Experiences with

Connective tissue diseases

i worry because i've read a raised anti ccp could mean cancer but my gp said it's mainly to do with rheumatoid. and mostly in google it does just come with rheumatoid or other connective tissue diseases.

I hope you can advise me as I am feeling let down and worried after my second appointment with an endocrinologist. I started on 50 mcg Levothyroxine in January (weight = 70kg) when my TSH was 10.5 (0.27 - 4.20); T4 was 12.1 (12 - 22); and T3 was 4.6 (3.1-6.8). TPA antibodies were 95 and TG antibodies

Firstly I would like to say hello to everyone as this is my first post.I really need help to put things right with these results but just don't know where to start. It's all a bit overwhelming. I have hypothyroidism. I am on 100mg of levothyroxine (accord). Been on that dose for around 10 years. Tests

Hi All, It's been such a very long time since I last posted. This is my latest blood test (endo increased Levothyroxine by 25) after I had to drop the T3 again. Currently taking 4 days at 100 levo (split 50mcg am and 50mcg pm), 3 days 87.5mcg levo (split 50am and 37.5mcg pm) I take 1.25mcg lio with

On 1- 11- 24 bloods at 10 am we’d had problems to get a sample. This was with Medichecks. CRPHS. 2.99 mg/L. [ range 0 — 3.] Ferritin. 86.3 ug/ L. [ “ 30 – 332.] Folate. 26.1 nmol/L [ “ 07 - 35.] Vit B 12. 150 pmol/L [ “ 37.5 - 187.5 ] Vit D 83.3 nmol/ L.

Hi there, My son & myself have had terrible symptoms such as extreme weight gain (myself) hair loss, fatigue, anxiety, bruising this list goes on. This has been going on for over four years. After vast research, I demanded the GP to send us for an ultrasound which showed nodules on both of our Thyroids

Brain fog is a brilliant description that no one can really understand until they experience it. I feel like my brain is surrounded by a thick cotton wool-like layer that makes me want to just lie down and close my eyes - except that makes me dizzy. What the heck is happening to me? I’m 65 and moved

Hi and thanks for any help! I am so unsure and worried what is going on. Can these be symptoms of hypo? It’s just I read these are more related to Hyper? but my bloods def are not showing hyper. I wasn’t too bad after I began 50mcg T4, then I increased to 62.5 as 75 felt too big a jump and I’m on

has anyone suffered with this and been attributed to your lupus? Drying me to distraction at the moment. It’s a new symptom for me and so painful

As in title, really confused. Had strange symptoms last summer.... Fatigue tingling around bra line, muscle ache upper back. Same weekend had rash over cheeks. General malaise. Never recovered. Many symtoms followed, palps, short of breath, dizzy, no appetite. Maybe it wasn't covid but start of lupus

Has anyone tried taking NMN to help with underactive thyroid or read anything by a pharmacist called Isabella Wentz?

Hi Coeliac friends, I've been 11yrs diagnosed with Coeliac Disease. I had a dexa scan when I was first diagnosed. I had a low bone density and was put on calcium tablets for a number of months (can't remember how many) are you supposed to get a repeat dexa scan after so many years? Just wondering? As

Hi all, I n the last few months I've been diagnosed with pernicious anaemia, autoimmune thyroid disease and lupus. Ive been experiencing symptoms for over 6 years. The neuropathy I experience is all over but worse in feet, hands and definately mouth/face. I've been injecting everywhere day for 10 weeks

would really appreciate some help to find a private endocrinologist / bowel specialist near me in Carlisle, or as close as possible , nhs current advice is calorie deficit diet and more exercise? Makes me tired just thinking about it ?

So I have been on the autoimmune suppressants for quite a few months and I have noticed my hair has started falling out and I don’t know what to do it about it but it is really upsetting. (I’m only 20)

Hi all, have been lurking and reading your valuable posts and replies. Thank you for being such an informative community. Tl;dr - I've just moved to block and replace, am on day 2 of the medication. It's utterly wiped me out and I want to check if that's normal. I'd be interested in others' experiences

been diagnosed with underactive thyroid for 27 years , been on thyroxine tablets but never relieved my symptoms. Blood always okay but always feel tired , low , dry skin, hair thinning , poor sleep. Where do I go from here.

Hi everyone I’ve had problems with my jaw for the last three years and it was diagnosed as TMJ. I had an appointment with my maxillofacial consultant this week who saw how swollen my face was next to my ears/jaw. It’s been very painful too. She now feels that it could be my parotid glands inflamed

Hi all, I’d really appreciate hearing your experiences. I was diagnosed with Lupus in 2022. Six months ago I was feeling really well, I take Hydroxychloroquine and my bloods were looking good. Over the past couple of months I’ve been feeling absolutely exhausted beyond explanation and have terrible

Back end of last year i had an endoscopy to check up on my Coeliac disease. There was some biopsies taken and initially it appeared to be atrophic gastritis which led me to looking into PA. I ordered some private tests and found some historical tests from my GP. All are below. From the tests it does