter, hope everyone is well so I'm already at 15 % gfr and so worried I do want to get in dialysis I want to go straight to the transplants . I when to recently get blood work at my gyno and it should my gfr 15 % but I have a cold and was a bit dehydrated since I drank k 2 bottle
Hi everyone happy Easter, hope everyone is well so I'm already at 15 % gfr and so worried I do want to get in dialysis I want to go straight to the transplants . I when to recently get blood work at my gyno and it should my gfr 15 % but I have a cold and was a bit dehydrated since I drank k 2 bottle
jennifer24
in
Early CKD Support
6 months ago
Feeling sick after HD (advice for my dad)
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Agnes_Fleming
in
Kidney Dialysis
6 months ago
Transplant Cancelled
My wife's identical twin is a 6 of 6 antigen match and we were hopeful for a transplant in the next few months. GUT PUNCH !!! In the second to last day of donor testing she was found to have stones in both kidneys, one 9mm. She was immediately taken off donor status and my wife went on the active waiting
My wife's identical twin is a 6 of 6 antigen match and we were hopeful for a transplant in the next few months. GUT PUNCH !!! In the second to last day of donor testing she was found to have stones in both kidneys, one 9mm. She was immediately taken off donor status and my wife went on the active waiting
alperk
in
Kidney Transplant
6 months ago
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