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Methotrexate
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Teddie111
in
NRAS
5 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
5 months ago
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Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
5 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
5 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
5 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
5 months ago
lupus and surgery
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
Shawna3g
in
LUPUS UK
5 months ago
Thyroid scan
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Flick9
in
Thyroid UK
5 months ago
levothyroxine induced lupus erythematosus?
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Baker16
in
Thyroid UK
5 months ago
feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
5 months ago
a newby to Lupus
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
C0rnflakes
in
LUPUS UK
5 months ago
Fibro medication and alcahol
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
henrythewasp
in
Fibromyalgia Action UK
5 months ago
Autoimmune Diseases
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Swift20
in
Pernicious Anaemia Society
5 months ago
Article: Why autoimmune disease is more common in women
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
cyberbarn
in
NRAS
5 months ago
Some new science on why women are more prone to autoimmune disease
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
whisperit
in
LUPUS UK
5 months ago
Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
5 months ago
Can anyone please offer advice?
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
anniemac81
in
Thyroid UK
5 months ago
Lupus SLE, APS, Vasculitis
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
Newlupus76
in
LUPUS UK
5 months ago
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