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stress related relapse?
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
CathyMeg
in
PMRGCAuk
4 months ago
prostate metastasis
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
Myshadowgirl1
in
Advanced Prostate Cancer
7 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
7 months ago
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Donepezil as an aid for PSP
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Richard33
in
PSP Association
7 months ago
here we go again😬
after 8 long months I finally summoned up the courage to run again. Long story short I had an op beg of last August, not allowed to run for 3 months, enforced sitting around aggravated my GTS, and then after physio for that I developed a painful/ weak ankle on the other side so more physio. Finally
after 8 long months I finally summoned up the courage to run again. Long story short I had an op beg of last August, not allowed to run for 3 months, enforced sitting around aggravated my GTS, and then after physio for that I developed a painful/ weak ankle on the other side so more physio. Finally
limberlou
Graduate
in
Couch to 5K
4 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
7 months ago
Adrenal cortisol expertise needed
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Rileyfloof
in
Thyroid UK
7 months ago
Zytiga - Lupron
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
Schnab
in
Advanced Prostate Cancer
7 months ago
Cholesterol, pred and PMR?
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
MamaBeagle
in
PMRGCAuk
4 months ago
Very low blood pressure
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Quovadisuk
in
Atrial Fibrillation Support
4 months ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
9 months ago
PMR and MS
I was diagnosed with PMR in 2014 and put onto 15mg Prednisolone. I struggled to reduce the dose over the next 6 years never getting below 3.5. In 2020 my Rheumy Consultant sent me for a brain scan as “it’s the only bit of you we’ve never looked at!” Scan showed I was in the Secondary Progressive phase
I was diagnosed with PMR in 2014 and put onto 15mg Prednisolone. I struggled to reduce the dose over the next 6 years never getting below 3.5. In 2020 my Rheumy Consultant sent me for a brain scan as “it’s the only bit of you we’ve never looked at!” Scan showed I was in the Secondary Progressive phase
Linnetbird
in
PMRGCAuk
9 months ago
OK bloods...Still plateauing??
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Caffeinefreezone
in
Thyroid UK
7 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
TracyAdmin
Partner
in
AF Association
4 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
4 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
4 months ago
Atrial Fibrillation Association Patients Day On-Demand now!
Atrial Fibrillation Association Patients Day On-Demand now! Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations
Atrial Fibrillation Association Patients Day On-Demand now! Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations
TracyAdmin
Partner
in
AF Association
4 months ago
niacin as cause of strokes and heart attacks?
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
Kari55
in
Thyroid UK
4 months ago
Low hemoglobin
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
horsie63
in
Kidney Dialysis
7 months ago
"High levels of niacin linked to heart disease, new research suggests"
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
JackBruce2024
in
Cure Parkinson's
4 months ago
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