Skin issues with CLL and Ibrutinib

[doris33]

I have been on Ibrutinib for over a year. Dosage was reduced because of some side effects, I get petechiae on my arm and under one eye. Has anyone found a remedy for skin issues related to ibrutinib?

[Lenny123]

petechiae seem common, no real remedy, as far as i know. have accepted t as part of the deal. it does seem less with time.

[Annaryp]

Spouse had some skin issues when he started acp196. Got cream from dermatologist that had no affect. So tried my favorite all purpose remedy - organic coconut oil. Not sure if it was mind over matter but it worked. He applies it each day after shower and before bed. Does not permanently stain sheets and the scent fades rapidly so he doesn't smell like a pina colada. Worth a try if all else fails imho

[Dddinah in reply to Annaryp]

Lol! Would not be so bad if he smells like pina colada. I also use coconut oil for skin. Di

[Annaryp in reply to Dddinah]

True. Lol. I've used it for yrs for everything. If in the us Costco has the best price for a giant container.

[Margobleu]

Speaking of coconut oil-- it's a great antibacterial agent. We use it to swish with in lieu of mouthwash. You need to swish in mouth for at least a minute and then spit into something other than the drain. It is an oil that make clog. You should look up all the benefits of coconut oil! We use organic unrefined coconut oil. We cook with it, swish with it, and moisturize with it.