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Lymphatic drainage massages
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
Rando21
in
CLL Support
10 months ago
A ‘wobble’ caused by subset 6 CLL.
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Petroc
in
CLL Support
10 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
5 months ago
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Small pouch or bag
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
Can anyone recommend a small pouch that would clip on to a belt or one with a strap already on that I can carry a couple of inhalers in and a pulse /0ximeter when I go out, thanks.
6538
in
Lung Conditions Community Forum
4 days ago
More steroids my third course 😭
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
Yumz199725
in
Lung Conditions Community Forum
17 days ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
Venetoclax has been added to the Pharmaceutical Benefits Scheme in Australia for use as a retreatment for CLL/SLL
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
CLLerinOz
Administrator
in
CLL Support
10 months ago
Cancelled cycle
Hi everyone, just wanted to see if anyone had experienced a cycle cancellation due to the risk of OHSS. After 8 days of stimulation, I've been told that my cycle had to be cancelled as too many follicles have been developing (29 were seen on the scan) and my estrogen levels were way too high (3,500
Hi everyone, just wanted to see if anyone had experienced a cycle cancellation due to the risk of OHSS. After 8 days of stimulation, I've been told that my cycle had to be cancelled as too many follicles have been developing (29 were seen on the scan) and my estrogen levels were way too high (3,500
Gold00
in
Fertility Network UK
1 year ago
Is MBL the same as CLL stage 0?
hi. I recently got diagnosed with MBL and I’m reading a lot about CLL stage zero on this board. I’m a little confused with the terminology. I’m trying to understand if it is the same thing or not can anyone help?
hi. I recently got diagnosed with MBL and I’m reading a lot about CLL stage zero on this board. I’m a little confused with the terminology. I’m trying to understand if it is the same thing or not can anyone help?
Jazzandblues
in
CLL Support
10 months ago
bloated after surgery
Hi, I had uterine polyp removal in December and have a distended stomach/bloating since then. What could be the reason and what should I do? Thank you!
Hi, I had uterine polyp removal in December and have a distended stomach/bloating since then. What could be the reason and what should I do? Thank you!
Pep1986
in
Women's Health
1 year ago
Mild aortic stenosis...is this normal?
A heart mumur was picked up when I was at the a&e back in June. Had an echocardiogram done September. Finally after trying to chase the a&e cardiologist who checked the echocardiogram he said my results were all normal. So I requested my results to check for myself as I feel rotten daily and it's says
A heart mumur was picked up when I was at the a&e back in June. Had an echocardiogram done September. Finally after trying to chase the a&e cardiologist who checked the echocardiogram he said my results were all normal. So I requested my results to check for myself as I feel rotten daily and it's says
Charts
in
Hughes Syndrome APS Forum
9 months ago
Opioids can cause adrenal insufficiency
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
sferios
in
PMRGCAuk
9 months ago
Questions
The time has come when I need to make a decision about whether to go with hemo or peritoneal dialysis. That brings up many questions. If on peritoneal dialysis do you ever get a decent nights sleep or are you constantly awakened with alarms pain etc. Is the machine very loud - I have a hard time
The time has come when I need to make a decision about whether to go with hemo or peritoneal dialysis. That brings up many questions. If on peritoneal dialysis do you ever get a decent nights sleep or are you constantly awakened with alarms pain etc. Is the machine very loud - I have a hard time
Oceanviewed
in
Kidney Dialysis
9 months ago
Lymphoma or unconnected New Tumour.
Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want to thank you all for your support and advice. I am still waiting on a 'Biopsy' date, followed by the three week wait for results. After which I will know better, where I stand. I have received my recent Bloods from my
Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want to thank you all for your support and advice. I am still waiting on a 'Biopsy' date, followed by the three week wait for results. After which I will know better, where I stand. I have received my recent Bloods from my
Vindicatrix
in
CLL Support
11 months ago
What does bone pain feel like?
My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone pain but how would he know if that’s what he’s experiencing?
My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone pain but how would he know if that’s what he’s experiencing?
karmacrepe
in
CLL Support
11 months ago
Polyp removal results
Hi I had 2 polyps removed on Tuesday privately and have to wait for the test results from the lab to come back before we can progress with our cycle. I was just wondering if anyone had previously had this issue and how long their results took to come back. I am not normally an impatient person but
Hi I had 2 polyps removed on Tuesday privately and have to wait for the test results from the lab to come back before we can progress with our cycle. I was just wondering if anyone had previously had this issue and how long their results took to come back. I am not normally an impatient person but
Winniebear1
in
Fertility Network UK
1 year ago
so tired…
Good morning. I was diagnosed in December 2022 with mild CLL. My problem is that I am so tired all the time I just don’t feel myself. But the doctors tell me that I’m fine and that it’s not from the CLL. I looked on the Internet and I saw that fatigue is common in all stages of CLL. Not sure if there
Good morning. I was diagnosed in December 2022 with mild CLL. My problem is that I am so tired all the time I just don’t feel myself. But the doctors tell me that I’m fine and that it’s not from the CLL. I looked on the Internet and I saw that fatigue is common in all stages of CLL. Not sure if there
LG1948
in
CLL Support
11 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
11 months ago
Since Diagnosed with NASH cirrhosis… just been left in pain for two months … please can someone take time to help and advise . Thank you
polyps
, hyper cholesterol and has 3 large hernias to lower abdominal .BMI is 30 with moderate volume free fluid mostly in the hernial sac , making hernial symptoms worse.
polyps
, hyper cholesterol and has 3 large hernias to lower abdominal .BMI is 30 with moderate volume free fluid mostly in the hernial sac , making hernial symptoms worse.
Sharonmcfarlane
in
British Liver Trust
2 years ago
Dietary Interventions and CLL - a case report
For those of you who are interested in dietary changes and CLL, I found an interesting clinical case report called "Stable improvement in classical B‐cell chronic lymphocytic leukemia with dietary interventions: A personal experience" by Dr. Pooij and his treating hematologist Dr. Raemaekers. The case
For those of you who are interested in dietary changes and CLL, I found an interesting clinical case report called "Stable improvement in classical B‐cell chronic lymphocytic leukemia with dietary interventions: A personal experience" by Dr. Pooij and his treating hematologist Dr. Raemaekers. The case
Minou1
in
CLL Support
1 year ago
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