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The best advice I can or may ever give to anyone who has Parkinson's especially the newly diagnosed .
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
Gymsack
in
Cure Parkinson's
3 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
3 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
22 days ago
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Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
6 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
6 months ago
Hello everyone, breif update
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
Startech
in
Advanced Prostate Cancer
3 months ago
Has anyone tried Piracetam for Parkinson's disease.
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Logon206500
in
Cure Parkinson's
3 months ago
UPDATE
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
Stoneartist
in
Advanced Prostate Cancer
3 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
28 days ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
28 days ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
3 months ago
Coarsened Hepatic Echotexture
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
Evelyn22
in
British Liver Trust
3 months ago
AS the Journey continues
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
ceward204
in
British Liver Trust
3 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
3 months ago
Cold weather flare ups
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Sunshine634
in
LUPUS UK
6 months ago
Fiancé is in desperate need of a kidney
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
Nickywesley
in
Kidney Dialysis
3 months ago
Radiation after Docetaxel
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
Jshaw916
in
Advanced Prostate Cancer
3 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
1 month ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
3 months ago
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