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Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Zanubrutinib-Gazyva Shows Promise for CLL/SLL
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
Jm954
Administrator
in
CLL Support
5 years ago
Dr Brian Koffman recent Irish radio interview about CAR T
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Irishcll
in
CLL Support
5 years ago
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Advise please... Endo and menopause
Thanks for reading my previous posts, your advice and words of support has really helped me. Since February I’ve had a MRI, Gastroscopy & Flexi Sigmoidoscopy, CT scan, ultrasound, internal scan all come back satisfactory. 💊These are what medication I’ve had colofac, Mefenamic Acid, Oral Capsule 500mg
Thanks for reading my previous posts, your advice and words of support has really helped me. Since February I’ve had a MRI, Gastroscopy & Flexi Sigmoidoscopy, CT scan, ultrasound, internal scan all come back satisfactory. 💊These are what medication I’ve had colofac, Mefenamic Acid, Oral Capsule 500mg
Jue23
in
Endometriosis UK
5 years ago
Chronic Lymphocytic Leukemia: USA Updates in Diagnosis and Testing
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Jm954
Administrator
in
CLL Support
5 years ago
New Directions in CLL: A Review of 2019 Treatment Guideline Updates in USA
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
Jm954
Administrator
in
CLL Support
5 years ago
Feels like a soap opera that’s about to be cancelled
Good morning friends...what a week this has been. Going for brain scans and waiting for results, finding out my brother has been hospitalized in a neighboring state for extreme alcohol poisoning/seizures and now alcohol withdrawal; and trying to not over discuss this infidelity thing with my husband
Good morning friends...what a week this has been. Going for brain scans and waiting for results, finding out my brother has been hospitalized in a neighboring state for extreme alcohol poisoning/seizures and now alcohol withdrawal; and trying to not over discuss this infidelity thing with my husband
ynkefan08753
in
Lung Cancer Support
5 years ago
Exposure to Glyphosate (Round Up)? Any one believe this could be a factor in developing Non Hodgkins Lymphoma?
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
MrsMaggoo
in
CLL Support
5 years ago
Move over MRD Negative and make way for uMRD - Undetectable Minimal Residual Disease
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
AussieNeil
Partner
in
CLL Support
5 years ago
Efficacy of venetoclax monotherapy in patients with relapsed CLL in the post‐BCR inhibitor setting: a UK wide analysis
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic leukaemia (CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning. The median age was 67 years and median
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic leukaemia (CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning. The median age was 67 years and median
Jm954
Administrator
in
CLL Support
5 years ago
Air Purifiers
High all I'm a new member Just Diagnosed with COPD due to working in the building trade as a painter and decorator 40yrs exposed to various dusts inc Asbestos ect can anyone recommend a decent air purifier as the market is very confusing and do they help thankyou everyone 😄
High all I'm a new member Just Diagnosed with COPD due to working in the building trade as a painter and decorator 40yrs exposed to various dusts inc Asbestos ect can anyone recommend a decent air purifier as the market is very confusing and do they help thankyou everyone 😄
ProudYorky
in
Lung Conditions Community Forum
5 years ago
ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Starting my diagnostic journey
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Sunfishjoy
in
CLL Support
5 years ago
Bendamustine and Rituximab and liver toxicity
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
profrich
in
CLL Support
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
Keto acid supplementation?
Does anyone use keto acid supplementation along with a low protein diet to help preserve kidney function and prevent further decline in eGFR? I have read anecdotal reports from people who were able to stabilize and even increase their eGFR and other kidney function values by using this protocol. I am
Does anyone use keto acid supplementation along with a low protein diet to help preserve kidney function and prevent further decline in eGFR? I have read anecdotal reports from people who were able to stabilize and even increase their eGFR and other kidney function values by using this protocol. I am
HisLittleOne
in
Early CKD Support
5 years ago
Chronic lymphocytic leukemia/B-cell prolymphocytic leukemia. A tutorial for physicians, useful for us too.
From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs covering all aspects of the disease, investigation and treatment. https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/chronic-lymphocytic-leukemia-b-cell-prolymphocytic-leukemia-2/ Jackie
From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs covering all aspects of the disease, investigation and treatment. https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/chronic-lymphocytic-leukemia-b-cell-prolymphocytic-leukemia-2/ Jackie
Jm954
Administrator
in
CLL Support
5 years ago
Severe flare up - 9th day
Hi everyone, I hope someone can help I have recently been diagnosed with IBS-D and currently on the 9th day of a flare up. I had a rather spicy curry which has triggered this (though I’m usually fine with spicy food). I have severe diarrhoea and cramps. I have been sticking to low FODMAP foods and even
Hi everyone, I hope someone can help I have recently been diagnosed with IBS-D and currently on the 9th day of a flare up. I had a rather spicy curry which has triggered this (though I’m usually fine with spicy food). I have severe diarrhoea and cramps. I have been sticking to low FODMAP foods and even
Vid2310
in
IBS Network
5 years ago
Fatigue 💤 CFS??
Hello 👋🏼, I was diagnosed with Endo in May and along with all the other joyous symptoms I experience I AM TIRED !!! I wondered what everyone’s experiences were with Fatigue. I know it can be related to Endo so just wondered if any of you lovely lot had been diagnosed with Chronic fatigue syndrome
Hello 👋🏼, I was diagnosed with Endo in May and along with all the other joyous symptoms I experience I AM TIRED !!! I wondered what everyone’s experiences were with Fatigue. I know it can be related to Endo so just wondered if any of you lovely lot had been diagnosed with Chronic fatigue syndrome
K-Endo
in
Endometriosis UK
5 years ago
We eat what we are – let’s detoxify the word ‘chemical’
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
AussieNeil
Partner
in
CLL Support
5 years ago
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