Experiences with

Connective tissue diseases

i worry because i've read a raised anti ccp could mean cancer but my gp said it's mainly to do with rheumatoid. and mostly in google it does just come with rheumatoid or other connective tissue diseases.

I hope you can advise me as I am feeling let down and worried after my second appointment with an endocrinologist. I started on 50 mcg Levothyroxine in January (weight = 70kg) when my TSH was 10.5 (0.27 - 4.20); T4 was 12.1 (12 - 22); and T3 was 4.6 (3.1-6.8). TPA antibodies were 95 and TG antibodies

Firstly I would like to say hello to everyone as this is my first post.I really need help to put things right with these results but just don't know where to start. It's all a bit overwhelming. I have hypothyroidism. I am on 100mg of levothyroxine (accord). Been on that dose for around 10 years. Tests

Hi All, It's been such a very long time since I last posted. This is my latest blood test (endo increased Levothyroxine by 25) after I had to drop the T3 again. Currently taking 4 days at 100 levo (split 50mcg am and 50mcg pm), 3 days 87.5mcg levo (split 50am and 37.5mcg pm) I take 1.25mcg lio with

On 1- 11- 24 bloods at 10 am we’d had problems to get a sample. This was with Medichecks. CRPHS. 2.99 mg/L. [ range 0 — 3.] Ferritin. 86.3 ug/ L. [ “ 30 – 332.] Folate. 26.1 nmol/L [ “ 07 - 35.] Vit B 12. 150 pmol/L [ “ 37.5 - 187.5 ] Vit D 83.3 nmol/ L.

Hi there, My son & myself have had terrible symptoms such as extreme weight gain (myself) hair loss, fatigue, anxiety, bruising this list goes on. This has been going on for over four years. After vast research, I demanded the GP to send us for an ultrasound which showed nodules on both of our Thyroids

Brain fog is a brilliant description that no one can really understand until they experience it. I feel like my brain is surrounded by a thick cotton wool-like layer that makes me want to just lie down and close my eyes - except that makes me dizzy. What the heck is happening to me? I’m 65 and moved

Hi and thanks for any help! I am so unsure and worried what is going on. Can these be symptoms of hypo? It’s just I read these are more related to Hyper? but my bloods def are not showing hyper. I wasn’t too bad after I began 50mcg T4, then I increased to 62.5 as 75 felt too big a jump and I’m on

Hi all, I’d really appreciate hearing your experiences. I was diagnosed with Lupus in 2022. Six months ago I was feeling really well, I take Hydroxychloroquine and my bloods were looking good. Over the past couple of months I’ve been feeling absolutely exhausted beyond explanation and have terrible

Back end of last year i had an endoscopy to check up on my Coeliac disease. There was some biopsies taken and initially it appeared to be atrophic gastritis which led me to looking into PA. I ordered some private tests and found some historical tests from my GP. All are below. From the tests it does

Multiple sclerosis (MS) shares symptoms with many other conditions. Shared symptoms can lead to misdiagnosis in some people. MS affects around 1 million people in the United States. However, [u]experts believe that around 1 in 5 people with MS could have an incorrect diagnosis.[

Both childhood and adolescent obesity are linked to an increased risk for multiple sclerosis, with higher degrees of obesity further strengthening this association. https://www.medscape.co.uk/viewarticle/obesity-young-age-ups-multiple-sclerosis-risk-2025a10002gj

I am so upset by the treatment framework that is passed down to primary care practitioners. Hashimoto's isn't diagnosed without testing thyroid peroxidase antibodies. This is refused on the basis that only TSH needs to be checked. I suffered several years before I was lucky enough to get the test

hi all. New here. Had graces disease in my 20s. But have been on levothyroxine since. I was diagnosed with Rheumatoid arthritis in 2023. Since then I have been on a host of meds. none working too well. but I’ve been on statins since January. They’ve just told me my tsh level is really low. But my free

The deadline to express your interest in becoming a Lupus UK Trustee has been extended to Friday 11th April! If you would like to apply, please send a written expression of interest (up to one A4 page) by email to Caroline@lupusuk.org.uk. Within your statement, you should provide details of why you

Hi, I have a hyperactive thyroid for which I am on Carbimazole 20mg daily. I have developed mastitis within the last week. I am not pregnant or breast feeding (my only child is 14 so I am many years past this). I see there are links between thyroiditis and mastitis. According to my consultant I do not

Hi This is my first time posting I was diagnosed with Pernicious Anemia and B12 Deficiency in 2010, which up until January of this year I was having the injection every 12 weeks. My recent blood test for B12 showed I was overdosed so GP has now prescribed it at 6 monthly intervals . I have never been

I have had secondary Raynaud’s for years, but recently it has become worse and my feet are either freezing cold or burning hot. In addition the soles are sore and red in places, such that it is painful to walk. A trip around Google suggested chilblain lupus which I’d not heard of before. Obviously I

Hi My sister was diagnosed with PMR a few years ago and prescribed steroids . These reduced the symptoms of the acute phase and she has been on them for 2 years now currently reducing and on 4mg per day ( I think ). She also has some osteo and rheumatoid arthritis. Since was put on methotrexate 6 months

my mum had seronegative lupus by the time she was diagnosed it was too late and we sadly lost her in June 2019 , after having Covid in 2020 I started showing signs of lupus or what I knew to be lupus , my ana is also negative the same as my mum so I’ve been diagnosed with fibromyalgia instead but I