3 years later: I know it's 3 years later but I... - ICUsteps

ICUsteps

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3 years later

Sandwichesandchips profile image
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I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower. After reading many stories von here, this seems like the norm for many people dialysis patients or not. They told me my dad would never wake up, would be brain damaged because his EEG showed slower waves ( because he was sedated). He was responding more and more to me each day but they would write in their notes they didn't see it. (Important note: get the app or login for your family member's health information. I looked at it many times during the day and all test results were there and even the drs notes which was vital). They were about to put a trach in my dad but the day before they said he's doing so well we are going to take him off the ventilator. It took as many days as he was sedated for him to wake fully up. Also the nephrologist was using the highest solution bags during dialysis to clean his system and it still took almost a week. All this to say that you can't always go by what the medical staff is saying. They don't know our family like we do. Do your research and see what other people have been through and their experiences. My dad had no brain damage, he just needed time to wake up.

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Signingfun profile image
Signingfun

I wasn't here 3 years ago. Just wanted to share, they thought I had brain damage too. The diagnosis was written on my rehab wall, until I asked what that word meant. (Sorry, I have forgotten the exact diagnosis.) After I asked, they erased it, because that was no longer true. I also recovered with no brain damage. I'm glad your dad recovered.

Anne

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