fell kt/v again going to do EXTRANEAL bags question about that

[Beachgirl32]

Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine. He want me to try lasix to help with urine but he has to be careful my blood pressure bern low . He think it best if I do the purple bag he said they have longer dwell time he said diabetics are on it I don’t have diabetes but he said my cyst are so much pushing against my other organs that my kidney are filtering all the toxins like they should .he said it nothing I did it the polycystic kidney . If the purple bags don’t work then we have to talk about doing hemo .

my question is the pd nurse said I have to get approved to do the purple bags that can take five to z8 days they said I would have to come in for some training what training is differnt then doing the yellow and green. Bags’.right now he said keep doing one green one yellow he doesn’t want me in misery from doing green bags

would like to hear from other who started out on the glucose bags and change to EXTRANEAL did you notice a difference did it helpi you ? Thanks for any input

[Darlenia]

My hubby used green, yellow, and purple bags. The purple bag was used last and the cycler left some of the solution in my hubby's abdomen to "dwell" during the day. Then, my hubby hopped back at the cycler at night and the cycle went back into action and took care of everything.

There was no training for involved. He didn't use the manual approach for any of it. Hubby simply stacked the bags on the cycler or alongside it and his "prescription" managed everything. Hubby also had no problem ordering and receiving the purple dialysate. His dialysis center was a very busy, high volume place, outside WDC. And the Baxter warehouse wasn't far away. If you want to avoid doing manuals, I'd ask your nephrologist to make appropriate changes to your prescription so you don't have to do them. Hope this helps!

[Beachgirl32 in reply to Darlenia]

Thank you yeah do manual I think that what the training is in case power is out they want you to have a back up . I sent text to my nurse asking her if she will ask the doctor if I could do it like your husband did .How did you know the last bag is purple to dwell how was it hook up the red clamp to the heater was the white or blue clamp to the yellow I know when I did the little 3rd green bag they had me use the blue on that in training I was taught red heater blue cold wasn’t using a 3rd bag then the nurse now told me we were train wrong that the white the second bag and blue is thev3r that if your husband had the claria machinc

[Darlenia in reply to Beachgirl32]

Your cycler and my hubby's cycler aren't the same. Yours is an updated cycler that I think can be programmed remotely. My hubby's machine was an old HomeChoice Pro which used a paper card. It was old and looked it too. Hubby says the bags are connected to each other, including the purple one. But, since your cycler is different, hubby says it's best to ask your dialysis center to show you exactly how to lay out the bags and connect them. Apparently cyclers can handle up and including 5 bags. If you can, try to stay on PD as long as you can. If Richmond accepts you, I suspect you'll get a transplant soon. I know my hubby's Kt/V wasn't great either and then the transplant happened. We were trained to do manuals but then forgot how to do them. During a big storm, we contacted our PD nurse who brushed our worries aside. She said, since hubby was doing PD every night, one can actually skip a night without issue. She added that people traveling by plane do that routinely. He did wind up skipping one night due to a power outage and his labs were unaffected. So that was a huge relief.