Search
Search
About
Log in
Join
Experiences with
Continuous Ambulatory Peritoneal Dialysis
Posts
Communities
3,209 public posts
Filter results
Kidney hasn’t woken up. Is there still hope?
Hi, A close friend finally got the call so many have waited for and had her transplant 8 days ago. Her kidney came from a deceased donor and for the first few days we were told that it may take a little while for the kidney to ‘wake up’. However the kidney isn’t showing any signs of doing so and my
Hi, A close friend finally got the call so many have waited for and had her transplant 8 days ago. Her kidney came from a deceased donor and for the first few days we were told that it may take a little while for the kidney to ‘wake up’. However the kidney isn’t showing any signs of doing so and my
Pink_lilytree
in
Kidney Transplant
2 years ago
Colitis, Terminal iletis or Crohns?
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Sunita77
in
Crohn's and Colitis Support
2 years ago
Dialysis
I was in the hospital with accute kidney failure. They dialized me 3 days into to see if my kidney function would improve. I left with a GFR 20 . So I want to know if I start filling up with toxins, can they just give dialysis every 3months so I don’t feel so sick all the time. I am 68 no diabetics.
I was in the hospital with accute kidney failure. They dialized me 3 days into to see if my kidney function would improve. I left with a GFR 20 . So I want to know if I start filling up with toxins, can they just give dialysis every 3months so I don’t feel so sick all the time. I am 68 no diabetics.
Daneal1
in
Kidney Disease
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stressed Out
Hey yall. Just looking to vent. During my dialysis treatments I've been having severe panic attacks. After discussion with all the docs, we've decided to start using Ativan during treatments. Unfortunately I don't know why I panic. Shit, if I did I would make myself not, ya know? lol It just starts
Hey yall. Just looking to vent. During my dialysis treatments I've been having severe panic attacks. After discussion with all the docs, we've decided to start using Ativan during treatments. Unfortunately I don't know why I panic. Shit, if I did I would make myself not, ya know? lol It just starts
Kirkconnell
in
Dialysis Support
2 years ago
its getting hard.
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
fartikins
in
Kidney Disease
2 years ago
Periodontal Dialysis supplies
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the dialysis clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the dialysis clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
RonZone
in
Kidney Disease
2 years ago
Besremi - after the 6th dose kept at 200 mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 6th dose (results of 4/28/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 6th dose (results of 4/28/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Lupus and Heart Disease: Why You’re at Increased Risk
PUBLISHED 02/21/22 BY BARBARA BRODY People with lupus have an increased risk of heart disease — but understanding this link is a great first step in lowering it. Having inflammatory types of rheumatic disease means that your risk of having a heart attack, stroke, or other serious cardiovascular issue
PUBLISHED 02/21/22 BY BARBARA BRODY People with lupus have an increased risk of heart disease — but understanding this link is a great first step in lowering it. Having inflammatory types of rheumatic disease means that your risk of having a heart attack, stroke, or other serious cardiovascular issue
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
I have everything to put up with - need some reassurance
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
fartikins
in
Kidney Disease
2 years ago
New Here, Stage 3b Kidney Disease with T1D, feeling down
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
DMH200435
in
Kidney Disease
2 years ago
Response to want to chat
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
PD20
in
Dialysis Support
2 years ago
Fears and Anxiety
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
janeths466
in
SHARE Metastatic Breast Cancer
2 years ago
Cocktail Please: Bipolar/Spinal Cord Injury Now Dialysis
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
HipHopQueen
in
Kidney Dialysis
2 years ago
PD catheter installation
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
htpi1543
in
Kidney Disease
2 years ago
Has anyone had a failed Fistulogram Procedure?
Hi everyone, I had my fistula done 5/4/21. It had worked great in dialysis until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at dialysis today was lower than before the procedure: .58. This
Hi everyone, I had my fistula done 5/4/21. It had worked great in dialysis until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at dialysis today was lower than before the procedure: .58. This
BeachLove
in
Kidney Transplant
3 years ago
Vein Mapping
I have vein mapping done next week. I'm worried about all these doctor's visits adding up in cost for copays, but what can I do I have to get things done. I haven't looked up vein mapping yet so I don't know the process, but it is one step closer to starting Dialysis. I'm worried when I think about it
I have vein mapping done next week. I'm worried about all these doctor's visits adding up in cost for copays, but what can I do I have to get things done. I haven't looked up vein mapping yet so I don't know the process, but it is one step closer to starting Dialysis. I'm worried when I think about it
HipHopQueen
in
Kidney Dialysis
3 years ago
Question about rides
How many people are able to drive themselves to dialysis?
How many people are able to drive themselves to dialysis?
dadinfo
in
Kidney Dialysis
3 years ago
Besremi - CBC after the 5th dose kept at 200 mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 5th dose (results of 4/16/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 5th dose (results of 4/16/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
GFR drop-potassium high
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Hawaiilover
in
Kidney Disease
3 years ago
Would love to connect with other young CKD families and spouses 💖
Hello! New face here! Would love to build a support team as my husband is currently battling CKD and is prepping to start dialysis as he awaits a transplant. We are a young family, husband is 33, myself 35. We are parents to 7 crazy little minions and a fur baby. He has been battling CKD for most of
Hello! New face here! Would love to build a support team as my husband is currently battling CKD and is prepping to start dialysis as he awaits a transplant. We are a young family, husband is 33, myself 35. We are parents to 7 crazy little minions and a fur baby. He has been battling CKD for most of
LSalt87
in
Kidney Disease
3 years ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
611 results
Kidney Disease
564 results
Dialysis Support
263 results
View top 10 communities
Sort by
Most Relevant
Newest